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4th Booster Jab REFUSED for me
Have bronchiectasis, one partly
collapsed
lung
resting on other, and two nasties, pseudomonas and Maltophilia partying in lungs all winter. NHS statement disappointingly inaccurate.
Have bronchiectasis, one partly
collapsed
lung
resting on other, and two nasties, pseudomonas and Maltophilia partying in lungs all winter. NHS statement disappointingly inaccurate.
Morrison10
in
Lung Conditions Community Forum
2 years ago
Advice
I have just been diagnosed with lung cancer, I had no symptoms and haven’t been unwell. I went to the Gp after developing a wheeze as I thought I had asthma. I am due to start immunotherapy the middle of June. I am due to go on holiday the middle of next week for 7 days and would like advice on travel
I have just been diagnosed with lung cancer, I had no symptoms and haven’t been unwell. I went to the Gp after developing a wheeze as I thought I had asthma. I am due to start immunotherapy the middle of June. I am due to go on holiday the middle of next week for 7 days and would like advice on travel
Hidden
in
The Roy Castle Lung Cancer Foundation
2 years ago
Another Brain Met
I had two brain mets from my lung cancer and radiotherapy got rid of them. I have just had another scan to check progress and it seems another small one has popped up on the opposite side, I'm devastated, it's determined to get me. I'm having a CT scan of thorax abdomen and pelvis. Consultant says if
I had two brain mets from my lung cancer and radiotherapy got rid of them. I have just had another scan to check progress and it seems another small one has popped up on the opposite side, I'm devastated, it's determined to get me. I'm having a CT scan of thorax abdomen and pelvis. Consultant says if
Tike3
in
The Roy Castle Lung Cancer Foundation
2 years ago
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Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
My brother
He has a 5 cms tumor in his left
lung
- his
lung
collapsed
and that's how we found out he had cancer. We were told we were fortunate & that he could have surgery at Guys hospital - he now can't have surgery because of his lung function - he has COPD.
He has a 5 cms tumor in his left
lung
- his
lung
collapsed
and that's how we found out he had cancer. We were told we were fortunate & that he could have surgery at Guys hospital - he now can't have surgery because of his lung function - he has COPD.
Brianderrick12
in
The Roy Castle Lung Cancer Foundation
2 years ago
Cancer in broncial tube
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Hi everyone i got diagnosed with lung cancer in my broncial tube nearly a year ago. I'm being treated with immunotherapy i have a year left of treatment my doctors just told me. Why because the government have a deal with the pharmaceutical company for a 2yr period but its working ok for me then it
Bulldog242
in
Lung Cancer Support
2 years ago
Join Us! May 10th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Has anyone been involved in a clinical trial with osmertinib? It’s an option for my dad or have chemo/radiotherapy concurrently.
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
Jaynelovestravel
in
The Roy Castle Lung Cancer Foundation
2 years ago
CBD OIL
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Tike3
in
The Roy Castle Lung Cancer Foundation
2 years ago
Lung transplant second opinion update.
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Please join us tomorrow,Tuesday April 19th for our Lung Cancer Living Room: "Treatment Options for Late-Stage Lung Cancer "
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Can you help me
We need he said I’ve sent a letter with everting in it explaining what decision was made I’m on high rate pip due to having
collapsed
lung
I went to bed one night and my
lung
collapsed
I don’t smoke basically the said the lungs were over working due to me having COPD and brittle asthma also I have arthritis
We need he said I’ve sent a letter with everting in it explaining what decision was made I’m on high rate pip due to having
collapsed
lung
I went to bed one night and my
lung
collapsed
I don’t smoke basically the said the lungs were over working due to me having COPD and brittle asthma also I have arthritis
olliebobb
in
Fibromyalgia Action UK
2 years ago
International Caregiver Survey
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Please join me in meeting with Congress to ask for Lung Cancer Research Funding
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
The most important thing you can do as a participant is share your experience with your representative in DC. You put a face on lung cancer which is the most powerful tool we have. You will be matched with other people from your state and the state leader will make the ask for the funding. First
Denzie
Volunteer
in
Lung Cancer Support
2 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
Thank you!
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Wow. Thanks to all of you for saying g’day. PPFE is idiopathic pleuro parenchymal fibroelastosis. Rare. Diagnosed by lung biopsy. I am not suitable for lung transplants. I will contact you all. 😊
Hidden
in
Lung Conditions Community Forum
2 years ago
Treatments and Surviving Cancer
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
I am a stage 3 lung cancer survivor that was diagnosed in August of 2018, so I have now been in remission for 3 1/2 years. When I first found out that I had cancer it was very scary because I thought that I was going to die, so I began depressed and sad. I had a lot of prayer warriors, family members
Linnie1430
in
Lung Cancer Support
2 years ago
Refusing Lung Transplant
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
A few weeks ago my wife's neurologist put her forward for consideration for lung transplant surgery. After consideration, my wife has declined as she feels it represents a great deal of change to her life, in which she is quite content. I go along with her wishes but wondered if this was a decision made
hillclimber1
in
Lung Conditions Community Forum
2 years ago
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