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Experiences with
Chronic kidney disease (CKD)
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So fed up
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
I keep getting a pain in the bottom of my chest / top of stomach area. I ended up in a&e last week after 2 hours of pain. I had an ecg, blood tests, chest xray, ct scan & an ultrasound on my stomach, after initial worries everything seems fine apart from 1 dr wanting me to have an echocardiogram & 24
Gilly61
in
Anxiety Support
5 months ago
CKD + Asthma Medication
Has anyone found asthma medication that is kidney-safe? I just realized that Breo Elipta and Pulmicort are not. Anyone have suggestions that I can study?
Has anyone found asthma medication that is kidney-safe? I just realized that Breo Elipta and Pulmicort are not. Anyone have suggestions that I can study?
mmckinzie
in
Kidney Disease
1 year ago
RLS back after a week
Hi .. my last post said I hadn’t had rls for a week , I started taking iron and magnesium.. the last two nights it’s back with a vengeance .. I’m at work now doing a sleep in , or a non sleep as the case may be , been awake every half hour since 9.30pm with severe rls again , mind racing .. is there
Hi .. my last post said I hadn’t had rls for a week , I started taking iron and magnesium.. the last two nights it’s back with a vengeance .. I’m at work now doing a sleep in , or a non sleep as the case may be , been awake every half hour since 9.30pm with severe rls again , mind racing .. is there
Ronniebongo
in
Restless Legs Syndrome
8 months ago
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Cholesterol and Statins
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
I am looking for some advice around taking a Statin for borderline high Cholesterol. I recently had a blood test for Cholesterol and the headline figures were:- Total Cholesterol 6.6 HDL 1.27 Triglycerides 1.86 LDL 4.5 10 year Cardiovascular risk score 14.6% I started taking a Statin as advised
Hightower62
in
NRAS
6 months ago
Echcardio report finally.....after 3 months wait!
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Hi all. Some of my AF friends on here may recall I had an echocardiogram way back on 14th August, as i was getting a bit SOB on stairs and slopes. I finally got the report on this Friday, 24th NOVEMBER....I almost can't believe I have had to wait THAT long. Anyway there has indeed been a change
Wightbaby
in
AF Association
6 months ago
Long Covid with AF.
I am 64yrs old have AF,
CKD
and Asthma. I have now been off work now for 3 months. I struggled before covid with shortness of breath etc but since covid it has played havoc with my heart and struggled with getting around.
I am 64yrs old have AF,
CKD
and Asthma. I have now been off work now for 3 months. I struggled before covid with shortness of breath etc but since covid it has played havoc with my heart and struggled with getting around.
Bowcat
in
AF Association
1 year ago
Looking for my Miracle
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
I've had persistent AFib for decades. Cardiologist and EP suggested ablation, watchman, every pill and treatment out there but I never felt they were the right thing to do, other than taking many meds, Altace, Toprol XL, Amiodarone, etc. Most recently I had to go onto Xarelto, 'tho I resisted it for
TheJazzSinger132
in
AF Association
6 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
6 months ago
Referral
Hi all, I've just found out that I have
CKD
and have had it since 2017 and GP never told me. I'm stage 3. Should my GP be referring me to a specialist? Many thanks
Hi all, I've just found out that I have
CKD
and have had it since 2017 and GP never told me. I'm stage 3. Should my GP be referring me to a specialist? Many thanks
Curry123
in
Kidney Disease
1 year ago
TBill
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
TBill
in
Advanced Prostate Cancer
8 months ago
I'm loosing the will to carry on!!!
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
DizzyD
in
Atrial Fibrillation Support
6 months ago
Dry Fasting
I dont have any symptoms specific to
CKD
yet
I dont have any symptoms specific to
CKD
yet
milo_miller
in
Kidney Disease
1 year ago
Biotin
Hi please can you tell me how much biotin would affect blood test results. I am waiting for a doctors appointment , they have told me it will be between 2 and 4 weeks, but could be sooner. I am currently taking B complex supplement which contains biotin. I know the guideline is don't take for 7 days.
Hi please can you tell me how much biotin would affect blood test results. I am waiting for a doctors appointment , they have told me it will be between 2 and 4 weeks, but could be sooner. I am currently taking B complex supplement which contains biotin. I know the guideline is don't take for 7 days.
Shellian
in
Thyroid UK
6 months ago
being redundant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
I have an amazing ability to pick relevant podcasts while driving. Just had my blood work done in preparation of starting Pluvicto and not being able to choose wisely while driving I picked this podcast which i have heard before and have even advocated on this forum before. Dr Chetty is so brilliant
spencoid2
in
Advanced Prostate Cancer
6 months ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
8 months ago
flecainide question
Thank you everyone for the goodwill and empathy of this community. I’ve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a ‘pill in the pocket’ intervention, it’s not
Thank you everyone for the goodwill and empathy of this community. I’ve had two ablations (cryoablation, and RF). After a year living symptom free, AF episodes have recurred. However, following , two reversions to NSR via Flecainide and Bisoprolol as a ‘pill in the pocket’ intervention, it’s not
Waverto
in
AF Association
6 months ago
CKD on PD DIALYSIS
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
I'm insulin dependant and i am on pd DIALYSIS. My kidney had failed completely. I was on hemo dialysis from December to July last year. It was not good and didn't work at all for me not if course it was what I had to do cause if my kidney failure. From July to current doing PD DIALYSIS and it is so much
RHOC
in
Kidney Disease
1 year ago
Advice please on paroxysmal afib
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Hi all, I was diagnosed with lone AF in 2020. I think most of you are familiar with my story.My episodes (very symptomatic) were about every 4 months lasting up to 36 hours before reverting back to NSR. I have started to have them more frequently so went for an ablation which was scheduled for this week
Karendeena
in
AF Association
6 months ago
Palpitations worse after ablation
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Good evening everyone, I’m really struggling after my catheter ablation 10 days ago. The palpitations and ectopics I’m experiencing are awful. So different to the palpitations I was having before my ablation. They are very erratic. I have Dilated Cardiomyopathy and AVNRT. I know it’s early days
Carolx
in
AF Association
6 months ago
Elevated Cholesterol
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Hello, Just had my cholesterol results back and they are quite elevated. Just wondering whether anyone else has elevated Cholesterol and just taking Aspirin watch and wait? Fortunately my Triglycerides are good. I tried Atorvastatin in 2018 but had to stop after 6m due to severe muscle aches. No
Carol0925
in
MPN Voice
6 months ago
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