Search
Search
About
Log in
Join
Experiences with
Cogan's syndrome
Posts
Communities
3,348 public posts
Filter results
buprenorphine for RLS
I have been trying doses of suboxone for RLS. for some people it is magic that gives them there life back. I took all the way up to 8 mg and it didn’t do much 🫤 I don’t get it. We are more experts than the doctors so my question is, does anyone have any clue why 8 mg of buprenorphine would not
I have been trying doses of suboxone for RLS. for some people it is magic that gives them there life back. I took all the way up to 8 mg and it didn’t do much 🫤 I don’t get it. We are more experts than the doctors so my question is, does anyone have any clue why 8 mg of buprenorphine would not
RC723
in
Restless Legs Syndrome
2 years ago
Clonazepam
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
Hi I'm still having a rough time with RLS despite my usual gabapentin and temgesic. My doctor has suggested trying clonazepam in combination with my existing medication and I wondered what experience my fellow sufferers had with it. I've tried other benzo sleeping tablets in the past but the RL always
puzzler1
in
Restless Legs Syndrome
2 years ago
UTIs & D mannose
I'm currently having recurring infections- 2 different abx in just a few weeks. Due to see yet another gynae in early September re bladder prolapse. Tried D mannose before without success but maybe not taking enough?? Should it be 3 tabs every 3 hours- for how long? Thanks again as usual, Valerie
I'm currently having recurring infections- 2 different abx in just a few weeks. Due to see yet another gynae in early September re bladder prolapse. Tried D mannose before without success but maybe not taking enough?? Should it be 3 tabs every 3 hours- for how long? Thanks again as usual, Valerie
Portobello
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Bizarre aid in relieving my RLS symptoms
I have suffered severely from RLS for most of my life (I'm now 66). For the last few years I have been prescribed Ropinirole and Pregabalin, although the Pregabalin was stopped at the end of 2021. My symptoms have been unchanged for many years - sensations in legs, arms, shoulders and wrists; generally
I have suffered severely from RLS for most of my life (I'm now 66). For the last few years I have been prescribed Ropinirole and Pregabalin, although the Pregabalin was stopped at the end of 2021. My symptoms have been unchanged for many years - sensations in legs, arms, shoulders and wrists; generally
Niksles
in
Restless Legs Syndrome
2 years ago
Advice moving forward:
I currently take 300mg pregabalin but it only is about 60% effective, some nights it’s not effective at all, I also take cocodamol and sometimes clonazepam. I had already been on roprinirole and managed to wean myself off. I need some advice moving forward… I saw Professor Walker about a year ago -
I currently take 300mg pregabalin but it only is about 60% effective, some nights it’s not effective at all, I also take cocodamol and sometimes clonazepam. I had already been on roprinirole and managed to wean myself off. I need some advice moving forward… I saw Professor Walker about a year ago -
Drls
in
Restless Legs Syndrome
2 years ago
All in the Mind - hypermobility, ADHD, Tourette's
This morning, I listened to the latest
All in the mind
- and it was interesting. I was particularly struck by the associations made between mind and body - the seemingly very physical hypermobility syndrome and other issues which might be consider more on the mental health side. We have
This morning, I listened to the latest
All in the mind
- and it was interesting. I was particularly struck by the associations made between mind and body - the seemingly very physical hypermobility syndrome and other issues which might be consider more on the mental health side. We have
helvella
Thyroid UK
in
Thyroid UK
2 years ago
My daughter has chronic fatigue syndrome
My daughter has chronic fatigue syndrome. It seems to have developed folowing Glandular fever 9 months to her first symptoms. However after 3.5 years, the syndrome suddenly became very severe and caused disability of her arms and legs ( 7 months ago) . anybody else suffering with this?
My daughter has chronic fatigue syndrome. It seems to have developed folowing Glandular fever 9 months to her first symptoms. However after 3.5 years, the syndrome suddenly became very severe and caused disability of her arms and legs ( 7 months ago) . anybody else suffering with this?
Bonnie123456
in
Pain Concern
2 years ago
Taking Flecainide even when in Permanent Afib
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Malhouse
in
Atrial Fibrillation Support
2 years ago
Medical miscarriage - is it safe to take again for the 2nd time? Any long term effects?
Hi, I’m having a horrible week and have misoprostol tablets to take tonight to help my miscarriage. I had them a couple of years ago, and obviously it’s just dawned on me whether it’s safe to have them again, and if there’s any long term effects which would stop me getting/staying pregnant? Feel very
Hi, I’m having a horrible week and have misoprostol tablets to take tonight to help my miscarriage. I had them a couple of years ago, and obviously it’s just dawned on me whether it’s safe to have them again, and if there’s any long term effects which would stop me getting/staying pregnant? Feel very
Catlady12345
in
Fertility Network UK
2 years ago
RLS Meds & Post-Surgical complications
I had a knee replacement a year ago. It went well, except my doctor took me off my Tramadol, 100 mg/3 per day, while keeping me on my 100 mg, 3x/day Pregabalin—it works well together. Instead he had me on 5 mg of Oxycodone every 4 hours. He thought the Oxycodone would an effective substitute for the
I had a knee replacement a year ago. It went well, except my doctor took me off my Tramadol, 100 mg/3 per day, while keeping me on my 100 mg, 3x/day Pregabalin—it works well together. Instead he had me on 5 mg of Oxycodone every 4 hours. He thought the Oxycodone would an effective substitute for the
Bganim1947
in
Restless Legs Syndrome
2 years ago
Leg Claudication
Does anyone else have issues with leg pain when walking. I am trying to walk a mile a day and always have leg pain. I suspect peripheral artery disease. Is Peripheral artery disease a part of GCA/PMR?
Does anyone else have issues with leg pain when walking. I am trying to walk a mile a day and always have leg pain. I suspect peripheral artery disease. Is Peripheral artery disease a part of GCA/PMR?
phebamom
in
PMRGCAuk
2 years ago
Off Baricitinib and knee replacement
Hi I'm feeling tearful. I've been off Baricitinib for one week yesterday as I'm having a total knee replacement next Wednesday 13th (I had my left knee and hip replaced in 2018 before being diagnosed) and had to use walking sticks since. Already my feet and ankles are swollen and it's painful to
Hi I'm feeling tearful. I've been off Baricitinib for one week yesterday as I'm having a total knee replacement next Wednesday 13th (I had my left knee and hip replaced in 2018 before being diagnosed) and had to use walking sticks since. Already my feet and ankles are swollen and it's painful to
Mozart150
in
NRAS
2 years ago
CoQ10 and NADH for chronic fatigue
I've been doing a little reading on these two supplements as treatments for Chronic Fatigue. Just a few articles I found through a google search. Seems like this might be promising approach but I also don't know anyone that's tried it. I'm hoping someone here could chime in... In addition to chronic
I've been doing a little reading on these two supplements as treatments for Chronic Fatigue. Just a few articles I found through a google search. Seems like this might be promising approach but I also don't know anyone that's tried it. I'm hoping someone here could chime in... In addition to chronic
Fleur29
in
Foggy's "Invisible Illness" Support
2 years ago
Update
Hello lovely people Just wanted to give you an update as you all have given me so much hope via replies , different posts, suggestions and advice. Most importantly you lot will understand it the most! So after my initial low hcg, it eventually started rising (last week at 6000+). Had a scan 2weeks
Hello lovely people Just wanted to give you an update as you all have given me so much hope via replies , different posts, suggestions and advice. Most importantly you lot will understand it the most! So after my initial low hcg, it eventually started rising (last week at 6000+). Had a scan 2weeks
supportplease
in
Fertility Network UK
2 years ago
Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
? To denerve or not to denerve?!
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
Gillyflower70
in
NRAS
2 years ago
Pramipexole, restless legs and tummy ache
I am cutting down on pramipexole. And I really appreciate the advice and help him by members of this group. Does anybody else find that when their legs are particularly restless they also have tummy ache?
I am cutting down on pramipexole. And I really appreciate the advice and help him by members of this group. Does anybody else find that when their legs are particularly restless they also have tummy ache?
RestlessMe
in
Restless Legs Syndrome
2 years ago
Ropinirole as needed?
Hello everyone. I have taken low dose Ropinirole on occasion (.25mg) and alternate it with Gabapentin (300 mg) for medium RLS symptoms and to help with sleep. I do this for fear of Augmentation on Ropinirole and loss of efficacy with Gabapentin over time. Has anyone here have had experience with this
Hello everyone. I have taken low dose Ropinirole on occasion (.25mg) and alternate it with Gabapentin (300 mg) for medium RLS symptoms and to help with sleep. I do this for fear of Augmentation on Ropinirole and loss of efficacy with Gabapentin over time. Has anyone here have had experience with this
zeusop
in
Restless Legs Syndrome
2 years ago
Yellow Card Scheme Reporting
If any UK members have suffered augmentation of RLS symptoms on Ropinirole. Pramipexole, the Neupro patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed
If any UK members have suffered augmentation of RLS symptoms on Ropinirole. Pramipexole, the Neupro patch or other dopamine agonists, PLEASE REPORT it via https://yellowcard.mhra.gov.uk/ Unless and until the authorities and medical profession see the scale of suffering, these drugs will keep being prescribed
Joolsg
in
Restless Legs Syndrome
2 years ago
RLS SPECIALISTS
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
I am making this article just to vent a little bit. I’m 34 years old with severe RLS chronic in my legs in arms , I don’t have augmentation I never used DAs. I have tried every drug I know there is no cure little no treatment and the side effects from opiates are horrible. I really have no life anymore
RC723
in
Restless Legs Syndrome
2 years ago
1
...
36
37
38
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest