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Happy Days Are Here Again
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
Ncpoet
in
Lung Cancer Support
5 years ago
PSMA Scan and Primary Lung Cancer
So as my father has a
collapsed
middle lobe with a potentially malignant lesion in his
lung
, so he is also under the care of a lung specialist. This lesion has been there for over 2 years now.
So as my father has a
collapsed
middle lobe with a potentially malignant lesion in his
lung
, so he is also under the care of a lung specialist. This lesion has been there for over 2 years now.
taylor123
in
Advanced Prostate Cancer
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
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Improved Peak Flow
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
Lynnelovessunshine
in
Lung Conditions Community Forum
5 years ago
World first ?
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
soulboy118
in
Lung Conditions Community Forum
5 years ago
Lung cancer stage 4
My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 weeks which he has to take 1 a day. Has anybody else taken this and what was the outcome. Did it reduce the tumour at all.
My husband has lung cancer stage 4. He has been on a drug called Iressa for 5 weeks which he has to take 1 a day. Has anybody else taken this and what was the outcome. Did it reduce the tumour at all.
Motherbird
in
The Roy Castle Lung Cancer Foundation
5 years ago
It’s been a while.
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
I haven’t posted in a while I haven’t really had anything to say, I’m 2 years on since my diagnoses 24% lung function and still on oxygen when I sleep. Haven’t had any hospital trips & only 1 round off antibiotics so my consultant is very happy with me as I’m still off the cigarettes and Still very
insanemoose
in
Lung Conditions Community Forum
5 years ago
Undiagnosed since 10/2018
So I have a pneumothorax October 27, 2018 was released from the hospital November 8, 2018 with not understanding why my
lung
collapsed
.
So I have a pneumothorax October 27, 2018 was released from the hospital November 8, 2018 with not understanding why my
lung
collapsed
.
Looved75
in
Lung Cancer Support
5 years ago
Stage 4 NSCLC with metatasis to brain
Hi Someone really close to me has been diagnosed in April with lung cancer that had spread to the brain. We are in complete shock. As this is stage 4 it’s non treatable but they suggest radiotherapy to the whole brain And then immunotherapy to the lung. We have been told they have limited time. With
Hi Someone really close to me has been diagnosed in April with lung cancer that had spread to the brain. We are in complete shock. As this is stage 4 it’s non treatable but they suggest radiotherapy to the whole brain And then immunotherapy to the lung. We have been told they have limited time. With
Chipmonk23
in
The Roy Castle Lung Cancer Foundation
5 years ago
Bronchiecstasis & pneumonia
Diagnosed with brochiecstasis in 2004. Have 65% lung capacity. Been recuperating from pneumonia since late March. I’m on oxygen therapy. After 2 follow up visits (& mri & chest c-rays), was told if lungs don’t return to the health prior to the pneumonia, may have to consider a lung transplant. That sound
Diagnosed with brochiecstasis in 2004. Have 65% lung capacity. Been recuperating from pneumonia since late March. I’m on oxygen therapy. After 2 follow up visits (& mri & chest c-rays), was told if lungs don’t return to the health prior to the pneumonia, may have to consider a lung transplant. That sound
MtLdy35
in
Lung Conditions Community Forum
5 years ago
Crizotinib
Hi iv just started on crizotinib on a trial and at the moment on cyclizine for sickness...Just woundering if anyone has any views comments help ect on either...thank you...good luck to all.
Hi iv just started on crizotinib on a trial and at the moment on cyclizine for sickness...Just woundering if anyone has any views comments help ect on either...thank you...good luck to all.
Wiseowl1
in
The Roy Castle Lung Cancer Foundation
5 years ago
Ramipril effects
Is anyone on here taking Ramipril? I have been taking 1.25 mg every evening now for seven weeks and at first everything was fine. I had my lung surgery three weeks ago and since then symptoms have got worse. Rapid weight gain, heavy swollen painful legs and swollen ankles, night sweats (couldn’t be
Is anyone on here taking Ramipril? I have been taking 1.25 mg every evening now for seven weeks and at first everything was fine. I had my lung surgery three weeks ago and since then symptoms have got worse. Rapid weight gain, heavy swollen painful legs and swollen ankles, night sweats (couldn’t be
wpw62
in
Lung Conditions Community Forum
5 years ago
Wasn't cumulative effects
Hello y'all, We've been thinking that my Dads side effects after each infusion were just getting kinda crappy since they were building on each other. He's in icu on a vent and the doctor is saying that it's likely the keytruda. Upon the transfer from a rural hospital to a metroplex hospital he got
Hello y'all, We've been thinking that my Dads side effects after each infusion were just getting kinda crappy since they were building on each other. He's in icu on a vent and the doctor is saying that it's likely the keytruda. Upon the transfer from a rural hospital to a metroplex hospital he got
pverde9901
in
Lung Cancer Support
5 years ago
Anxious about results
7weeks ago I had a routine chest X-ray my go rang me and said it was showing an elevated diaphragm, this frightened me. I had another X-ray 7days ago my results were in my patient access notes how long will it be b efore doctor contacts me if something is wrong.
7weeks ago I had a routine chest X-ray my go rang me and said it was showing an elevated diaphragm, this frightened me. I had another X-ray 7days ago my results were in my patient access notes how long will it be b efore doctor contacts me if something is wrong.
Dizzybozz1
in
Lung Conditions Community Forum
5 years ago
Knowing How To Cope is taking it's Toll
Hello Everyone , This is like a second part to my story a few weeks back.a few weeks have past now and finding life diffucult at times, I admit I am depressed at times, and still in tears at time. I feel so damm scared and the not knowing. 18th March I was once again diagnosed with lung cancer . I
Hello Everyone , This is like a second part to my story a few weeks back.a few weeks have past now and finding life diffucult at times, I admit I am depressed at times, and still in tears at time. I feel so damm scared and the not knowing. 18th March I was once again diagnosed with lung cancer . I
Guy59
in
Lung Conditions Community Forum
5 years ago
Transplant birthday/Mental Health Awareness Week/Lung Transplant Consultation
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 years ago
Opportunity for paid interview.
If you were diagnosed with lung cancer in the last 3 years and you are on a second line of treatment but have NOT had progression you qualify. Must be a US citizen. Pays $100 for a 1 hour interview. Example: Chemo then a maintenance drug or chemo then immunotherapy. I’ve worked with this group
If you were diagnosed with lung cancer in the last 3 years and you are on a second line of treatment but have NOT had progression you qualify. Must be a US citizen. Pays $100 for a 1 hour interview. Example: Chemo then a maintenance drug or chemo then immunotherapy. I’ve worked with this group
Denzie
Volunteer
in
Lung Cancer Support
5 years ago
Immunotherapy and chemotherapy
Well good news today I finally got My brain MRI results through and there is evidence of overall tumour shrinkage ,I am so pleased .This means that my current post treatment difficulties have been worth it ,the cardiac tumour has also receded so I am currently in a much better position , I am also been
Well good news today I finally got My brain MRI results through and there is evidence of overall tumour shrinkage ,I am so pleased .This means that my current post treatment difficulties have been worth it ,the cardiac tumour has also receded so I am currently in a much better position , I am also been
Hidden
in
Lung Cancer Support
5 years ago
Unbearable wait.
Hi everyone I'm new here. My sister in law was diagnosed with lung cancer 7 weeks ago. Pleural fluid results came back inconclusive so she had biopsy 10 days ago. Still no results . Is it normal to wait this long? Thanks x
Hi everyone I'm new here. My sister in law was diagnosed with lung cancer 7 weeks ago. Pleural fluid results came back inconclusive so she had biopsy 10 days ago. Still no results . Is it normal to wait this long? Thanks x
F3spyder
in
The Roy Castle Lung Cancer Foundation
5 years ago
Chemo and immunotherapy
I had a final cycle of Altima, Carbopltin and Keytunda just three days ago and as much as I want to stay awake I cannot ,every time I sit down I end up snoring .I always have a small plan for my day I don't expect to achieve much but this is ridiculous anyone else experiencing this ? The worrying bit
I had a final cycle of Altima, Carbopltin and Keytunda just three days ago and as much as I want to stay awake I cannot ,every time I sit down I end up snoring .I always have a small plan for my day I don't expect to achieve much but this is ridiculous anyone else experiencing this ? The worrying bit
Hidden
in
Lung Cancer Support
5 years ago
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