advice or suggestions

[judybrowneyes]

Hi lovely people For the past 10 days I keep going in and out of Af during course of the day very symptomatic palpitations exhaustion . Now And then breathless On exertion and sometimes dizzy Spells lasting a less then a minute pulse rate dropping in seconds from 85 down to low 40’s feeling like I am falling. Very weird . Resting pulse since my ablations mid 40’s ’s I am on. 300 mg flexanide pd for the Arrythmia and covered by Rivaroxaban , thyroxin. Statin iron tablet etc

I have emailed my consultants secretary and Arrythmia nurse. As I am nit due for appointment till July .. but as near Easter l Have not had reply as yet Reason for Posting this is a new pattern of flipping in and out of AF. A number of times during the day and the rapid drop in pulse.. any suggestions or similar experience ?

UPDATE I heard back from the wonderful Arrythmia nurse at Bart’s she agrees my Kardia reading are all over the place so arranging for 12 lead ecg on Tuesday and she will discuss my case with my EP on Wednesday .. so hopefully some plan going fw Thanks again to those who responded x

[mjames1]

If not already doing it, you might want to document these episodes with a home EKG device like Kardia or Apple Watch, and then email the ekg's to your ep. It could be afib or another arrhythmia mimicking afib.

It's hard to tell how much distress you're in, but if in doubt you can always go to tge A&E for observation and possible treatment, as your medical team seems currently nonresponsive.

Jim

[judybrowneyes in reply to mjames1]

Hi Jim thank you for your reply . I should have mentioned I do have a Kardia . Device and have sent my readings since beginning of March to date so they have an overall picture . I rather avoid a and e . But would go if I had pain or pulse remember above 110 bpm .. I will try to get hold of Bart’s hospital today .on the phone … I think I am at the stage where pace and ablate seems more likely treatment ..

[secondtry]

I would make an early private appointment with your trusted cardiologist to review all your symptoms (keep a diary until the appointment) and discuss drug changes plus other options.

Its expensive(around £250) but given your QOL should be worthwhile.

[judybrowneyes in reply to secondtry]

thanks if I don’t get a response will certainly explore that option . These week surrounding Easter etc always a challenge to contact people .

[Cavalierrubie]

Hi judybrowneyes. If you are worried or feel worse l would definitely go to AE. Last time l was there l was given a 12 lead ecg. It is scary when we have different symptoms.

[judybrowneyes in reply to Cavalierrubie]

Hi Cavalierrubie,

Thanks for your reply for sure if I start to feel worse I will do that .. the thought of hours wait in a and e is enough to put me off lol but sometimes a necessary evil .. I feel fortunate to have something lined up for Tuesday just means have to try get through the bank holiday weekend … also worried in a and e that is not my heart hospital don’t want them messing with my meds etc .. Hope you are doing ok ?

[DawnTX]

I am so happy you got a response fairly fast and they are actually moving on it better to be told it’s nothing or something else. Also keep an eye on things you’re eating, etc. or doing make a little diary before you go. My doctor doesn’t EKG every time I see him. I also get a pacemaker check everything remotely once a month and will be getting a live in June I think it is things got thrown off because I have new doctors.

it might just be a matter of readjusting your meds in the beginning. It seemed like that was happening a lot even a month or so ago Cardiologist doubled my statin and metoprolol and losartan. I should say, former this was pretty much the last straw with him. Anyway, I saw him three weeks after and he put everything back the way it was. One reason was I had taken a bad fall and there’s a good possibility. I had actually passed out because of low blood pressure. there was nothing wrong with my blood pressure when he doubled it. I was feeling lousy all over trouble breathing very air, hungry, and chest pain. So that was his reply in person didn’t even listen to my heart. It just shows you can’t fix stupid and there is stupid every country I only went to him because he was close to home. Most doctors are almost 2 hours away most of the time I was dealing with my EP until he left in October for better I really know the until he can’t seem to get another EP since October and I am beginning to see why. My former ONE is now director of a large university heart hospital in North Florida. I have been blessed. I met my new one. I’ve picked out the other day. I found another diamond of a doctor. In fact they know we get lucky and blessed. I don’t know why, but I have been.

some people are so lucky that they’re ablations I had months one for a year. It is not that they wear out and stop working. It is another spot that acts up. I’ll bet your ablation is just fine. It just has a new friend with it somewhere in there. I’m beginning to understand the pulse field type and I am so thankful for my pacemaker to no longer keep going through that over and over again. I and seem to be constant in the UK. My EP would not even consider another one. The third one put so much scar tissue on me. He said the odds of getting the right spot is difficult at best he was not the favorite child at the other hospital lol he said they want them to keep doing those because they are not very risky and they make money. He wants quality of life for us

best of luck I hope it’s just your meds or something else. Simple whatever it is it’s gonna be OK. You know look at all of us out here in this site. We are all here that tells you something.

[judybrowneyes in reply to DawnTX]

Thanks Dawn , over the years thry have tried many different meds and 3 ablations later think I am at the stage where pacemaker is likely to be path forward . I am more open to that now . Wish you well in your AF journey it certainly had its twists wnd turns !