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Coagulation factor IX
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PA tests negative... how accurate are they?
After my PA tests came back negative, my doctor was convinced I had celiac. Got my results yesterday and celiac was negative. It's my understanding these tests are pretty accurate. They tested endomysial antibodies, transglutaminase IGA and IGG and they were all negative. The only odd thing that has
After my PA tests came back negative, my doctor was convinced I had celiac. Got my results yesterday and celiac was negative. It's my understanding these tests are pretty accurate. They tested endomysial antibodies, transglutaminase IGA and IGG and they were all negative. The only odd thing that has
username7
in
Pernicious Anaemia Society
5 years ago
Could this be PA? And side effects of B12 shots?
Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am symptomatic, my GP has prescribed VitB12 injection 1 x month for 3 months. I am early 60s and have autoimmune Hashimotos thyroid disease, and take levothyroxine. My thyroid blood tests are all good. I have taken B12 oral
Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am symptomatic, my GP has prescribed VitB12 injection 1 x month for 3 months. I am early 60s and have autoimmune Hashimotos thyroid disease, and take levothyroxine. My thyroid blood tests are all good. I have taken B12 oral
chicolini
in
Pernicious Anaemia Society
5 years ago
Endocrinologist test results - please help me! (And ferritin not going up)
Hi everyone, I received some blood test results from my endocrinologist. She had said in my last appointment that if these tests didn't show anything up then it's "just chronic fatigue". I've attached a photo of my results and wondered what you all thought. I know that she hasn't run some tests which
Hi everyone, I received some blood test results from my endocrinologist. She had said in my last appointment that if these tests didn't show anything up then it's "just chronic fatigue". I've attached a photo of my results and wondered what you all thought. I know that she hasn't run some tests which
Sick-and-Tired
in
Thyroid UK
5 years ago
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B12 injection dosage
I'm a 60 year old man living in the US. Despite always exercising & eating a very good junk-free diet, I have basically felt like **** every day of my life since I was about 20. No doctor has ever been able to do much to help me. I've recently had some testing which has indicated low levels of red blood
I'm a 60 year old man living in the US. Despite always exercising & eating a very good junk-free diet, I have basically felt like **** every day of my life since I was about 20. No doctor has ever been able to do much to help me. I've recently had some testing which has indicated low levels of red blood
SouthSounder
in
Pernicious Anaemia Society
5 years ago
Update on new anti-VEGF
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
Annsandra13
in
Macular Society
5 years ago
Bunch of Test Results Came Back. Help Needed.
Hey everybody, Been posting on this forum for a month now since learning I was very deficient on B12 (159) and have been supplementing ever since. I've experienced a lot of benefit since beginning supplementation but I got some test results from the hematologist back that I was hoping you guys could
Hey everybody, Been posting on this forum for a month now since learning I was very deficient on B12 (159) and have been supplementing ever since. I've experienced a lot of benefit since beginning supplementation but I got some test results from the hematologist back that I was hoping you guys could
lownskater52
in
Pernicious Anaemia Society
5 years ago
Naltrexone
I have just found this product on the website 'endo resolved'. I like their moto. Naltrexone is type drug called an “opiate antagonist”, meaning it blocks opioid receptors. Opioid receptors are related to pain, pleasure and endorphins. Taken in low doses LDN blocks opioid receptors only for a couple
I have just found this product on the website 'endo resolved'. I like their moto. Naltrexone is type drug called an “opiate antagonist”, meaning it blocks opioid receptors. Opioid receptors are related to pain, pleasure and endorphins. Taken in low doses LDN blocks opioid receptors only for a couple
Anastasia17
in
Endometriosis UK
5 years ago
PA or anxiety?
Please help. Does anyone else get vertigo/dizzy sensations whilst out and have to hold onto clothes rails in shops or similar?? I can't handle it anymore and have just managed to come home in tears. I'm pernicious anaemic with no intrinsic factor, and had hysterectomy 4 weeks ago. Please advise :(
Please help. Does anyone else get vertigo/dizzy sensations whilst out and have to hold onto clothes rails in shops or similar?? I can't handle it anymore and have just managed to come home in tears. I'm pernicious anaemic with no intrinsic factor, and had hysterectomy 4 weeks ago. Please advise :(
sanstarr
in
Pernicious Anaemia Society
5 years ago
Dryness
What type of lotion do you find works best for dry skin? For my scalp I only shampoo twice weekly and use a castor oil shampoo. No blow drying. (I’m 55 so I’m drying anyway.) I was doing well with cetaphil but that’s not helping anymore. Any good ideas. I, probably like most of you, cant have lots of
What type of lotion do you find works best for dry skin? For my scalp I only shampoo twice weekly and use a castor oil shampoo. No blow drying. (I’m 55 so I’m drying anyway.) I was doing well with cetaphil but that’s not helping anymore. Any good ideas. I, probably like most of you, cant have lots of
NeuronerdDoaty
in
LUPUS UK
5 years ago
B12 and folate deficient but negative intrinsic factor.
Please help me. Last September bloods showed I was B12 and folate deficient and was given loading doses then every 12 weeks. I was self injecting for 6 months but still had lots of neurological symptoms. I’ve not had an injection now for a month and have felt worse. The doctor won’t increase injections
Please help me. Last September bloods showed I was B12 and folate deficient and was given loading doses then every 12 weeks. I was self injecting for 6 months but still had lots of neurological symptoms. I’ve not had an injection now for a month and have felt worse. The doctor won’t increase injections
Badboybob
in
Pernicious Anaemia Society
5 years ago
All Information and suggestions welcome
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
PBCNewbie32
in
PBCers Organization
5 years ago
Please help! I'm in need of answers..
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
PBCNewbie32
in
PBC Foundation
5 years ago
B12 deficient?
Hello - I've been here before asking for advice and hopefully someone can help. I'm 44 (as of last week) and have Hashimotos disease. I'm currently on 50mcg Levothyroxine and have been on this starter dose since January. My GP won't increase it despite my showing symptoms of being undermedicated. I
Hello - I've been here before asking for advice and hopefully someone can help. I'm 44 (as of last week) and have Hashimotos disease. I'm currently on 50mcg Levothyroxine and have been on this starter dose since January. My GP won't increase it despite my showing symptoms of being undermedicated. I
Hidden
in
Pernicious Anaemia Society
5 years ago
Myopic CNV, Flickering Foster Fuch's Spots Dilemma
Hi All, Just joined healthunlocked today. I am an indian and i have had n no. of issues with my right eye. I basically had irregular shape of the right orbit since childhood and unfortunately, i had an accident when i was 4 which led to high myopia. One of the doctor told my parents in my childhood
Hi All, Just joined healthunlocked today. I am an indian and i have had n no. of issues with my right eye. I basically had irregular shape of the right orbit since childhood and unfortunately, i had an accident when i was 4 which led to high myopia. One of the doctor told my parents in my childhood
Pankaj_Arora
in
Macular Society
5 years ago
Hydroxocobalamin injection frequency, and are patches a recommended/viable addition to my needs? Your recommendations, sources, experiences?
Hi all, I am B12 deficient (which was initially suspected in December 2018, following declining health), with prior 6 month history of worsening peripheral neuropathy, worsening exercise intolerance, syncope and frequent pre-syncope and long standing (at least until I started on B12 replacement in December
Hi all, I am B12 deficient (which was initially suspected in December 2018, following declining health), with prior 6 month history of worsening peripheral neuropathy, worsening exercise intolerance, syncope and frequent pre-syncope and long standing (at least until I started on B12 replacement in December
tomranson85
in
Pernicious Anaemia Society
5 years ago
Awaiting diagnosis.... ? PMR
New to this community and looking for some advice really....visited GP a month ago as perimenopausal (51) and suffering aches in shoulders, hips, knees, occasionally elbows. RA in family and I have underactive thyroid (autoimmune). GP organised a raft of blood tests rather than just go with my low
New to this community and looking for some advice really....visited GP a month ago as perimenopausal (51) and suffering aches in shoulders, hips, knees, occasionally elbows. RA in family and I have underactive thyroid (autoimmune). GP organised a raft of blood tests rather than just go with my low
Pippy28
in
PMRGCAuk
5 years ago
Neurological symptoms of deficiency
Hi I wonder if anyone can help, I am pretty certain my mum needs b12 injections, her level was 146 2 years ago and her Gp gave her loading dose of 6 injections over 2 weeks then stopped,her level was then 480. No maintainable doses, she has chronic fatigue, leg weakness , PMR and age related Degenerative
Hi I wonder if anyone can help, I am pretty certain my mum needs b12 injections, her level was 146 2 years ago and her Gp gave her loading dose of 6 injections over 2 weeks then stopped,her level was then 480. No maintainable doses, she has chronic fatigue, leg weakness , PMR and age related Degenerative
niamhdan
in
Pernicious Anaemia Society
5 years ago
Doctor not accepting my Intrinsic factor A test, wants to do her own.
How will that work? Next time it could say negative as unreliable. Also said that test doesn't mean I have PA there is another test they do also alongside the IFA test to conclude PA and both have to be positive. What test does she mean exactly? Said my IFA test slightly out of range but doesn't
How will that work? Next time it could say negative as unreliable. Also said that test doesn't mean I have PA there is another test they do also alongside the IFA test to conclude PA and both have to be positive. What test does she mean exactly? Said my IFA test slightly out of range but doesn't
SunnyWorld
in
Pernicious Anaemia Society
5 years ago
Deer in headlights needing some guidance
Hi everyone, I hope someone can please shed some light. I have had painful swollen joints to both middle, ring and index fingers and a burning sensation in my wrists. My doctor checked my rheumatoid factor, ESR and CRP all of which were normal and now he is fobbing me off saying this is all in my head
Hi everyone, I hope someone can please shed some light. I have had painful swollen joints to both middle, ring and index fingers and a burning sensation in my wrists. My doctor checked my rheumatoid factor, ESR and CRP all of which were normal and now he is fobbing me off saying this is all in my head
Green-finger
in
NRAS
5 years ago
High Rheumatoid Factor
Hi everyone I've just joined. I had blood tests done beginning of last month due to having sore joints and generally not feeling well. My rheumatoid factor came back as 650iu/ml which my GP and said was one of highest she'd ever seen. I take diclofenac 50 three times a day and Zapain. I have an appointment
Hi everyone I've just joined. I had blood tests done beginning of last month due to having sore joints and generally not feeling well. My rheumatoid factor came back as 650iu/ml which my GP and said was one of highest she'd ever seen. I take diclofenac 50 three times a day and Zapain. I have an appointment
Sumdy
in
NRAS
5 years ago
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