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UK Webinar - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends you may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here: https://us02web.zoom.us
Hi friends you may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here: https://us02web.zoom.us
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Travelling abroad/best portable compressor in your opinion please
Hi I’m new here! I had LV Heart Failure in 2010 and lived a fairly unrestricted life. In Jan this year I contracted COVID which has made my condition worse with RV Heart failure (pacemaker upgraded) and type II respiratory failure for which I’m on 2 litres at rest, 3 mobilising and 4 at night through
Hi I’m new here! I had LV Heart Failure in 2010 and lived a fairly unrestricted life. In Jan this year I contracted COVID which has made my condition worse with RV Heart failure (pacemaker upgraded) and type II respiratory failure for which I’m on 2 litres at rest, 3 mobilising and 4 at night through
WeirdOxygenGirl
in
Lung Conditions Community Forum
3 years ago
Antibody test, optimal timing
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
BART4
in
CLL Support
3 years ago
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Sensitive question
Hello, I have had some good news today that my hcg levels have risen but they have more then doubled.. It was 344 at 10dp5dt and 1, 048 at 12dp5dt.. I was just wondering if anyone could tell me what your hcg results where 2 days apart? Xx
Hello, I have had some good news today that my hcg levels have risen but they have more then doubled.. It was 344 at 10dp5dt and 1, 048 at 12dp5dt.. I was just wondering if anyone could tell me what your hcg results where 2 days apart? Xx
Chloe12122222
in
Fertility Network UK
3 years ago
left ventricular systolic dysfunction
Following my recent heart echo this diagnosis has appeared on my NHS GP record - "left ventricular systolic dysfunction". I had the echo because I get breathless these days just walking across the road to the shops, but when I went to see the GP to discuss my results there was no mention of "left ventricular
Following my recent heart echo this diagnosis has appeared on my NHS GP record - "left ventricular systolic dysfunction". I had the echo because I get breathless these days just walking across the road to the shops, but when I went to see the GP to discuss my results there was no mention of "left ventricular
Stinky1953
in
AF Association
3 years ago
Abstract in regard to P-LL as a diagnosis entity is an interesting read and proposal
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
cllady01
Volunteer
in
CLL Support
3 years ago
Could possibly be a sensitive question for some people
I was just wondering if anyone could tell me there hcg results at 10dp5dt? My clinic never told me if my results was good or not at 344 xx
I was just wondering if anyone could tell me there hcg results at 10dp5dt? My clinic never told me if my results was good or not at 344 xx
Chloe12122222
in
Fertility Network UK
3 years ago
5 weeks with bloated stomach and spotting
Hi, Was v happy with a BFP, but now I have become very anxious and worried as I realised so many things can go wrong in the first trimester. I just started spotting on and off (light pink with some white discharge) for 2 days now at the start of 5 weeks. I went to the doc and they gave me a progestorone
Hi, Was v happy with a BFP, but now I have become very anxious and worried as I realised so many things can go wrong in the first trimester. I just started spotting on and off (light pink with some white discharge) for 2 days now at the start of 5 weeks. I went to the doc and they gave me a progestorone
Thea114
in
Fertility Network UK - Pregnancy Support
3 years ago
Curious -- family leukemia history anyone?
I recall reading early on that CLL was thought to be possibly genetic, with 20 years younger in succeeding generations. I have two sons. I was diagnosed at 70. Ironically or not, one of my 4 uncles got leukemia around 90 (couldn't find out what kind), so I've wanted to follow the genetic implications
I recall reading early on that CLL was thought to be possibly genetic, with 20 years younger in succeeding generations. I have two sons. I was diagnosed at 70. Ironically or not, one of my 4 uncles got leukemia around 90 (couldn't find out what kind), so I've wanted to follow the genetic implications
Vlaminck
in
CLL Support
3 years ago
Can hcg rise be too quick?
Hi ladies .. new to this page. Had a long infertility journey. Year trying naturally, 2 years with NAPRO.. MC at 10 weeks. 5 ivf cycles .. all transfers resulted in CP. Was told I had very high immune issues and did lots of various immune meds .. which made my immunes flare even more. Was told surrogacy
Hi ladies .. new to this page. Had a long infertility journey. Year trying naturally, 2 years with NAPRO.. MC at 10 weeks. 5 ivf cycles .. all transfers resulted in CP. Was told I had very high immune issues and did lots of various immune meds .. which made my immunes flare even more. Was told surrogacy
letro112
in
Fertility Network UK - Pregnancy Support
3 years ago
High White blood cells
Hi guys, I’m still waiting on my HCG results but my WBC have come back at 15.2 - I’m really nervous now because I do have raised NK cells and if I don’t get them controlled it might be all over. I’m taking predisilone and the clinic have put it up to 25mg - I did intralipids also. Is there anything else
Hi guys, I’m still waiting on my HCG results but my WBC have come back at 15.2 - I’m really nervous now because I do have raised NK cells and if I don’t get them controlled it might be all over. I’m taking predisilone and the clinic have put it up to 25mg - I did intralipids also. Is there anything else
Jrss1
in
Fertility Network UK
3 years ago
Fresh IVF cancelled because of Covid
Did any of you have been in such a shitty situation? I was supposed to have an egg collection this week and got Covid from my son. I can't even express how low I'm feeling at the moment and the thought we need to start over again... I just wonder how soon I will get my period. Would it be around 2 weeks
Did any of you have been in such a shitty situation? I was supposed to have an egg collection this week and got Covid from my son. I can't even express how low I'm feeling at the moment and the thought we need to start over again... I just wonder how soon I will get my period. Would it be around 2 weeks
zytajones
in
Fertility Network UK
3 years ago
If you get a very faint line on hpt that's 25iu does it mean your hcg levels are higher then 25? Is that what it means?
Sorry for the weird question I was just curious because on some tests it's 25iu so you would think it would only come up with a positive if it's over 25iu?
Sorry for the weird question I was just curious because on some tests it's 25iu so you would think it would only come up with a positive if it's over 25iu?
Chloe12122222
in
Fertility Network UK
3 years ago
Hcg low
My hcg after 9 days post fet was at 9 but they want that number to be greater than 50. They want me to recheck 3 days later to see if it goes up. My nurse said she has rarely seen it go up and unlikely to increase. I am continuing all my meds until we get the result. Has anyone else experienced something
My hcg after 9 days post fet was at 9 but they want that number to be greater than 50. They want me to recheck 3 days later to see if it goes up. My nurse said she has rarely seen it go up and unlikely to increase. I am continuing all my meds until we get the result. Has anyone else experienced something
ambi99
in
Fertility Network UK
3 years ago
HCG levels
Do you think this is strong enough line for 9 days?
Do you think this is strong enough line for 9 days?
Jrss1
in
Fertility Network UK
3 years ago
Is strength training helpful?
Hi Everyone, I have just joined and also recently diagnosed with cll. I have learned that diet and exercise is very helpful with controlling cll. I just wondered if strength/weight training was also helpful? Thanks
Hi Everyone, I have just joined and also recently diagnosed with cll. I have learned that diet and exercise is very helpful with controlling cll. I just wondered if strength/weight training was also helpful? Thanks
arsenal0
in
CLL Support
3 years ago
Great Antibodies after 3rd Primary Dose of Pfizer
Hi, I was diagnosed with CLL in September 2019 and am on watch and wait. Six weeks after my second Astra Zeneca vaccination I took a Covid Antibody test from Testing For All and my result was 106.00 U/ml. Today I got my result 6 weeks following my third Primary Dose of Pfizer. I am extremely happy
Hi, I was diagnosed with CLL in September 2019 and am on watch and wait. Six weeks after my second Astra Zeneca vaccination I took a Covid Antibody test from Testing For All and my result was 106.00 U/ml. Today I got my result 6 weeks following my third Primary Dose of Pfizer. I am extremely happy
1Surfer9
in
CLL Support
3 years ago
HCG levels
Hi everyone, can I ask what the HCG level should be for 8dpt?
Hi everyone, can I ask what the HCG level should be for 8dpt?
Jrss1
in
Fertility Network UK
3 years ago
Incomplete miscarriage advice
Hello ladies, Just before Christmas it was confirmed that my pregnancy was a blighted ovum. I decided to wait and let my body miscarry naturally. I bled for a 10 days, with one of those days losing clots and painful cramping. I went to A&E on Sunday due to difficulties sitting down, as it would cause
Hello ladies, Just before Christmas it was confirmed that my pregnancy was a blighted ovum. I decided to wait and let my body miscarry naturally. I bled for a 10 days, with one of those days losing clots and painful cramping. I went to A&E on Sunday due to difficulties sitting down, as it would cause
Blue-cat33
in
Fertility Network UK
3 years ago
Anyone have ablation for asymptomatic afib/aflutter?
Hi. I appreciate the great answers and support from my previous question on this forum. I know the main reason for ablation is to eiminate afib, improve QoL and hopefully get off of the meds. This may be a stupid question but are there many people with asymptomatic afib/aflutter and heartrate of 70-
Hi. I appreciate the great answers and support from my previous question on this forum. I know the main reason for ablation is to eiminate afib, improve QoL and hopefully get off of the meds. This may be a stupid question but are there many people with asymptomatic afib/aflutter and heartrate of 70-
nmack
in
Atrial Fibrillation Support
3 years ago
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