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Coagulation factor IX
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Confused about megabolostic anaemia
My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is normal does that mean I do not have megoblastic anaemia? My vit D is 60 I had more bloods done on Monday and having g ferritin leveks folate and full blood count as some were out of range. White blood count up a bit and infkamarory
My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is normal does that mean I do not have megoblastic anaemia? My vit D is 60 I had more bloods done on Monday and having g ferritin leveks folate and full blood count as some were out of range. White blood count up a bit and infkamarory
Nackapan
in
Pernicious Anaemia Society
6 years ago
MMA and homocysteine testing - have I already messed it up by supplementing?
Hello there, As a bit of background, I'm 30 years old and I've been suffering from a range of symptoms including fatigue, headaches and tingling for over a decade. With no interest from any GPs I ordered tests from Blue Horizon a couple of years ago which showed I have hashimotos (although the doctors
Hello there, As a bit of background, I'm 30 years old and I've been suffering from a range of symptoms including fatigue, headaches and tingling for over a decade. With no interest from any GPs I ordered tests from Blue Horizon a couple of years ago which showed I have hashimotos (although the doctors
Sick-and-Tired
in
Pernicious Anaemia Society
6 years ago
How long does it take for a result of blood test for Intrinisc Factor in UK
I had blood taken on 7th December for Intrinsic Factor, no results were back ten days later when I saw my doctor on 17th, should it take so long for results ? I have neurological symptoms due to be wrongly diagnosed as suffering from ME/CFS in 2000 after attending my GP in 1990 with same symptoms, which
I had blood taken on 7th December for Intrinsic Factor, no results were back ten days later when I saw my doctor on 17th, should it take so long for results ? I have neurological symptoms due to be wrongly diagnosed as suffering from ME/CFS in 2000 after attending my GP in 1990 with same symptoms, which
InBardo
in
Pernicious Anaemia Society
6 years ago
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Anti VEGF injections
I am having injections into my right eye every 4 weeks. My next appointment came yesterday and is actually 6 weeks since the last injection. Will 6 weeks be okay or should I try to change it? Many thanks for your advice Jane
I am having injections into my right eye every 4 weeks. My next appointment came yesterday and is actually 6 weeks since the last injection. Will 6 weeks be okay or should I try to change it? Many thanks for your advice Jane
Koalajane
in
Macular Society
6 years ago
Got the shots down to 10 weeks from 12 with GP, still massively struggling! Should I self-inject?
Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intrinsic factor over a year ago and was given the loading shots and then put on a 12 weekly B12 injection. A few months ago I went back to the GP and begged to be given them more often, and they agreed to do it every 10 weeks
Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intrinsic factor over a year ago and was given the loading shots and then put on a 12 weekly B12 injection. A few months ago I went back to the GP and begged to be given them more often, and they agreed to do it every 10 weeks
trevthedog
in
Pernicious Anaemia Society
6 years ago
Pernicious aneamia test
On reading posts it seems to be common that doctors don't give us reasons for B12 defiency. I understand about absorption problems. I've been told I've not got megoblastic aneamia Hb 13 folate 9 ferriton level 60. No antibody to intrinsic factor . Thyroid ok. Not got celilac disease. When I asked
On reading posts it seems to be common that doctors don't give us reasons for B12 defiency. I understand about absorption problems. I've been told I've not got megoblastic aneamia Hb 13 folate 9 ferriton level 60. No antibody to intrinsic factor . Thyroid ok. Not got celilac disease. When I asked
Nackapan
in
Pernicious Anaemia Society
6 years ago
Update - one step closer!
Hello everyone Thankyou all for your support and guidance! I’d just like to update everybody, I managed to get an appointment with my GP today, I was sent to the hospital to rule out a blood clot on the lung I had a blood test (Ddimer) which thankfully came back negative. While I was in the doctors with
Hello everyone Thankyou all for your support and guidance! I’d just like to update everybody, I managed to get an appointment with my GP today, I was sent to the hospital to rule out a blood clot on the lung I had a blood test (Ddimer) which thankfully came back negative. While I was in the doctors with
Chaz1226
in
LUPUS UK
6 years ago
Me again
I’m a bit upset as I’ve just received a copy from Consultant about my last appointment. The first thing I noticed was she now says I’m seronegative when I’ve always been seropositve. It seems my inflammatory markers are normal ESR is 11 CRP 4 and Rheumatoid factor and anti-CCP antibodies are negative
I’m a bit upset as I’ve just received a copy from Consultant about my last appointment. The first thing I noticed was she now says I’m seronegative when I’ve always been seropositve. It seems my inflammatory markers are normal ESR is 11 CRP 4 and Rheumatoid factor and anti-CCP antibodies are negative
barbieg
in
NRAS
6 years ago
Low B12, TPO antibodies but doctors insisting it's MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Mirandarr
in
Pernicious Anaemia Society
6 years ago
TPO antibodies, Low B12 but doctors still insisting MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Mirandarr
in
Thyroid UK
6 years ago
4 months of treatment and no better off, is it really PA?
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
teebeevee
in
Pernicious Anaemia Society
6 years ago
PA with no antibodies?
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Katier92
in
Pernicious Anaemia Society
6 years ago
Graves’ disease, in remission since May 2018 but in lots of pain
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
SolSun
in
Thyroid UK
6 years ago
B12 defficient can it cause palpitations
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Suzie0505
in
Pernicious Anaemia Society
6 years ago
Help re B12 and folate treatment please...
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
hhelen
in
Pernicious Anaemia Society
6 years ago
Persistent penis bumps
Hello, I was with a woman for 6 months. So, naturally unprotected sex ensued. 8 Mo after having sex (she was nuts and I decided my hand was safer for a while) I developed these bumps. I treat with acv (Apple cider vinegar) and they form deep trenches in the side of my Wang. So, I let it heal (treating
Hello, I was with a woman for 6 months. So, naturally unprotected sex ensued. 8 Mo after having sex (she was nuts and I decided my hand was safer for a while) I developed these bumps. I treat with acv (Apple cider vinegar) and they form deep trenches in the side of my Wang. So, I let it heal (treating
Somedude3000
in
BASHH
6 years ago
Confused with my Intrinsic Factor Antibody test results
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
emvj
in
Pernicious Anaemia Society
6 years ago
Blood test results needing help with please......
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
Df92rt
in
Thyroid UK
6 years ago
Do the oral B12 sprays definitely work for patients with positive anti-body for intrinsic factor?
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Katyluisa
in
Pernicious Anaemia Society
6 years ago
No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
GoingthruTreacle
in
Pernicious Anaemia Society
6 years ago
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