Introducing Myself: Greetings everyone... - Advanced Prostate...

Advanced Prostate Cancer

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Introducing Myself

WayneSC profile image
6 Replies

Greetings everyone. I am a 70 year old guy living in coastal South Carolina, USA. From the time I was 50, I had a PSA annually with normal results except one case of prostatitis that was easily cured. In June 2015 I was hospitalized while on a fishing trip in FL with prostatitis and sepsis and released after 5 days with a PSA of 29. Immediately saw a urologist that spent 6 months with multiple antibiotics and finally in 3/16 did a biopsy with. Gleason 9 result.

Had robotic surgery 4/16 and found a breakout of the cancer. Lymph nodes were normal. I immediately started on Lipton and casodex followed by 39 treatments of external beam radiation finishing in in 9/17. Since then I have had undetectable PSA with the normal side effects from Lipton.

Fatigue is an ongoing issue and I can only imagine it would be without 4-4 gym trips per week.

Nice to be a part of the group

Future posts will be on my laptop due to difficulty of dealing with the blind typing on the iPad.

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WayneSC
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6 Replies
WayneSC profile image
WayneSC

Lupron is what I tried to type and it was intended to read 4-5 gym trips.

WayneSC profile image
WayneSC

Additionally, after surgery I had a full body bone scan and a MRI from neck to waist with no presence of cancer.

Shooter1 profile image
Shooter1 in reply toWayneSC

Sounds like you are doing fine and will live to be an "ol' fart". welcome to the group no one wants to join.

Doug-AZ

Break60 profile image
Break60

Hi

I’m in coastal SC also. You should Type your history in your profile so others can see it whenever you post. I agree that fatigue is one of the worst side effects of treatment.

Bob

Wdoug profile image
Wdoug

Our histories are quite similar. Especially the fatigue factor -- that is my biggest side effect from the lupron. Other side effects are amplified pain from rotator-cuff? among other age-related pains and radiation related pee pain. I feel fortunate to be as well as I am. The big thing is a positive attitude at all times. My main event daily is a visit to LA Fitness for 2-4 mile walks (it is too hot to walk here in Fort Worth and gym allows other stretching and light weight workouts with some visiting, during the lesser attended hours we retirees have the freedom to be there. The fatigue keeps me resting maybe 10 hours a day and that can be a bit dis-heartening.

I'll be having my 2 year lupron blood test tomorrow and am hoping for the same .03 PSA and 12 T I've had each 6 month check -- got 1 more year of lupron if things go as planned.

I was diagnosed at 72 after 9 years of 4 negative biopsies and a TERP but rising PSA until an MRI showed some "dark" spots. A directed biopsy showed 2 Gleason 9's and a 7 as PSA was at 29.

Hope you can continue as well as me, Wayne, and enjoy all you are able to do.

Litlerny profile image
Litlerny

Welcome to the monkey house, Wayne. Like Doug said, no one wants to belong to this group, but we’re all happy we have it to commiserate, share our experiences along the road (both good and bad), a hopefully share a lot of useful information in dealing with our PCa and related issues. It sounds like you are doing very well so far, and I hope and pray that continues for a long, long time.

Mark

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