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Coagulation factor IX
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Suffering symptoms of b12 deficiency whilst not getting b12 injections
I'm suffering with extreme tiredness aches all over and pins and needles in fingers and toes. I'm going for b12 blood test next week full blood count and intrinsic factor. I'm really upset that I have to suffer these symptoms and I am worried that it will show a high reading as it has done before.
I'm suffering with extreme tiredness aches all over and pins and needles in fingers and toes. I'm going for b12 blood test next week full blood count and intrinsic factor. I'm really upset that I have to suffer these symptoms and I am worried that it will show a high reading as it has done before.
Fedup2020
in
Pernicious Anaemia Society
4 years ago
Supplements for endometriosis, detoxification and immune health
Hi ladies, I thought I’d post as I’ve been experiencing some positive change lately and wanted to share what I’ve been doing in the hope that it could bring relief to more people. I’ve read lots on supplements and alternative medicine and from reading about Ayurveda I kind of came across very good supplements
Hi ladies, I thought I’d post as I’ve been experiencing some positive change lately and wanted to share what I’ve been doing in the hope that it could bring relief to more people. I’ve read lots on supplements and alternative medicine and from reading about Ayurveda I kind of came across very good supplements
ScarletBlossom
in
Endometriosis UK
4 years ago
B12 or Prenious Anemia
I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ago(7 inj till nw then will have one every week for a month) Also got anti nuclear antibody tested, came in negative, which includes intrinsic factor anti body. I am a uric acid patient for more than 10 years so most of the
I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ago(7 inj till nw then will have one every week for a month) Also got anti nuclear antibody tested, came in negative, which includes intrinsic factor anti body. I am a uric acid patient for more than 10 years so most of the
kashifiq
in
Pernicious Anaemia Society
4 years ago
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Why We need B12. How it was discovered.
I have been doing some research and it all confirms what my Consultant told me 40 years ago. There were three men Minot, Whipple and Murphy who worked on this and were awarded the Nobel prize for discovering that Pernicious Anaemia was different from ordinary Anaemia. They used to give patients liver
I have been doing some research and it all confirms what my Consultant told me 40 years ago. There were three men Minot, Whipple and Murphy who worked on this and were awarded the Nobel prize for discovering that Pernicious Anaemia was different from ordinary Anaemia. They used to give patients liver
briarhillcat
in
Pernicious Anaemia Society
4 years ago
Association Between Dihydrotestosterone and Long-Term Risk for PCa Mortality
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
pjoshea13
in
Advanced Prostate Cancer
4 years ago
B12 injections stopped by GP.
My GP has stopped my B12 injections altogether and is saying it has nothing to do with the pandemic, that this was going to happen anyway. I was having injections every 8 weeks, due to pernicious anaemia. Intrinsic factor antibody test was positive when diagnosed 2 and a half years ago. Being told that
My GP has stopped my B12 injections altogether and is saying it has nothing to do with the pandemic, that this was going to happen anyway. I was having injections every 8 weeks, due to pernicious anaemia. Intrinsic factor antibody test was positive when diagnosed 2 and a half years ago. Being told that
amydemi
in
Pernicious Anaemia Society
4 years ago
Anti VEGF injection - cloudy vision
Hi all, I had my first anti VEGF injection yesterday and I was wondering if it is normal that your vision becomes blurry after the injection and how long it last for? Thanks in advance
Hi all, I had my first anti VEGF injection yesterday and I was wondering if it is normal that your vision becomes blurry after the injection and how long it last for? Thanks in advance
Dmes83
in
Macular Society
4 years ago
B12 injections
Hi, I take B12 injections for B12 deficiency symptoms which did go away after being given the shot. I am negative for intrinsic factor antibodies. I also take folic acid 5mg which has just been prescribed to me for folate deficiency. The folate was even deficient years before the B12 injections were
Hi, I take B12 injections for B12 deficiency symptoms which did go away after being given the shot. I am negative for intrinsic factor antibodies. I also take folic acid 5mg which has just been prescribed to me for folate deficiency. The folate was even deficient years before the B12 injections were
Lotuspink
in
Pernicious Anaemia Society
4 years ago
help please need some information
had a phone call from doc not my own doc informing me that no injections will be give i have autoimmune pernicious anemia plus few other heath problems .told me it not life threatening as i got told 20 y when. i got told that i can store b12 up to a year tried to tell him i do not have the intrinsic
had a phone call from doc not my own doc informing me that no injections will be give i have autoimmune pernicious anemia plus few other heath problems .told me it not life threatening as i got told 20 y when. i got told that i can store b12 up to a year tried to tell him i do not have the intrinsic
ayrshirelass13
in
Pernicious Anaemia Society
4 years ago
Issues with Methyl B12?
After a lot of physical and mental health (anxiety, panic) issues over the years I started to get my b12 checked monthly with my usual bloodwork. First one came in at 325 with sporadic sublingual use of cyano 2500 mcg. I stopped the supplement and ate heavily carnivore for five weeks and next test was
After a lot of physical and mental health (anxiety, panic) issues over the years I started to get my b12 checked monthly with my usual bloodwork. First one came in at 325 with sporadic sublingual use of cyano 2500 mcg. I stopped the supplement and ate heavily carnivore for five weeks and next test was
mustang1982
in
Pernicious Anaemia Society
4 years ago
Ivf.... Pcos... One tip a day... Tip 2...
When I'm on letrozole for 5months I couldn't conceive but when I did this butterfly pose I did conceived on the same month but ended up MC with undiagnosed thyroid issues. Try butterfly pose which helps open those blocked tubes with castor oil pack after doing this pose... Follow for one tip a day..
When I'm on letrozole for 5months I couldn't conceive but when I did this butterfly pose I did conceived on the same month but ended up MC with undiagnosed thyroid issues. Try butterfly pose which helps open those blocked tubes with castor oil pack after doing this pose... Follow for one tip a day..
Same0508
in
Fertility Network UK
4 years ago
Castor oil packs
Hi. Have anybody been using Castor oil compress to deal with their endometriosis? Did it work? Any tips? I have severe endo diagnosed 3 years ago after ttc for 2 years. First ivf was successful. We had a spontaneous pregnancy 10 weeks ago that ended up in missed miscarage. The good thing we've learnt
Hi. Have anybody been using Castor oil compress to deal with their endometriosis? Did it work? Any tips? I have severe endo diagnosed 3 years ago after ttc for 2 years. First ivf was successful. We had a spontaneous pregnancy 10 weeks ago that ended up in missed miscarage. The good thing we've learnt
Buisquits
in
Fertility Network UK
4 years ago
New to B12 deficiency - what next?
Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next and wondered if anyone has any suggestions. I am a 29 year old woman and I first noticed some pins and needles in my arms in Nov last year but it quickly went away. Then just over 2 months ago pins and needles started in both
Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next and wondered if anyone has any suggestions. I am a 29 year old woman and I first noticed some pins and needles in my arms in Nov last year but it quickly went away. Then just over 2 months ago pins and needles started in both
Alpaca24
in
Pernicious Anaemia Society
4 years ago
Ivf covid postponed trying naturally workout thyroid pcos weight loss help
So I'm trying naturally but think it's difficult. now that I'm staying home I started doing this kettlebell which burns calories very quickly I'm able to sleep soon and happily like never before hope everything goes well and my body get ready for FET. I'm also applying castor oil and hot water packs
So I'm trying naturally but think it's difficult. now that I'm staying home I started doing this kettlebell which burns calories very quickly I'm able to sleep soon and happily like never before hope everything goes well and my body get ready for FET. I'm also applying castor oil and hot water packs
Same0508
in
Fertility Network UK
4 years ago
Tips on how to get ready for IVF while waiting.
So the same as a lot of other people my IVF has been cancelled for the foreseeable...I’m trying to use the time to get my body ready for the IVF while we’re waiting. I’m taking the well women vitamin along with CoQ10, vitamin E and some fish oil. I’m also doing the castor oil packs after my period
So the same as a lot of other people my IVF has been cancelled for the foreseeable...I’m trying to use the time to get my body ready for the IVF while we’re waiting. I’m taking the well women vitamin along with CoQ10, vitamin E and some fish oil. I’m also doing the castor oil packs after my period
Joy35
in
Fertility Network UK
4 years ago
Help my elderly mum - please
Hi there, my mum (79) is B12 deficient (like me and my sister and auntie) and when tested had a really low count of 61 so they put her on loading doses and she has since had 2 lots of injections 3 months apart. She went back to the doctor as still feeling exhausted etc and asked for B12 more frequently
Hi there, my mum (79) is B12 deficient (like me and my sister and auntie) and when tested had a really low count of 61 so they put her on loading doses and she has since had 2 lots of injections 3 months apart. She went back to the doctor as still feeling exhausted etc and asked for B12 more frequently
Colb53
in
Pernicious Anaemia Society
4 years ago
Coronavirus: PAS Advice - PA Diagnosis Does Not Fulfil High Risk Criteria. Follow Current NHS and Government Guidance - Links Here
Hi All We are getting an increasing number of posts about coronavirus and questions about whether those with PA are in the high risk category. The PAS have issued the following advice... [i]As far as we know patients with the diagnosis PA do not fulfil the criteria of high risk. PA is an autoimmune disease
Hi All We are getting an increasing number of posts about coronavirus and questions about whether those with PA are in the high risk category. The PAS have issued the following advice... [i]As far as we know patients with the diagnosis PA do not fulfil the criteria of high risk. PA is an autoimmune disease
Foggyme
Administrator
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor etc
Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor negative. Mother had pernicious aenemia and developed dementia in her seventies. She didn't and nor did I realise that she needed to have regular shots by gp. I feel so guilty and wish I had known more about this awful disease
Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor negative. Mother had pernicious aenemia and developed dementia in her seventies. She didn't and nor did I realise that she needed to have regular shots by gp. I feel so guilty and wish I had known more about this awful disease
Soundwell1
in
Pernicious Anaemia Society
4 years ago
P.A or not?? Confused
Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b12 was 368 but had been taking child multi vits, any way roll on 3 months no multi v but folate 400m daily, bloods redone folate slightly higher 7.9 b12 had gone up to 427 no iron or ferritin tests (doctor said no need) intrinsic
Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b12 was 368 but had been taking child multi vits, any way roll on 3 months no multi v but folate 400m daily, bloods redone folate slightly higher 7.9 b12 had gone up to 427 no iron or ferritin tests (doctor said no need) intrinsic
shortytlc
in
Pernicious Anaemia Society
4 years ago
Finally, I’ve been diagnosed!
I had my follow up appointment yesterday with the Rheumatologist he had previously requested tests for ANA, Rheumatoid factor, CCP antibodies, Serum immunoglobulins, urine for Bence Jones protein, ESR and CPR, vitamin D level , Myeloma screen, X-rays on both hands and wrists and ultrasound scans of the
I had my follow up appointment yesterday with the Rheumatologist he had previously requested tests for ANA, Rheumatoid factor, CCP antibodies, Serum immunoglobulins, urine for Bence Jones protein, ESR and CPR, vitamin D level , Myeloma screen, X-rays on both hands and wrists and ultrasound scans of the
Leepeelee
in
PMRGCAuk
4 years ago
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