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paradoxical dalfampridine/Ampyra effects?
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well š and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I havenāt had a relapse x the 1980s and after skipping 1
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well š and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I havenāt had a relapse x the 1980s and after skipping 1
erash
in
My MSAA Community
1 year ago
Guilty or not ???
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Today, after a few days of increasing pain in my neck, started on left side on Wednesday this morning also right side, I have taken extra 5mg Pred without consulting my GP who has previously indicated he was happy for me to manage my medication. For about 4 weeks now I have managed with 6mg Pred, so
Golf-1
in
PMRGCAuk
11 months ago
Post Ablation Diagnosis
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
I have been very fortunate and had my Afib ablation in Leicester in May. I had excellent treatment with very minimal side effects from the procedure and am back doing exercise and best of all, no episodes of Afib - so all very positive even though it is very early days. My follow up appointment is in
Nakesero
in
Atrial Fibrillation Support
11 months ago
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Glycine + N-acetylcysteine
That said, in two small
clinical
trials
by the same researchers, supplementation of glutathione precursors have yielded apparently astounding improvements in critical health markers in people who often have glutathione deficiency: older adults and HIV patients respectively (HIV being a model of accelerated
That said, in two small
clinical
trials
by the same researchers, supplementation of glutathione precursors have yielded apparently astounding improvements in critical health markers in people who often have glutathione deficiency: older adults and HIV patients respectively (HIV being a model of accelerated
Purple-Bike
in
Advanced Prostate Cancer
2 years ago
Afraid about the hyperthyroid results
Iām a very health anxious person and read it cause afib and lead to a stroke. Iām so scared.
Iām a very health anxious person and read it cause afib and lead to a stroke. Iām so scared.
Dshadzz07
in
Thyroid UK
11 months ago
Is THIS the MIRACLE we've all been waiting for??? WATCH THIS VIDEO!
There have been recent posts about Stanford University's development of a 'glove' that counteracts PD symptoms (and several other brain diseases!). This video was released in August, 2022. Watch this 26 minute video interview of one of the Stanford researchers, Peter Tass (M.D., MDS, neurosurgeon, plus
There have been recent posts about Stanford University's development of a 'glove' that counteracts PD symptoms (and several other brain diseases!). This video was released in August, 2022. Watch this 26 minute video interview of one of the Stanford researchers, Peter Tass (M.D., MDS, neurosurgeon, plus
PDWarrior1900
in
Cure Parkinson's
2 years ago
Update having seen rheumatologist today
That he is keen on
clinical
trials
that will help research generally - not sure how much how it affects me counts but benefit of the doubt and all that, I will give the trial a fair hearing.
That he is keen on
clinical
trials
that will help research generally - not sure how much how it affects me counts but benefit of the doubt and all that, I will give the trial a fair hearing.
marionofnorwich
in
PMRGCAuk
2 years ago
Sleep and Afib
As predicted my occasional episodes of A Fib which began in 2007 has recently become more of a problem. They are now presenting differently tho. My resting heart beat is about 60bpm and whilst in Afib they are now usually 60 to 75, only rising further when I am moving about. My question is can anyone
As predicted my occasional episodes of A Fib which began in 2007 has recently become more of a problem. They are now presenting differently tho. My resting heart beat is about 60bpm and whilst in Afib they are now usually 60 to 75, only rising further when I am moving about. My question is can anyone
Hidden
in
AF Association
11 months ago
AF - Sudden Increase To Every Night
I occasionally get a very slight twinge or spasm in my heart during some mild exertion - a gentle bike ride or lifting the hoover for example. This often kicks off an AF bout the following night. I had the twinge thing on a ride a couple of weeks ago which caused an 11 hour bout of AF, and since then
I occasionally get a very slight twinge or spasm in my heart during some mild exertion - a gentle bike ride or lifting the hoover for example. This often kicks off an AF bout the following night. I had the twinge thing on a ride a couple of weeks ago which caused an 11 hour bout of AF, and since then
Barny12
in
AF Association
11 months ago
REMINDER! Attend a live webinar to see the LATEST on PD therapies from the HEAD of UCLA's movement disorder clinic!
trials
going on RIGHT NOW!
trials
going on RIGHT NOW!
PDWarrior1900
in
Cure Parkinson's
2 years ago
Nubeqa failing onto C-94676 clinical trial
I just thought I would update my latest progression, scan findings, and plan of care established. You can view my profile but in a nutshell went to a free screening in the fall of 2012 but they never contacted me until early 2013 where 12 core biopsy revealed Stage IV M1b with extensive lymph node and
I just thought I would update my latest progression, scan findings, and plan of care established. You can view my profile but in a nutshell went to a free screening in the fall of 2012 but they never contacted me until early 2013 where 12 core biopsy revealed Stage IV M1b with extensive lymph node and
wagscure259
in
Advanced Prostate Cancer
2 years ago
Amiodarone experience of??
I am a 57 year old lady and I was diagnosed with Persistent AF in October of last year (A&E admittance at 190 BPM), was prescribed Edoxaban & Bisoprolol. Note - I have no underlying health issues of any kind and my AF is described as "cryptogenic". Cardioversion Nov 22, went into NSM for only 10
I am a 57 year old lady and I was diagnosed with Persistent AF in October of last year (A&E admittance at 190 BPM), was prescribed Edoxaban & Bisoprolol. Note - I have no underlying health issues of any kind and my AF is described as "cryptogenic". Cardioversion Nov 22, went into NSM for only 10
Tplongy
in
AF Association
11 months ago
Blood pressure warning
More fun and frolics. Before I went to pamper myself in Montenegro (swimming in the sea, lounging on the Cabana) I checked my blood pressure which I do regularly and noticed a little warning sign like a heart next to my diastolic. The literature said to seek advice so I asked him in doors and he casually
More fun and frolics. Before I went to pamper myself in Montenegro (swimming in the sea, lounging on the Cabana) I checked my blood pressure which I do regularly and noticed a little warning sign like a heart next to my diastolic. The literature said to seek advice so I asked him in doors and he casually
EdithWales
in
PMRGCAuk
11 months ago
Smart watch blood pressure function
I love the ECG function on my Galaxy watch and the blood pressure until I noticed the instruction not to use if on meds etc. I don't understand why it's safe for Afib but not for BP. Can anyone explain please?
I love the ECG function on my Galaxy watch and the blood pressure until I noticed the instruction not to use if on meds etc. I don't understand why it's safe for Afib but not for BP. Can anyone explain please?
Countrydweller2
in
AF Association
11 months ago
Anastrozole with BAT question
I have started searching the BAT
clinical
trials
, but it is a tedious process and I have not come up with any specifics yet. Of course one can measure estradiol for guidance.
I have started searching the BAT
clinical
trials
, but it is a tedious process and I have not come up with any specifics yet. Of course one can measure estradiol for guidance.
cigafred
in
Fight Prostate Cancer
2 years ago
Anastrozole with BAT question
I have started searching the BAT
clinical
trials
, but it is a tedious process and I have not come up with any specifics yet. Of course one can measure estradiol for guidance.
I have started searching the BAT
clinical
trials
, but it is a tedious process and I have not come up with any specifics yet. Of course one can measure estradiol for guidance.
cigafred
in
Advanced Prostate Cancer
2 years ago
T-CELLs Collected
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag
casanova
in
CLL Support
1 year ago
afib related to drop in blood pressure
last week I had an extreme drop in blood pressure 87/50 and was unable to stand up or even sit up. Was taken to the hospital. Diagnosed with pneumonia and told that infection can sometimes cause drop in blood pressure particularly because of my a fib. It seems that because the lungs are so closely
last week I had an extreme drop in blood pressure 87/50 and was unable to stand up or even sit up. Was taken to the hospital. Diagnosed with pneumonia and told that infection can sometimes cause drop in blood pressure particularly because of my a fib. It seems that because the lungs are so closely
Tux18
in
Atrial Fibrillation Support
11 months ago
Pregnant and just had 2nd pyschosis
Dear All, Firstly I want to say how sorry I am for some of my posts a few weeks ago, I had another psychotic episode in which I found out I was pregnant and thought the baby was from God and I was helping save the world. Anyway, I feel like I am living in a nightmare. I have three children and I now
Dear All, Firstly I want to say how sorry I am for some of my posts a few weeks ago, I had another psychotic episode in which I found out I was pregnant and thought the baby was from God and I was helping save the world. Anyway, I feel like I am living in a nightmare. I have three children and I now
Control1234
in
Action on Postpartum Psychosis
1 year ago
rant to feel better?
I have been thinking a lot lately about the different path my life could have taken. Iām 32 and I have a 16 year old son. A 21 year old adult man got me pregnant when I was 15. My religious parents never spoke a single word to me about safe sex, and decided without me that I would have this baby.
I have been thinking a lot lately about the different path my life could have taken. Iām 32 and I have a 16 year old son. A 21 year old adult man got me pregnant when I was 15. My religious parents never spoke a single word to me about safe sex, and decided without me that I would have this baby.
Cuprea
in
Anxiety and Depression Support
1 year ago
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