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How much can one body take?
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
As if 2 strokes in 15 months plus a double lung transplant isn’t enough I have now been told I suffered a mild ( thank the Lord mild) heart attack recently which I wasn’t aware of. “Possible inferior infarct- age undetermined “ is their medical term for a myocardial arrest. Suppose on a positive note
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Flying
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Cosmic54
in
The Roy Castle Lung Cancer Foundation
1 year ago
injector1
Hello everyone….. can I ask if there is anyone on this forum who has had a single/double lung transplant at the age limit, or above of 65 years?
Hello everyone….. can I ask if there is anyone on this forum who has had a single/double lung transplant at the age limit, or above of 65 years?
Injecter1
in
Lung Conditions Community Forum
1 year ago
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6 weeks post lung transplant.
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Home now and what a relief. 22 days in ICU resulting in muscle waste in legs so starting all over again with stairs etc. Wound pain 8/10 especially when bending or reaching out. 30% loss of vision due to minor stroke at bottom of brain. The docs seem quite happy with results which is brilliant but
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
Adenocarcinoma lung cancer
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
Bereavement and loss.
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Biofreak
in
Lung Conditions Community Forum
1 year ago
transplant with no social support?
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
bundelino
in
Lung Conditions Community Forum
1 year ago
Scared I might have lung cancer
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Home About Cancer Cancer Chat Post I have a cough most of my life, but just lately I have had a horrible, relentless tickly cough, to the point I gag, and pee myself! I went to AnE in February for a cough that was really hurting my ribs.... They saw me and sent me to ambulatory care. They did test
Loosygoosey7
in
The Roy Castle Lung Cancer Foundation
1 year ago
Join Us! Tomorrow, April 11th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, April 11th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Life insurance ??
Good afternoon, lovely sunny Sunday here in Norfolk? 🌞So my partner and I have finally moved, but I'm struggling with getting anyone to accept me for life insurance to cover my mortgage as I have RA and have had lung surgery?.... Has anyone else had this happen, or know of any companies that would provide
Good afternoon, lovely sunny Sunday here in Norfolk? 🌞So my partner and I have finally moved, but I'm struggling with getting anyone to accept me for life insurance to cover my mortgage as I have RA and have had lung surgery?.... Has anyone else had this happen, or know of any companies that would provide
Dave74
in
NRAS
1 year ago
Prognosis Stage
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
My husband had throat cancer and was cleared in 2017. Then lung cancer last year, was cleared but its now returned.He is currently receiving Immunotherapy as chemotherapy wasn't helping. My question is why when we ask the consultant or her Registrar for a prognosis they don't know, we haven't been told
Hidden
in
The Roy Castle Lung Cancer Foundation
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
Lung Cancer Support
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
Genetic Mutation Driven lung Cancer Support
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
As our last online support group for genetically mutated lung cancer was so succesful we are starting up a new group. We provide a safe space for peer support and a chance to make true connections with others who understand. Our groups are hosted by trained facilitators and this group will run weekly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
immuno stopped due to inflammation
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
morning everyone , I’m currently on immunotherapy ( only had two so far) but this month I’ve developed a cough , chest infection, the hospital checked and say there is inflammation and infection in my lungs , either as a result of immunotherapy or previous radiotherapy… they’ve stopped my immunotherapy
mishamilo53
in
The Roy Castle Lung Cancer Foundation
1 year ago
Diagnosed with Adenosquamous lung cancer
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
hi all First of all just wanted to say a big thank you to all that have posted on here and those that have replied - it's been a great help and a great resource ... I've been diagnosed with T4 N3 M1b Adenosquamous lung cancer ("predominantly adenocarcinoma with some squamous features" according
beesgood
in
The Roy Castle Lung Cancer Foundation
1 year ago
Never rains just pours….😡😡
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Now being tested for rheumatoid arthritis due to extremely painful ankles, knee and wrists. Hopefully if positive this new addition to the family will get on well with my IPF but as long as the lung transplant can proceed I’m cool. 🤪🤪 Stay safe xx
Mrbojangles
in
Lung Conditions Community Forum
1 year ago
lungwort
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
I was recently diagnosed with lung cancer and I’m having radiotherapy at this time. My daughter saw a supplement called Lungwort which she thought might help me. I bought it but I’m now a bit worried about taking it in case it does me harm. My question is - has anyone with a lung condition tried it
deni-123red_
in
Lung Conditions Community Forum
1 year ago
Early Birth Due to Mother’s Heart Condition
Within 24 hours after she was born she nearly died when her
lung
collapsed
- I had felt uneasy before I went to bed that night, I woke to the phone ringing at the nurses desk and before they entered my room, I knew that the call was for me.
Within 24 hours after she was born she nearly died when her
lung
collapsed
- I had felt uneasy before I went to bed that night, I woke to the phone ringing at the nurses desk and before they entered my room, I knew that the call was for me.
MummaSoap
in
British Heart Foundation
11 months ago
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