Moan post off topic

[Vonnie10]

I went on ckd page about ibuprofen my ckd is 3b wanted some info just had a massive flair recently was told by cns at clinic not to take any more anti inflammatory last year from my bloods but spoke to nurse at clinic on momday she said a few short term won't hurt..couldn't even do the basic thing if you know what i mean ...well my post didn't go down well at all.... one guy as said toc and steriod is posion and to get a real doctor 🤣 and I'm forcing my rhem doc to give me toc and a steriod shot & they dont really want to give me it im making them some odd balls knocking around .

[medway-lady]

Unless you have seen a nephrologist it is very unwise to Google CKD you’ll-die of fright and a lot of stuff is rubbish. CKD at 3b is nearly normal and no problem you won’t even see a Nephrologist until low 4 and that may be many years away. Kidneys age like the rest of our organs and just a few medications are adjusted by doseage and you should really take professional advice not tell them about Google information as the doctors do everything to protect kidney function. CKD is actually not diagnosed anyway just by function but as a long term trend. Please try not to worry and I don’t know what toc is but l’ve had biopsies etc and my function is very low 4 and it really is managed by the doctors really well and the medications are adjusted. Remember a lot of RA meds cross over for transplant patients so the RA consultant will understand your situation.

I’d jut add that the internet can be a dangerous place and there is a lot of scary information about CKD a lot of which is simply not true. All doctors will be aware of it and potential risks of medications but it is also true that otc stuff can do damage as well. Please listen to your medical professionals as it seems to you’ve even given very good advice and not to anyone on line. Kidneys are monitored regularly and one of the best things to do it drink at least 8 glasses of water a day. At a GFR 8 I ( I had a AKI) I started AZA and a biological was later introduced it really wasn’t an issue. Other stuff was but the RA was controllled and has remained so.

[Vonnie10 in reply to medway-lady]

I know if consultant and gp are happy im.also happy but this guy on ckd page on here was so rude and harsh some people go too far. Irs toclizumab I have fort RD

[medway-lady in reply to Vonnie10]

Don’t they just ! Do not be frightened by posts on some kidney websites as some are hidden adds to sell diets. Just remember in the UK we are monitored and they’d call you in if anything to worry about. The UK has really great kidney care and a lot of people don’t know their function because they are healthy or think they are! We get monitored and you’d be referred if anything to fret about and all our doctors have on their computers indicators when to adjust for low function , normally I think that’s when it falls below 30 but at that point you can’t have some stuff anyway like contrast dyes. And function declines with age anyway so we all as we get older have some degree of CKD . Please try not to worry and if at all still concerned contact your local Kidney Patients group especially if you’ve got PKD etc. The worst websites are American and I avoid them now as so much tosh, stick to the doctors advice and you’ll be fine. Best bits of advice I was ever given was to never Google and and drink of water to flush toxins out. It works. Lol xxxx

[Vonnie10 in reply to medway-lady]

ML I know I'm.not worried my team aren't worried I have regular bloods done infact i have them done double by my gp and hospital separately my gp and hospital are not on the same computer system im at Liverpool hospital for my RD but I live outside of Liverpool. I know people walk around never know they have it it's comes with age also. They guy was from the USA 🤣😅 so over the top but a but nasty with it. Nutter . X

[medway-lady in reply to Vonnie10]

There are a few nutters alright. Xxx

[TaylorPlayer]

great DVICE🌹

[TaylorPlayer]

Oops 🙄great advice