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Cinchocaine / Prednisolone hexanoate
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Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Selbourn
in
Vasculitis UK
5 months ago
GCA Duration Expectations
Hi All, I was diagnosed with GCA last October. Presently down to 12.5 mg. prednisone and Actemra and feeling quite well. Is it reasonable to hope that one could recover without ever flaring again? Is it unreasonable to hope to go back to life as I once knew it? Or will I always have to be extra careful
Hi All, I was diagnosed with GCA last October. Presently down to 12.5 mg. prednisone and Actemra and feeling quite well. Is it reasonable to hope that one could recover without ever flaring again? Is it unreasonable to hope to go back to life as I once knew it? Or will I always have to be extra careful
Lenore58
in
PMRGCAuk
5 months ago
Update on worsening headaches and scalp tenderness
Ten days ago, I increased my Prednisone to 65 mg. for scalp tenderness, jaw claudication for 24 hours, and headaches.My scalp tenderness, and ear pain has now diminished by about 50%. The headaches sometimes pounding, may be 30% less, and I often run a temp of 100.6. I am exercising less, and resting
Ten days ago, I increased my Prednisone to 65 mg. for scalp tenderness, jaw claudication for 24 hours, and headaches.My scalp tenderness, and ear pain has now diminished by about 50%. The headaches sometimes pounding, may be 30% less, and I often run a temp of 100.6. I am exercising less, and resting
Bummed24
in
PMRGCAuk
5 months ago
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Looks like here we go again...to treatment.
I have not been on this site a lot lately (apologies) but have found it very useful, knowledgeable and kind. In 2020, after 10 years, my CLL became active, I also was diagnosed with Hemolytic Anemia, spent 9 days in the hospital, after being admitted in serious condition. I was treated with a combination
I have not been on this site a lot lately (apologies) but have found it very useful, knowledgeable and kind. In 2020, after 10 years, my CLL became active, I also was diagnosed with Hemolytic Anemia, spent 9 days in the hospital, after being admitted in serious condition. I was treated with a combination
Dodger47
in
CLL Support
5 months ago
Cutting a 1mg tablet into 4?
Having got down to 10mg I’ve been tapering prednisolone by approximately 0.5mg a month. I’m now at 1mg and looking to reduce further in a couple of weeks but a little nervous about a 50% reduction to 0.5mg. Has anyone successfully cut plain 1mg tablets into 4 to produce a 0.75mg dose or is there a better
Having got down to 10mg I’ve been tapering prednisolone by approximately 0.5mg a month. I’m now at 1mg and looking to reduce further in a couple of weeks but a little nervous about a 50% reduction to 0.5mg. Has anyone successfully cut plain 1mg tablets into 4 to produce a 0.75mg dose or is there a better
Dorothy61
in
PMRGCAuk
8 months ago
Is This Normal??
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
TommyCarz2
in
Advanced Prostate Cancer
5 months ago
Methotrexate sensitivity
I found out this morning that I seem to have a sensitivity to Methotrexate. My liver function test result is 60 and after a break from the drug, it was 23. This has happened twice before. The rheumatology nurse says to miss my dose on Thursday and she will get back to me with a plan after speaking to
I found out this morning that I seem to have a sensitivity to Methotrexate. My liver function test result is 60 and after a break from the drug, it was 23. This has happened twice before. The rheumatology nurse says to miss my dose on Thursday and she will get back to me with a plan after speaking to
Noni71
in
PMRGCAuk
8 months ago
Alternate day prednisolone.
I have been on Prednisolone since June 2018. I have gradually reduced the dose and got down successfully to 4mg/day. I have reduced further using DSNS but have always relapsed after a couple of weeks. Alternate day prednisolone is used in some situations in Paediatrics. It is thought to reduce adrenal
I have been on Prednisolone since June 2018. I have gradually reduced the dose and got down successfully to 4mg/day. I have reduced further using DSNS but have always relapsed after a couple of weeks. Alternate day prednisolone is used in some situations in Paediatrics. It is thought to reduce adrenal
Whippet1960
in
PMRGCAuk
8 months ago
question re PMR and blood work
I have just been started back on 20 Mg of Prednisone after a major flare I am having blood work today Will this affect my CRP and SED rate . Due to the additional Pred I feel like very well…of course ( Devil Drug that I love)
I have just been started back on 20 Mg of Prednisone after a major flare I am having blood work today Will this affect my CRP and SED rate . Due to the additional Pred I feel like very well…of course ( Devil Drug that I love)
Darcy2000
in
PMRGCAuk
5 months ago
What would you do?
Hello, I haven't checked in for a very long time because everything had been going ok.I've been on Prednisolone for 3 years this Christmas after getting diagnosed with PMR back in October 2020. Initial advised taper was too sharp, I flared very quickly and painfully. But, after joining this forum back
Hello, I haven't checked in for a very long time because everything had been going ok.I've been on Prednisolone for 3 years this Christmas after getting diagnosed with PMR back in October 2020. Initial advised taper was too sharp, I flared very quickly and painfully. But, after joining this forum back
PMArrrrgh
in
PMRGCAuk
8 months ago
Indigestion
Hi Has anyone experienced Gastro problems secondary to Prednisolone
Hi Has anyone experienced Gastro problems secondary to Prednisolone
Harry8388
in
PMRGCAuk
8 months ago
Curious about thin-skinned ears---Prednisone?
Does anyone else have issues with the edges of their ears getting raw? My pillowcases are quite smooth, and periodically, I have a problem with the edges of my ear bleeding and must keep it covered while I sleep until it heals. I deal with it, heal it, and I'm fine. Then in a few months...I hop on
Does anyone else have issues with the edges of their ears getting raw? My pillowcases are quite smooth, and periodically, I have a problem with the edges of my ear bleeding and must keep it covered while I sleep until it heals. I deal with it, heal it, and I'm fine. Then in a few months...I hop on
Grammy80
in
PMRGCAuk
5 months ago
Avacopan side effects
Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off prednisone now and purely on Avacopan but getting lots of headaches, tiredness and my eyes are so sore. My cough also hasn’t alleviated which is annoying. Many thanks, Wishing you well, Robert
Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off prednisone now and purely on Avacopan but getting lots of headaches, tiredness and my eyes are so sore. My cough also hasn’t alleviated which is annoying. Many thanks, Wishing you well, Robert
Robstevens1970
in
Vasculitis UK
5 months ago
Hospital and large doses of Prednisone??
During my first visit with Rheumatologist, I asked how to handle symptoms if they returned during tapering. I suggested that I go back to the last dosage that worked plus some, as I have read here. She said no, that I should go to Emergency at the hospital with the thought that they would inject me with
During my first visit with Rheumatologist, I asked how to handle symptoms if they returned during tapering. I suggested that I go back to the last dosage that worked plus some, as I have read here. She said no, that I should go to Emergency at the hospital with the thought that they would inject me with
newsusy
in
PMRGCAuk
5 months ago
retiring: Anti-Rejection Megication Questions
I’m retiring on July 3, 2024. This means I’ll no longer be forced to use CVS Specialty to receive my anti-rejection meds. Frankly, I’ve had a lot of trouble with them. Two questions: 1. If you are willing, please share information about which prescription medication insurance plan you are using in
I’m retiring on July 3, 2024. This means I’ll no longer be forced to use CVS Specialty to receive my anti-rejection meds. Frankly, I’ve had a lot of trouble with them. Two questions: 1. If you are willing, please share information about which prescription medication insurance plan you are using in
Jayhawker
in
Kidney Transplant
5 months ago
How can I tell when adrenals are coming back?
This line from DL's editing of a crucial post in the FAQ is cheering: . "In almost every patient the adrenal gland starts functioning again when cortisone is tapered, it just needs time." Got it. But are there symptoms that suggest the glands are waking up? After 15 months I am at 5.5mg of prednisone
This line from DL's editing of a crucial post in the FAQ is cheering: . "In almost every patient the adrenal gland starts functioning again when cortisone is tapered, it just needs time." Got it. But are there symptoms that suggest the glands are waking up? After 15 months I am at 5.5mg of prednisone
papadapadoo
in
PMRGCAuk
5 months ago
Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
5 months ago
taking prednisone
Hi, sorry another question. Being on 25 mg daily now the chemist said to take all the tablets at the same time in the morning . As that was the the best way for tablets to work. I tried that and had the most horrendous reaction. Later in the afternoon, felt I had a “rush “ and felt immediately extremely
Hi, sorry another question. Being on 25 mg daily now the chemist said to take all the tablets at the same time in the morning . As that was the the best way for tablets to work. I tried that and had the most horrendous reaction. Later in the afternoon, felt I had a “rush “ and felt immediately extremely
Crwbin1
in
PMRGCAuk
5 months ago
arm pain and Mexican prednisone
hello, I wrote recently that I was suffering upper arm pain and stiffness. . I increased my dose from 3.75 to 10 mg for a couple of weeks. There didn’t seem to be much improvement. . I can cope during the day but the nights are very difficult. I’ve gone down to 8.75mg with no relief but I am wondering
hello, I wrote recently that I was suffering upper arm pain and stiffness. . I increased my dose from 3.75 to 10 mg for a couple of weeks. There didn’t seem to be much improvement. . I can cope during the day but the nights are very difficult. I’ve gone down to 8.75mg with no relief but I am wondering
Fishtacoqueen
in
PMRGCAuk
5 months ago
Just starting the journey…..
Hi All, I have recently been diagnosed with GCA, at least that’s what I am now being treated for. My story started in early Dec 2023. I am a very active 60 yr old, previously doing triathlons, still cycling, swimming, walking etc. The first symptom I experienced was excruciating pain in my hip flexor
Hi All, I have recently been diagnosed with GCA, at least that’s what I am now being treated for. My story started in early Dec 2023. I am a very active 60 yr old, previously doing triathlons, still cycling, swimming, walking etc. The first symptom I experienced was excruciating pain in my hip flexor
Specialised
in
PMRGCAuk
5 months ago
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