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Any New Suggestions for Dealing With Increasingly Debilitating Cognitive, Affective and Physical SEs from ADT?
Dx advanced PCa in 12, 2016 at age 66. Gleason 4+4=8, PSA high was 20, one suspected met at hip. No other involvement beyond suspected perineural. 37 RT sessions and LD brachy mid 2017, at Dattoli Cancer Center (where Dr. Snuffy Myers was treated) 10 additional RT sessions to pelvic lymph nodes there
Dx advanced PCa in 12, 2016 at age 66. Gleason 4+4=8, PSA high was 20, one suspected met at hip. No other involvement beyond suspected perineural. 37 RT sessions and LD brachy mid 2017, at Dattoli Cancer Center (where Dr. Snuffy Myers was treated) 10 additional RT sessions to pelvic lymph nodes there
yamobedeh
in
Advanced Prostate Cancer
6 years ago
PSA
Initial treatment brought PSA from 1044 to 1.6. This month it had gone up to 2.4. He’s done upfront Docetaxel and is on Lupron and Casodex. What does a bump up mean? Is he castrate resistant now???
Initial treatment brought PSA from 1044 to 1.6. This month it had gone up to 2.4. He’s done upfront Docetaxel and is on Lupron and Casodex. What does a bump up mean? Is he castrate resistant now???
Blair77
in
Advanced Prostate Cancer
6 years ago
Weight loss - freaking out
My father lost almost 4kg in one month, with no change in diet, apetite or treatment, I'm freaking out. Of course I will make a doctors appointment the first thing tomorrow morning but I'm so scared. He is skinny by nature: only had 68kg, now to 64kg. History: diagnosed during turp procedure in Semptember
My father lost almost 4kg in one month, with no change in diet, apetite or treatment, I'm freaking out. Of course I will make a doctors appointment the first thing tomorrow morning but I'm so scared. He is skinny by nature: only had 68kg, now to 64kg. History: diagnosed during turp procedure in Semptember
MyDad76
in
Advanced Prostate Cancer
6 years ago
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An Update To My Profile And Entering A New Phase In My Journey
I have just had my fourth Zoladex implant and this is a summary my progress since I posted my profile. After three months my PSA had dropped to 0.5 from its previous 1.0. I was having occasional blood in my urine but was told this should settle down. At six months my PSA was 0.4. I had begun to experience
I have just had my fourth Zoladex implant and this is a summary my progress since I posted my profile. After three months my PSA had dropped to 0.5 from its previous 1.0. I was having occasional blood in my urine but was told this should settle down. At six months my PSA was 0.4. I had begun to experience
BrianE
in
Advanced Prostate Cancer
6 years ago
Still Undetectable at 6 1/2 yrs..
tl;dr Xtandi is the new Casodex per my Doc The good news we got yesterday is I am still undetectable 6.5 years after diagnosis at Gleason 8. I am T3N1M0 (Stage 4A). Except for a vacation 1 year after my RP (very ugly pathology showing "particularly aggressive cancer) when my PSA showed a doubling time
tl;dr Xtandi is the new Casodex per my Doc The good news we got yesterday is I am still undetectable 6.5 years after diagnosis at Gleason 8. I am T3N1M0 (Stage 4A). Except for a vacation 1 year after my RP (very ugly pathology showing "particularly aggressive cancer) when my PSA showed a doubling time
Beermaker
in
Advanced Prostate Cancer
6 years ago
Hi, New to this and optimistic, I think
Hi i’m recently dignosed with advanced prostate cancer that has spread to at least one lymph node. I’m taking Casodex and will have a radiation planning meeting tomorrow at fox chase in Philadelphia. Research so far suggests improving my diet and exercise routines will help a lot. Lots of good info on
Hi i’m recently dignosed with advanced prostate cancer that has spread to at least one lymph node. I’m taking Casodex and will have a radiation planning meeting tomorrow at fox chase in Philadelphia. Research so far suggests improving my diet and exercise routines will help a lot. Lots of good info on
Johnkelsey
in
Advanced Prostate Cancer
6 years ago
Testosterone levels !!
I have been recently diagnosed with advanced metastatic prostate cancer. I was started on Casodex 50 mg for 14 days (one tablet a day). Then Eligard 22.5 mg for 3 months. I have also had 38 sessions of radiation (2 Gy/session). My testosterone levels have now fallen to 13.76 ng/dL where the normal
I have been recently diagnosed with advanced metastatic prostate cancer. I was started on Casodex 50 mg for 14 days (one tablet a day). Then Eligard 22.5 mg for 3 months. I have also had 38 sessions of radiation (2 Gy/session). My testosterone levels have now fallen to 13.76 ng/dL where the normal
whatsinaname
in
Advanced Prostate Cancer
6 years ago
Frightened Daughter Needs Advice
My 84-year-old father was just diagnosed with stage 4 prostate cancer. He has multiple lesions in his bones as well as lymph nodes in the pelvic area. Psa is14. We were shocked to hear as it had been active surveillance for so long and urologist wasn’t concerned. He just recovered from having stents
My 84-year-old father was just diagnosed with stage 4 prostate cancer. He has multiple lesions in his bones as well as lymph nodes in the pelvic area. Psa is14. We were shocked to hear as it had been active surveillance for so long and urologist wasn’t concerned. He just recovered from having stents
Carins
in
Advanced Prostate Cancer
6 years ago
Introducing Myself
Greetings everyone. I am a 70 year old guy living in coastal South Carolina, USA. From the time I was 50, I had a PSA annually with normal results except one case of prostatitis that was easily cured. In June 2015 I was hospitalized while on a fishing trip in FL with prostatitis and sepsis and released
Greetings everyone. I am a 70 year old guy living in coastal South Carolina, USA. From the time I was 50, I had a PSA annually with normal results except one case of prostatitis that was easily cured. In June 2015 I was hospitalized while on a fishing trip in FL with prostatitis and sepsis and released
WayneSC
in
Advanced Prostate Cancer
6 years ago
Muscle atrophy
My father experiences muscle atrophy. His whole life he was skinny (he can eat whatever he liks but never gains weight), but had muscles. Now that summer is coming and he is wearing short sleaves, I noticed his arms and chest became very weak. He was diagnosed in September 2016 after TURP procedure
My father experiences muscle atrophy. His whole life he was skinny (he can eat whatever he liks but never gains weight), but had muscles. Now that summer is coming and he is wearing short sleaves, I noticed his arms and chest became very weak. He was diagnosed in September 2016 after TURP procedure
MyDad76
in
Advanced Prostate Cancer
6 years ago
Nasty stuff
Hi all, was dx in march '17 with stage 4, gleason 9 at 56 yo. Mests in feet left knee spine shoulder . I am on casodex daily and lupron shots once a month. My psa is undetectable and test. Is high 30s. Last bone scan was good, nothing new & some regresson. Question is , he says i have "nasty stuff".
Hi all, was dx in march '17 with stage 4, gleason 9 at 56 yo. Mests in feet left knee spine shoulder . I am on casodex daily and lupron shots once a month. My psa is undetectable and test. Is high 30s. Last bone scan was good, nothing new & some regresson. Question is , he says i have "nasty stuff".
Kell_11
in
Advanced Prostate Cancer
6 years ago
Low Iron in Blood
Father has Low iron blood levels and he went from 0.06 PSA to 0.08 PSA in the last 2-3 months. Doc says that it is not relevant as it is a low difference. He was diagnosed in december 2017 with Stage 4 Prostate Cancer N1( in two nodes) and 2-3 mets in pelvis.I say 2-3 because the first doctor said he
Father has Low iron blood levels and he went from 0.06 PSA to 0.08 PSA in the last 2-3 months. Doc says that it is not relevant as it is a low difference. He was diagnosed in december 2017 with Stage 4 Prostate Cancer N1( in two nodes) and 2-3 mets in pelvis.I say 2-3 because the first doctor said he
Noel91
in
Advanced Prostate Cancer
6 years ago
What next after chemo fails
Hi This is my first post, we live in UK and my husband Steve was diagnosed with aggressive prostate cancer in 2011 with lymph node involvement. PSA 14, Gleason 10, Started 3 monthly zoladex injections straight away which he still has and also 40 radiotherapy treatments which kept his PSA to around 0.6
Hi This is my first post, we live in UK and my husband Steve was diagnosed with aggressive prostate cancer in 2011 with lymph node involvement. PSA 14, Gleason 10, Started 3 monthly zoladex injections straight away which he still has and also 40 radiotherapy treatments which kept his PSA to around 0.6
JanJames
in
Advanced Prostate Cancer
6 years ago
Anyone one on Erleada?
Results of Axumin PET scan: NO DETECTABLE PROSTATE METS. Due to a rising PSA MO starting me on Erleada. Is anyone on Erleada? Side Effects? I read the handout and it looks like side effects are more severe than Zytiga. Recap of my journey 1/1997: Diagnosed: PSA: 95, GS 4+3-7 9/1997 EBRT + Bracytherapy
Results of Axumin PET scan: NO DETECTABLE PROSTATE METS. Due to a rising PSA MO starting me on Erleada. Is anyone on Erleada? Side Effects? I read the handout and it looks like side effects are more severe than Zytiga. Recap of my journey 1/1997: Diagnosed: PSA: 95, GS 4+3-7 9/1997 EBRT + Bracytherapy
mcp1941
in
Advanced Prostate Cancer
6 years ago
Dad's journey
Hi everyone, I've been a lurker here for quite a while so I figured it was time to share my father's journey into this horrible disease. Dad is 65y old and was diagnosed in April 2017 with Gleason 9, a PSA 95 and regional lymph nodes involved. First Bone Scintigraphy in May 2017 showed no mets at the
Hi everyone, I've been a lurker here for quite a while so I figured it was time to share my father's journey into this horrible disease. Dad is 65y old and was diagnosed in April 2017 with Gleason 9, a PSA 95 and regional lymph nodes involved. First Bone Scintigraphy in May 2017 showed no mets at the
Dalph87
in
Advanced Prostate Cancer
6 years ago
Not good news for me today.
My visit with my oncologist today didn't bring me the good news we're always hoping for. My last scans revealed some new lymph nodes spots. Also a 4.1 centimeter mass on my liver. I just finished radiation beam treatment. Along with my daily zytiga and prednisone. At my initial diagnosis last August,
My visit with my oncologist today didn't bring me the good news we're always hoping for. My last scans revealed some new lymph nodes spots. Also a 4.1 centimeter mass on my liver. I just finished radiation beam treatment. Along with my daily zytiga and prednisone. At my initial diagnosis last August,
RalphieJr64
in
Advanced Prostate Cancer
6 years ago
Prostate Cancer Stage 4 Metastasized
My PSA went from (3.8) 4/15 to (10.2) 12/16. From then it actually took 8 months to receive a Robotic Prostatectomy which found my Gleason to be a 9 with seminal vesicle invasion. Dec 8 2018 post Prostatectomy PSA 12/8/18 @ 0.6 - 01/08/18 @ 1.51 and again 02/14/18 @ 3.57. It is a horrible feeling. Jan
My PSA went from (3.8) 4/15 to (10.2) 12/16. From then it actually took 8 months to receive a Robotic Prostatectomy which found my Gleason to be a 9 with seminal vesicle invasion. Dec 8 2018 post Prostatectomy PSA 12/8/18 @ 0.6 - 01/08/18 @ 1.51 and again 02/14/18 @ 3.57. It is a horrible feeling. Jan
Hidden
in
Advanced Prostate Cancer
6 years ago
Dr. Myers Was Right About Supplements
interfering with drugs. Before I got a hold of Xtandi I used Casodex 50 mg monotherapy...worked really well...kept PSA at <.1. Instead of all the pills I tried powders....Food Science of Vermont Purple Power, Red Power, Yellow Power, Green Power. In one month PSA went from <.1 to .4....stopped the supplement
interfering with drugs. Before I got a hold of Xtandi I used Casodex 50 mg monotherapy...worked really well...kept PSA at <.1. Instead of all the pills I tried powders....Food Science of Vermont Purple Power, Red Power, Yellow Power, Green Power. In one month PSA went from <.1 to .4....stopped the supplement
gusgold
in
Advanced Prostate Cancer
6 years ago
Kell_11
Hi im new here. Was dx in Feb. '17 with stage 4, gleason 9. Went thru 6 cycles doc, once every 3 wks. I am curently on hormone therapy, lupron shot once a month and casodex daily. My Psa is undetectable according to my urologist and T is close to 40. My last bone scan looked good to my docs, nothing
Hi im new here. Was dx in Feb. '17 with stage 4, gleason 9. Went thru 6 cycles doc, once every 3 wks. I am curently on hormone therapy, lupron shot once a month and casodex daily. My Psa is undetectable according to my urologist and T is close to 40. My last bone scan looked good to my docs, nothing
Kell_11
in
Advanced Prostate Cancer
6 years ago
Question for biochemist types: What is the basis of cognitive problems with long term ADT? & debilitating fatigue? Detailed as possible.
Physio/biochemical basis of cognitive & fatigue issues being on ADT. Drugs & supplements to help? On triple blockade Trelstar, Casodex, Avodart.
Physio/biochemical basis of cognitive & fatigue issues being on ADT. Drugs & supplements to help? On triple blockade Trelstar, Casodex, Avodart.
yamobedeh
in
Advanced Prostate Cancer
6 years ago
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