Research evidence needed

[Andypandy30]

If any one can help guide me ? I hAve been. Asked by my daughters gp to leave in evidence based research re b12 deficiency and pa in children in particular as he is unwilling to give daughter injection earlier than three monthly . What exactly will he go by as I’m trying very hard to get through to him re the issue .i also feel very demeaned re being asked to do this and feel if he was interested he should do it himself but as her intrinsic factor is negative and her serum levels are in range even though she has symptoms it is very frustrating as I know they go by blood tests .

[fbirder]

If you are a member of the Pernicious Anaemia Society then you can access their leaflet produced for parents of juvenile patients - pernicious-anaemia-society....

Also:

Effects of Vitamin B12 and Folate Deficiency on Brain Development in Children journals.sagepub.com/doi/ab...

Vitamin B12 deficiency in children and adolescents jpeds.com/article/S0022-347...

Neurological Consequences of Vitamin B12 Deficiency and Its Treatment journals.lww.com/pec-online...

Neurologic findings of nutritional vitamin B12 deficiency in children. web.a.ebscohost.com/abstrac...

Those are just from the first page of a Google Scholar search - scholar.google.co.uk/schola...

[Andypandy30 in reply to fbirder]

Thank you so much fbirder . Awful that the patient has to research

[Margaret-S]

Hi Andy. I'm so sorry to hear of the difficulties 're getting the treatment for your daughter. It is absolutely disgusting that doctors are so unwilling to look more into this horrible illness. As you will see, it makes me rather upset that we are left struggling. Unfortunately I'm not knowledgeable enough to help with this but fbirder has given you some good resources and I would agree that getting in touch with the PAS would be a good idea as they will support you. All the best to you and your daughter 🌞🌞

[Andypandy30 in reply to Margaret-S]

Thank you Margaret she did really well on loading doses but haven’t had much luck since and as he’s been doing intrinsic factor and levels check I couldn’t give it to her myself . Hope you are doing ok x

[Leils]

Does she have neuro symptoms?

ncbi.nlm.nih.gov/pmc/articl...

Sure there are others.

You could google functional B12 deficiency as there are papers showing symptoms even with higher blood levels

[Andypandy30 in reply to Leils]

Thank u Leils I explained about the functional b12 and he laughed at the notion of it so need some solid research about that .

[Andypandy30 in reply to Leils]

And yes she has neurological symptoms so this is my fight for treatment . Feel like he owes me also for not diagnosing me for 20 years but treating me for everything else . He seems very reticent to give it to children Im just not sure why and her dad is insisting she stays with this practice even though Iv moved due to problems Iv had in the past .