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Webinar: Pegcetacoplan for Dry AMD
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Iopidine after SLT
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
booktwo
in
Glaucoma UK
1 year ago
Help!! Mother's Day is coming I'm grieving already! I'm so scared to be alone.
Hello Community.. I am not looking forward to mother's Day my daughter is leaving town and choosing to be with my best friend who nurtured her when I was dysfunctional and depressed. . Just a brief history depression and anxiety interrupted my parenting of my daughter when she was 14 years old that was
Hello Community.. I am not looking forward to mother's Day my daughter is leaving town and choosing to be with my best friend who nurtured her when I was dysfunctional and depressed. . Just a brief history depression and anxiety interrupted my parenting of my daughter when she was 14 years old that was
Montana136
in
Anxiety and Depression Support
1 year ago
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huCART 19 -IL18 CLINICAL TRIAL
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
Hi, I just came across this video of Dr Svoboda from Penn Medicine discussing this new approch to CAR-T . This was from ASH 2022. Penn developed this off the shelf therapy in their labs and are the sponsor of the trial. I would welcome any thoughts or more info from our very knowledgeable members. I
steve5441
in
CLL Support
1 year ago
Swelling soft tissue alongside joint pain and inflammation - Acalabrutinib & Venetoclax Clinical Trial
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
Is or Has Anyone experienced extreme swelling of soft tissue normally in one area but sometimes two that lasts for approximately 5-7 days before moving to another area normally on peripheral parts?? In March 2020, commenced clinical drug trial ACE-CL-311 Amplify with 14 Cycles of Acalabrutinib and Venetoclax
bloodcancer
in
CLL Support
1 year ago
Concern about getting more Covid-19 vaccines.
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
Y5cc8j
in
CLL Support
1 year ago
Scared to death
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Paula1710
in
Glaucoma UK
1 year ago
200mg Sertraline holding me back!?
Looking for any advice/suggestions. I've been on sertraline since 2014 and it worked so well for me. However, over the last few years I've struggled and my sertraline was raised to 200mg, which I've been on since late 2018.I may be wrong but on this dose I don't particularly feel anything or don't have
Looking for any advice/suggestions. I've been on sertraline since 2014 and it worked so well for me. However, over the last few years I've struggled and my sertraline was raised to 200mg, which I've been on since late 2018.I may be wrong but on this dose I don't particularly feel anything or don't have
Demme
in
Anxiety and Depression Support
1 year ago
The human microbiome links to prostate cancer risk and treatment (Review)
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
New study below [1].
Abstract.
Prostate cancer (Pca) is the second most common cancer type worldwide. Microorganisms colonized in different body parts may affect the development/progression and treatment of Pca through direct or indirect interactions. The composition of microorganisms
pca2004
in
Fight Prostate Cancer
1 year ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
1 year ago
Tumor Lysis Syndrome: What ( CLL ) Patients Need to Know (Leukemia and Lymphoma Society podcast)
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
Many of us are aware of the risk of tumor lysis syndrome (TLS) when we commence treatment, particularly with venetoclax and that the purpose of the venetoclax ramp-up, is to reduce the risk of TLS occurring. TLS can also occur with other CLL treatments, especially when they are fast acting, rapidly killing
AussieNeil
Partner
in
CLL Support
1 year ago
Depression, fearful anxious
All my life I have felt left out, depressed, worried, anxious. Now I'm a senior but have never been diagnosed. I think I'm bipolar. This week I'm looking for a therapist and talk to my Dr. I believe in God, but I think he's forgotten about me. Now my dog has been sick for almost a week and I don't
All my life I have felt left out, depressed, worried, anxious. Now I'm a senior but have never been diagnosed. I think I'm bipolar. This week I'm looking for a therapist and talk to my Dr. I believe in God, but I think he's forgotten about me. Now my dog has been sick for almost a week and I don't
Sewingbuddy
in
Anxiety and Depression Support
1 year ago
Mixed up with recent diagnosis
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Emerneurosis
in
Glaucoma UK
1 year ago
Eye side effects on biologics for rheumatoid arthritis
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Cocobean1
in
NRAS
1 year ago
APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
1 year ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
1 year ago
Stuck
Hello all...wishing you peace and strength. I am struggling with so many emotions....anger,frustration,sadness,completely overwhelmed. I am stuck in this situation and although I know what I need to do I am unable to do anything. I can hardly stay out of bed. So now I'm losing physical strength. All
Hello all...wishing you peace and strength. I am struggling with so many emotions....anger,frustration,sadness,completely overwhelmed. I am stuck in this situation and although I know what I need to do I am unable to do anything. I can hardly stay out of bed. So now I'm losing physical strength. All
bridgfrigo3277668
in
Anxiety and Depression Support
1 year ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
1 year ago
I just began the Eclipse Clinical Trial and will be posting my experiences here. Please share yours too.
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
SViking
in
Advanced Prostate Cancer
1 year ago
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
[i]
Gut Microbiome Varies Hour to Hour, Month to Month - Intraindividual shifts over time may explain why drugs don't work the same in everyone, MedPage Today, by John Gever, Contributing Writer, May 4, 2023
[/i] While not specific to PCa, this contribution to the understanding of the complex nature
cujoe
in
Fight Prostate Cancer
1 year ago
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