A webinar for patients - practical workshop ... - CLL Support

CLL Support

22,532 members38,709 posts

A webinar for patients - practical workshop 'Coping with Fatigue' Oct 28th at 4pm

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin
9 Replies

Hi all, this is a challenge that many of us have to manage.

Please join us for this participative webinar Register > bit.ly/FatigueWebinar pic.twitter.com/44DMhhS46y

Leukaemia Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing fatigue.

The aim of this participative ‘workshop’ session is to focus on the causes of fatigue (i.e. when it can occur in the pathway, why it occurs and how it may manifest and impact on you). The webinar will seek to empower you with coping strategies and information to better live with challenges fatigue can cause.

•Introduction: - Charlotte Martin Leukaemia Care, Advocacy Manager and Stephen Scowcroft Lymphoma Action, Director of Operations and External Affairs - Housekeeping - introduce the topic and speakers - overview of impact on fatigue on patients supported with patient experience survey data.

•Clinical Nurse specialist perspective: Angela Watts, Leukaemia Care Nurse Advisor, Senior Research Nurse, Russell's Hall Hospital, Dudley - When may fatigue occur in the disease pathway, how may this manifest and how do we support patients.

•Patient perspective: Colin Heyes, living with long term fatigue

•Practical session: Dr Anne Johnson, Consultant Occupational Therapist and Joint Clinical and Operational Lead of the Bath Centre for Fatigue Services - Understanding fatigue and developing coping strategies

•Discussion and Q & A

Register > bit.ly/FatigueWebinar pic.twitter.com/44DMhhS46y

Written by
HAIRBEAR_UK profile image
HAIRBEAR_UK
Founder Admin
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Jm954 profile image
Jm954Administrator

Thanks for this Hairbear_UK, lots of people here will be interested in this.

Jackie

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply to Jm954

Thanks Jackie

Am really looking forward to this workshop. Fatigue is that invisible enemy that hides in many places, always good to learn new tips

Registration is still open > bit.ly/FatigueWebinar pic.twitter.com/44DMhhS46y

Peggy4 profile image
Peggy4

Yes please! I’ m fortunate enough to have enviable figures but oh the dreaded fatigue! I’m hoping it will be available to watch later? I have a hospital appointment that day. Thank you so much for providing these webinars.

Peggy 😀

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply to Peggy4

Hi Peggy best wishes for your hospital appointment, The webinar will be recorded and available to view after, I will post this here after, when it becomes available.

Nick

Random78 profile image
Random78 in reply to HAIRBEAR_UK

That's fab, lots of us may be working! Looking forward to seeing the recording!

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

There is still time to join us this afternoon. Here > bit.ly/FatigueWebinar

As the nights draw in and options for activities are reduced. Learn with Dr Anne Johnson, Consultant Occupational Therapist Fatigue Specialist to see if you can find practical new ways to top up your batteries to better manage your fatigue.

KatieBlue profile image
KatieBlue in reply to HAIRBEAR_UK

I just clicked the link and it’s over. Will there be a link for later?

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin in reply to KatieBlue

if you want to watch it now you can on Facebook where it is available on video immediately facebook.com/LeukaemiaCare/...

We will be loading to the LC and LA websites/YouTube over the next day or so

I will post those links here too

Nick

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

Hi all I am pleased to confirm that the video of this webinar is now available via YouTube

here is the video

youtu.be/bDNhzUT0VDw

You may also like...

UK Zoom meeting - COVID-19 and shielding update for UK CLL Patients

details below May 7, 2020, 10:00 AM - Webinar - COVID-19 and shielding update for CLL Leukaemia...

How do you cope with the fatigue? Or is it just me?

job - but I'm starting to worry about the utter fatigue I'm feeling. Sometimes I struggle to get...

Don’t suffer alone in silence

evening i called the Leukaemia Care helpline and talked to a marvelous haematology nurse about my...