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Experiences with
Chronic kidney disease (CKD)
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Cancelled Again
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Carnationmac
in
AF Association
1 year ago
Another anxiety attack 😖
Ugh!!! It is sad when you have been med free and panic free so long that it absolutely turns your world upside down when panic rears it's ugly head.I had a real doozy of a panic attack Friday night. All the old symptoms, but scarier because I had forgotten how scary it really is. I pushed through it,
Ugh!!! It is sad when you have been med free and panic free so long that it absolutely turns your world upside down when panic rears it's ugly head.I had a real doozy of a panic attack Friday night. All the old symptoms, but scarier because I had forgotten how scary it really is. I pushed through it,
Rosiemarie82
in
Anxiety and Depression Support
1 year ago
Is this PMR?
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Evie1977
in
PMRGCAuk
1 year ago
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Hi received from HealthUnlocked the article about CBD & Magnesium cream. I read the trustpilot comments and thought - sounds good to me.
So ordered a tube. Fine - then I thought - that was silly as didn't check whether it interferes with the WARFARIN I have to take. Yes, you've guessed it - its a GREAT BIG NO-NO - can't have CBD if on warfarin. Talk about brain fog took over. Anyway just want to let others know BEFORE they buy (
So ordered a tube. Fine - then I thought - that was silly as didn't check whether it interferes with the WARFARIN I have to take. Yes, you've guessed it - its a GREAT BIG NO-NO - can't have CBD if on warfarin. Talk about brain fog took over. Anyway just want to let others know BEFORE they buy (
fibrojan
in
Fibromyalgia Action UK
1 year ago
Pain control with PLMD
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
I take 100 mg Lyrica for PLMD, the lowest possible dosage as I never have been able to shake the daytime sedation. Now I have some kind of pinched nerve that has been causing chronic pain. Tylenol is not sufficient (I am going to try a lidocaine patch today for the first time and hope that will help
wantokporo
in
Restless Legs Syndrome
1 year ago
Short episode five months after ablation.
Do hope everyone is having a good day and has been able to enjoy this beautiful weather. I have PAF and had my first ablation 5 months ago. All was fine through recovery, some discomfort, some ectopics and loads of tiredness. Two and a half weeks ago the report was good in my post ablation consultation
Do hope everyone is having a good day and has been able to enjoy this beautiful weather. I have PAF and had my first ablation 5 months ago. All was fine through recovery, some discomfort, some ectopics and loads of tiredness. Two and a half weeks ago the report was good in my post ablation consultation
Leggylady
in
Atrial Fibrillation Support
1 year ago
Bypass question
My bypass(quad) has been 5 and half yrs ago and stents since.My valve also regurgitates. i find every morning since i wake up with anxiety and have mentioned it to doc...no help there. it has been spontanious upon waking.Almost every day. It is true the trauma of the bypass is with me but since covid
My bypass(quad) has been 5 and half yrs ago and stents since.My valve also regurgitates. i find every morning since i wake up with anxiety and have mentioned it to doc...no help there. it has been spontanious upon waking.Almost every day. It is true the trauma of the bypass is with me but since covid
jackiesj
in
Sudden Cardiac Arrest & Heart Attack
1 year ago
pbc should I eat carbs before going to sleep.
Hi, I’m 55 and have had pbc for over 15 years and now also have stage 4
ckd
. I was wondering if anyone else has been told by a dietician that you should be eating 50grams of carbs, before going to sleep so you don’t starve the liver. If you have what do you eat? Thanks
Hi, I’m 55 and have had pbc for over 15 years and now also have stage 4
ckd
. I was wondering if anyone else has been told by a dietician that you should be eating 50grams of carbs, before going to sleep so you don’t starve the liver. If you have what do you eat? Thanks
julieab
in
PBC Foundation
2 years ago
Digoxin fears
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Ssuegos
in
AF Association
1 year ago
CKD stage 5 fyi water warning
This week I received one of the new medical newsletters on what is not recommended for renal patients. It said for stage 5 renal patients to avoid drinking excess water, as it is damaging to the cardiovascular system. I mention this because so many of you say drink water, water water! If you are stage
This week I received one of the new medical newsletters on what is not recommended for renal patients. It said for stage 5 renal patients to avoid drinking excess water, as it is damaging to the cardiovascular system. I mention this because so many of you say drink water, water water! If you are stage
chicablue
in
Kidney Disease
2 years ago
Continuing Healthcare Farce
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
Stormtrooper4
in
PSP Association
1 year ago
Guanfacine and N-acetylcysteine (NAC-600 mg)
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood pressure, and N-acetylcysteine (NAC-600 mg), which I gather is an over-the-counter supplement. Has anyone here had any experience with either
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Flecainide stopped working
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
I have been on Flecainide for years & my AF well controlled. Now it has started to cause other arrhythmias so I have to stop it This happened a few years ago & as soon as it was stopped my AF occurred regularly & made me feel very unwell I was able then to restart it but this time it’s not possible
Koladog
in
Atrial Fibrillation Support
1 year ago
my last hope.
hi guys, I have wrote on her before some of you might know my background however if you don’t I’m really hoping someone will understand or try to help, I am 25 now and at the age of 15/16 I was really unwell and had stomach pains and sickness everyday, I was sent for numerous tests which were all
hi guys, I have wrote on her before some of you might know my background however if you don’t I’m really hoping someone will understand or try to help, I am 25 now and at the age of 15/16 I was really unwell and had stomach pains and sickness everyday, I was sent for numerous tests which were all
Ashleighjad2
in
IBS Network
1 year ago
Orthodontics Appointment cancelled for the 4th time
Had a text earlier from the hospital again cancelling my orthodontics appointment again for 4th time, I have avascular necrosis of both hip's and the pain seems to be getting worse each day also I have an inguinal hernia on the worst hip side adding insult to injury the pain is becoming unbearable it
Had a text earlier from the hospital again cancelling my orthodontics appointment again for 4th time, I have avascular necrosis of both hip's and the pain seems to be getting worse each day also I have an inguinal hernia on the worst hip side adding insult to injury the pain is becoming unbearable it
Hidden
in
MPN Voice
1 year ago
ET diagnosis
Hi, just wondering if anyone has any advice for me I have been diagnosed with ET last june with a platelet count of 987 put on low dose aspirin 75 mg.Since then my platlets have jumped about they went to 1280 back to 990 and have risen constantly to 1420 now no major symptoms, I am triple negative Has
Hi, just wondering if anyone has any advice for me I have been diagnosed with ET last june with a platelet count of 987 put on low dose aspirin 75 mg.Since then my platlets have jumped about they went to 1280 back to 990 and have risen constantly to 1420 now no major symptoms, I am triple negative Has
Mike1974
in
MPN Voice
1 year ago
MRI contrast
Is the contrast used in MRI a risk for people with
CKD
?
Is the contrast used in MRI a risk for people with
CKD
?
MsKit
in
Kidney Disease
2 years ago
Vasculitis and rheumatoid arthritis
Hi,Just a quick question, is anybody seen by vasculitis clinic and rheumatology, or just one or the other. I am only seen by rheumatology but at first diagnosis I was seen in the vasculitis clinic . I have poly granulamotis along with rheumatoid arthritis, but I am getting the feeling when I go to
Hi,Just a quick question, is anybody seen by vasculitis clinic and rheumatology, or just one or the other. I am only seen by rheumatology but at first diagnosis I was seen in the vasculitis clinic . I have poly granulamotis along with rheumatoid arthritis, but I am getting the feeling when I go to
tina73
in
Vasculitis UK
1 year ago
Cardioversion - preparation and aftercare - advice please!
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Hi everyone, and hope a day of sunshine has raised spirits!I've been placed on a waiting list for cardioversion by my EP which I'm really happy about. I was diagnosed with AF last September or October (got a cat on my knee so can't get up to check the date!) and this rapidly progressed to persistent.
Rainfern
in
AF Association
1 year ago
Peginterferon side effects!
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Fairbank
in
MPN Voice
1 year ago
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