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Cinchocaine / Prednisolone hexanoate
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Possible sinus problems.
Hi everyone - just wanting some feedback please. Diagnosed with GCA May 21 and being treated with prednisone and am trying hard to taper and presently on 8mg and my rheumatologist has added Methotrexate to help the tapering. Also treated for supra ventricular tachycardia. At present I am struggling
Hi everyone - just wanting some feedback please. Diagnosed with GCA May 21 and being treated with prednisone and am trying hard to taper and presently on 8mg and my rheumatologist has added Methotrexate to help the tapering. Also treated for supra ventricular tachycardia. At present I am struggling
Hoopy1950
in
PMRGCAuk
10 months ago
Sore Throat
I’m currently down to 4mg of prednisolone and have a constant sore throat and dry mouth during the night . Is this normal ? What can I do to relieve the soreness and will it eventually improve as I reduce my steroids?
I’m currently down to 4mg of prednisolone and have a constant sore throat and dry mouth during the night . Is this normal ? What can I do to relieve the soreness and will it eventually improve as I reduce my steroids?
Conwy_wales
in
PMRGCAuk
1 year ago
ART Intermittent HT, Quality of Life, and Testosterone Recovery
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
RMontana
in
Active Surveillance - Prostate Cancer
10 months ago
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What next? Is my man a candidate for Pluvicto?
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
TahoeJ
in
Advanced Prostate Cancer
10 months ago
painful thighs and buttocks
My initial symptoms and PMR pain were all in my shoulders, neck, hands, and wrists. I was diagnosed in Dec 2019. Tapered off prednisone too fast (now I know) in 14 months; and it came back one month later after my second COVID (Moderna) vaccine. Just shoulders and arms, but made them very painful
My initial symptoms and PMR pain were all in my shoulders, neck, hands, and wrists. I was diagnosed in Dec 2019. Tapered off prednisone too fast (now I know) in 14 months; and it came back one month later after my second COVID (Moderna) vaccine. Just shoulders and arms, but made them very painful
PUMC
in
PMRGCAuk
10 months ago
Fecal Microbiota Transplantation (FMT) For PD And Much Much More
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
chartist
in
Cure Parkinson's
1 year ago
Update on 8/4 post from alperk
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated, 35 grays in 5 fractions. PSA crept back up to 4.2 on 9/6 and scan showed again only one active site in nearly the same location
alperk
in
Advanced Prostate Cancer
10 months ago
Has Anyone had a CGA CHROMOGRANIN A, EIA Test ? It’s tumor marker test.
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
My result, only fighting a year, This is my result from the Chromogranin Test. My Result is 117 ng/mL Standard range is 0 - 103 ng/mL My Chromogranin A result is 117 ng/mL I Had a prostatectomy, chemotherapy with docetaxel, Firmagon, Zytiga, Prednisone plus Taltz for my sever Plaque Psoriasis,
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
10 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
prolia and Actemra.
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Charkha
in
PMRGCAuk
10 months ago
1mg prednisolone….. 0mg
hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . Now I am taking just 1mg a few times a week… when can I stop completely and how will I know if my adrenal glands are coping please?
hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . Now I am taking just 1mg a few times a week… when can I stop completely and how will I know if my adrenal glands are coping please?
Tayzee
in
PMRGCAuk
1 year ago
low Immunoglobulins
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Davidcara
in
CLL Support
10 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
10 months ago
Struggling to accept/deal with pain and decreased range of movement
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
wakinguptolife
in
PMRGCAuk
10 months ago
tapering problem
hi, I am hoping for some advice I have PMR and been on prednisolone for approx 18 months. After a few ups and downs with tapering from15 gms originally, I had got down to 10 , then after 4 weeks to 9, another 4 weeks to 8, then again four weeks to 7 but have been in so much pain since reducing to
hi, I am hoping for some advice I have PMR and been on prednisolone for approx 18 months. After a few ups and downs with tapering from15 gms originally, I had got down to 10 , then after 4 weeks to 9, another 4 weeks to 8, then again four weeks to 7 but have been in so much pain since reducing to
Sukian
in
PMRGCAuk
1 year ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
10 months ago
facial hair
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Holycow2
in
PMRGCAuk
10 months ago
delaying Prednisolone by a few hours
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
Dolcelatte
in
PMRGCAuk
1 year ago
Stuck in the bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Merrrm
in
Fibromyalgia Action UK
1 year ago
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