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Help deciding about Transplant
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
Cazbolac
in
MPN Voice
3 years ago
MBL numbers going up
Just had my yearly labs and my WBC increased from 10 to19 and my absolute lymphocytes 7.6 to 12. Everythng else looked pretty good, normal range. Could this be a blip (just got over bad a-topical dermatitis[i] [/i] on three spots for weeks
before resolving a week before labs. Any cause for concern
Just had my yearly labs and my WBC increased from 10 to19 and my absolute lymphocytes 7.6 to 12. Everythng else looked pretty good, normal range. Could this be a blip (just got over bad a-topical dermatitis[i] [/i] on three spots for weeks
before resolving a week before labs. Any cause for concern
Freeskier989
in
CLL Support
4 years ago
5 positive tests then negative but hcg still in blood?
Hi. So last week I did 5 pregnancy tests..all positive, one was a clear blue with the reading 2-3 which to me was great. Saturday night I had pinkish discharge so got sent to a&e. Urine dip was negative at the hospital so they did bloods. Hcg is in my blood but low. They checked me internally with a
Hi. So last week I did 5 pregnancy tests..all positive, one was a clear blue with the reading 2-3 which to me was great. Saturday night I had pinkish discharge so got sent to a&e. Urine dip was negative at the hospital so they did bloods. Hcg is in my blood but low. They checked me internally with a
Chickennuggets1234
in
Pregnancy and Parenting Support
3 years ago
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Green Tea Extract and Curcumin
Hi All - I’ve been taking green tea extract and curcumin capsules daily since I was diagnosed 18 months ago. I have no symptoms and my blood levels have been very stable. Has anyone had experience with those two supplements?
Hi All - I’ve been taking green tea extract and curcumin capsules daily since I was diagnosed 18 months ago. I have no symptoms and my blood levels have been very stable. Has anyone had experience with those two supplements?
LouisAmbrose
in
CLL Support
4 years ago
*Sensitive*
Good afternoon all, Firstly I'm so sorry to all those that have had treatment stopped for Covid. It sucks and I was there in March of last year so I do know how it feels. I hope this does not trigger anyone and if so, please scroll on past. I have had a positive pregnancy test after my FET and my hCG
Good afternoon all, Firstly I'm so sorry to all those that have had treatment stopped for Covid. It sucks and I was there in March of last year so I do know how it feels. I hope this does not trigger anyone and if so, please scroll on past. I have had a positive pregnancy test after my FET and my hCG
hifer
in
Fertility Network UK
3 years ago
Preparing for next FET after miscarriage!! Need your advice!!
Hi ladies again, I'd like to thank you all for your lovely supportive words due to my miscarriage last cycle. That really helped me passing the tough time, it was a hard experience to lose everything in moments after seeing a positive test for the first time in my life 💔. But here we are continuing
Hi ladies again, I'd like to thank you all for your lovely supportive words due to my miscarriage last cycle. That really helped me passing the tough time, it was a hard experience to lose everything in moments after seeing a positive test for the first time in my life 💔. But here we are continuing
HANAHANA
in
Fertility Network UK
3 years ago
Jak2, MPN, all blood count is up! Nutrition and lifestyle changes?
Just came from the doctor. Still no definite result after my BMB. Tests are still incomplete. Some info: Positive for Jak2 , myeloproliferative neoplasms (MPN) Negative for leukemia and lymphoma Ultrasound came back good, no enlarged spleen, organs, etc. Next step is to see an MPN specialist. Then
Just came from the doctor. Still no definite result after my BMB. Tests are still incomplete. Some info: Positive for Jak2 , myeloproliferative neoplasms (MPN) Negative for leukemia and lymphoma Ultrasound came back good, no enlarged spleen, organs, etc. Next step is to see an MPN specialist. Then
margaritampn
in
MPN Voice
3 years ago
Hcg levels low?? Any advice
I’ve just had my hcg levels come back at 39. They were looking for 50. I don’t have any symptoms. I’m starting to panic has anyone gone through this and been successful. This is my 5th time. I have to go back Monday for more bloods.
I’ve just had my hcg levels come back at 39. They were looking for 50. I don’t have any symptoms. I’m starting to panic has anyone gone through this and been successful. This is my 5th time. I have to go back Monday for more bloods.
Sukiba
in
Fertility Network UK
3 years ago
too low hcg for 13dpt.. any success story??
i only have. 14.64?? is it okay?? but doctor said it is positive but not ideal level.. is there posibility to increase in 3 days? any success story having low hcg but increase gradually and having a healthy pregnancy??
i only have. 14.64?? is it okay?? but doctor said it is positive but not ideal level.. is there posibility to increase in 3 days? any success story having low hcg but increase gradually and having a healthy pregnancy??
lex8719
in
Fertility Network UK
3 years ago
Richter's Syndrome
Just diagnosed. I'm 46. Have biopsy tomorrow to determine treatment options. This is really freaking me out. Is this really a death sentence? Need feedback from others that have gone though it
Just diagnosed. I'm 46. Have biopsy tomorrow to determine treatment options. This is really freaking me out. Is this really a death sentence? Need feedback from others that have gone though it
ishudderz
in
CLL Support
4 years ago
A webinar for patients - practical workshop 'Coping with Fatigue' Oct 28th at 4pm
Hi all, this is a challenge that many of us have to manage. Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing
Hi all, this is a challenge that many of us have to manage. Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing
HAIRBEAR_UK
Founder Admin
in
CLL Support
4 years ago
Hcg
I found out I was pregnant on Boxing Day. Early scan showed 1 sack about 4 weeks pregnant . sack empty. I should now be 6 and a bit weeks today . Sack still empty. But can see 2 . Unsure if it’s fluid or not. Still empty sack. My hcg levels are 52707. Said this is very high for not seeing anything inside
I found out I was pregnant on Boxing Day. Early scan showed 1 sack about 4 weeks pregnant . sack empty. I should now be 6 and a bit weeks today . Sack still empty. But can see 2 . Unsure if it’s fluid or not. Still empty sack. My hcg levels are 52707. Said this is very high for not seeing anything inside
Suvs3929
in
BASHH
3 years ago
An HCG level of 22 (first beta)
I am distraught. Recieved bad news yesterday 10dpt after my beta bloods were 22. I'm going back on Thursday to check if they have doubled. Has anyone had such a low beta before and still went onto have a successful and healthy baby? I'm beside myself :(
I am distraught. Recieved bad news yesterday 10dpt after my beta bloods were 22. I'm going back on Thursday to check if they have doubled. Has anyone had such a low beta before and still went onto have a successful and healthy baby? I'm beside myself :(
Hidden
in
Fertility Network UK
3 years ago
Low HCG levels ?
Hi everyone, I had my transfer 10 days ago. My pregnancy tests (clear blue) have been getting stronger but totally deflated today after my bloods indicated a low postive, they are repeating them on Thursday. Has anyone had any success with similar? I am distraught tonight. Thanks in advance x
Hi everyone, I had my transfer 10 days ago. My pregnancy tests (clear blue) have been getting stronger but totally deflated today after my bloods indicated a low postive, they are repeating them on Thursday. Has anyone had any success with similar? I am distraught tonight. Thanks in advance x
Hidden
in
Fertility Network UK
3 years ago
***sensitive**** rising beta levles
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Jldurham73
in
Fertility Network UK
3 years ago
***sensitive** BFP and high hcg level...ovulation induction
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Emrevic
in
Fertility Network UK
3 years ago
Webinar for patients - HCL treatment and care in a changing landscape - 3.30pm GMT Monday 1st December
Dear HCL friends please join us Leukaemia Care are hosting this participative patient information webinar to explore the changing HCL treatment, management and care landscape. The webinar will help to explain the condition, how it is managed and treated, while exploring changes in treatment and challenges
Dear HCL friends please join us Leukaemia Care are hosting this participative patient information webinar to explore the changing HCL treatment, management and care landscape. The webinar will help to explain the condition, how it is managed and treated, while exploring changes in treatment and challenges
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Vitamin D and Green Tea
Big thanks to this site as I’ve found a new Haematologist recommended here with whom I am 😊 He suggested three cups of Green Tea per day so I’ve included it in my everyday life and will be very interested to see blood test results next year. I have one early morning then make up a two bag mug which
Big thanks to this site as I’ve found a new Haematologist recommended here with whom I am 😊 He suggested three cups of Green Tea per day so I’ve included it in my everyday life and will be very interested to see blood test results next year. I have one early morning then make up a two bag mug which
YelvertonDevon
in
CLL Support
4 years ago
Update from my Appointment
Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it so much. Here’s what I learned: 1.I liked the team a great deal. Everyone was very kind, really listened to me, and had excellent information
Hi All, I want to thank everyone for the kind words of support, good thoughts, and prayers for my appointment with a new specialist yesterday. I appreciate it so much. Here’s what I learned: 1.I liked the team a great deal. Everyone was very kind, really listened to me, and had excellent information
Moonmyst
in
CLL Support
4 years ago
Off we go again 🤞🏼🙏
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok🤞🏼 Going to ask what we can do different
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok🤞🏼 Going to ask what we can do different
LibzyRxx
in
Fertility Network UK
3 years ago
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