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Experiences with
Chlorquinaldol / Hydrocortisone
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Bitter Taste In Mouth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
I have had a persistent bitter taste in my mouth since the end of December and the only respite that I get from it is either when I am sleeping, eating or drinking! It’s so bad that it is making me feel quite unwell! I am doing everything that has been advised eg drinking lots of water, brushing teeth
LizMitchell
in
PMRGCAuk
3 months ago
anyone with Churg Strauss come off all medication?
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
Katie18
in
Vasculitis UK
3 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
3 months ago
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The correct way to ween down on hydrocortisone? Advice please.
My last post was when I was just starting on 20mg of hydrocortisone changing from prednisolone and needed advice. Further down the line more advice needed please. On Monday I tested Covid ‘Positive’ I had avoided it since the first day that dreaded name was on everyone’s lips so it was a shock to find
My last post was when I was just starting on 20mg of hydrocortisone changing from prednisolone and needed advice. Further down the line more advice needed please. On Monday I tested Covid ‘Positive’ I had avoided it since the first day that dreaded name was on everyone’s lips so it was a shock to find
Suffolklady
in
PMRGCAuk
3 months ago
Low cortisol/adrenal insufficiency
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Hello, AI is a very new subject for me and looking to speak to people with similar issue. In May 23 I started to have bowel issues and in August 2023 I was diagnosed with Lymphatic colitis where I have been put on steroids for 12 weeks (budesonide 9mg to be exact) Since 2023 I have experience tiredness
Kamsi86
in
Thyroid UK
3 months ago
Adrenal insufficiency
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
Forestlady
in
PMRGCAuk
4 months ago
Seretide and Addisons disease
I was diagnosed with Addisons in May 2023 and have been using inhaled steroids / seretide for chronic Asthma for 20+ years. My endocrine consultant told me to stop taking my seretide which I declined to do, as Asthma extremely well controlled, unless he refers me to Asthma team at hospital to manage
I was diagnosed with Addisons in May 2023 and have been using inhaled steroids / seretide for chronic Asthma for 20+ years. My endocrine consultant told me to stop taking my seretide which I declined to do, as Asthma extremely well controlled, unless he refers me to Asthma team at hospital to manage
Flowerdac
in
Asthma Community Forum
4 months ago
switch to hydrocortisone
I’ve been to see the endocrinologist today on the recommendation of the rheumatologist. I had a borderline synacthan test , on the basis of which today he has suggested I switch to 5mg of hydrocortisone twice daily from 4 mg of prednisolone. In the background to this I have also been prescribed low
I’ve been to see the endocrinologist today on the recommendation of the rheumatologist. I had a borderline synacthan test , on the basis of which today he has suggested I switch to 5mg of hydrocortisone twice daily from 4 mg of prednisolone. In the background to this I have also been prescribed low
AnniesRyder5
in
PMRGCAuk
4 months ago
Steroid-based inhaler warning
**Moderator note to anyone reading: if you have similar concerns please speak to a medical professional - don't stop your steroid inhaler or any other steroids if you're worried about adrenal insufficiency. It's dangerous for both adrenals and asthma.**
When I started on a steroid-based inhaler
**Moderator note to anyone reading: if you have similar concerns please speak to a medical professional - don't stop your steroid inhaler or any other steroids if you're worried about adrenal insufficiency. It's dangerous for both adrenals and asthma.**
When I started on a steroid-based inhaler
JumpJiving
in
Asthma Community Forum
4 months ago
Anyone here on hydrocortisone and thyroid meds?
Hey all, Started hydrocortisone trial today as I'm having trouble tolerating thyroid meds and my morning saliva cortisol was 7% range, early afternoon was 9%, the rest was good. Any success stories? How much hydro do you take and your thyroid dose? I'm currently just trialling hydro, 10-7.5-5-2.5 mg
Hey all, Started hydrocortisone trial today as I'm having trouble tolerating thyroid meds and my morning saliva cortisol was 7% range, early afternoon was 9%, the rest was good. Any success stories? How much hydro do you take and your thyroid dose? I'm currently just trialling hydro, 10-7.5-5-2.5 mg
Incoguto
in
Thyroid UK
5 months ago
New to biologics - don't feel particularly well.
Evening all. Hope everyone is managing ok in this cold weather 🥶. So in the last 2 weeks I've had to take rescue doses for my adrenal insufficiency, had 2 emergency hydrocortisone injections (each one administered by work colleagues a week apart) as not caught early enough and generally felt off.
Evening all. Hope everyone is managing ok in this cold weather 🥶. So in the last 2 weeks I've had to take rescue doses for my adrenal insufficiency, had 2 emergency hydrocortisone injections (each one administered by work colleagues a week apart) as not caught early enough and generally felt off.
Ghoulette
in
Asthma Community Forum
5 months ago
winter/cold affecting psoriasis
As the temperature has considerably dropped over the recent weeks I have notices my psoriasis flaring up, but being more painful then normal and being externally cracked and itchy. I already suffer with really bad itching which I take 180mg of fexofenadine twice a day for but it doesn't seem to be helping
As the temperature has considerably dropped over the recent weeks I have notices my psoriasis flaring up, but being more painful then normal and being externally cracked and itchy. I already suffer with really bad itching which I take 180mg of fexofenadine twice a day for but it doesn't seem to be helping
katienewland
in
NRAS
5 months ago
Anyone taking hydrocortisone with mid-high serum cortisol, but lowish saliva?
Hi All, I am trying to evaluate my options. Next is cortisol. My blood serum is always good, over midrange to high, but saliva tends to be low on a couple of points and normal/high on the other three (I do 5 point saliva). I have some hydro at home, but not sure I should take it with good blood serum
Hi All, I am trying to evaluate my options. Next is cortisol. My blood serum is always good, over midrange to high, but saliva tends to be low on a couple of points and normal/high on the other three (I do 5 point saliva). I have some hydro at home, but not sure I should take it with good blood serum
Incoguto
in
Thyroid UK
5 months ago
Primrose 123
I wish to say "Thank You", most sincerely to all my dear friends here on HU who very kindly responded to my post regarding whether I should double my Hydrocortisone tablets due to sore arms and feeling very unwell after having my Flu & Covid vaccine 1 week ago, as I have Adrenal Insufficiency I was
I wish to say "Thank You", most sincerely to all my dear friends here on HU who very kindly responded to my post regarding whether I should double my Hydrocortisone tablets due to sore arms and feeling very unwell after having my Flu & Covid vaccine 1 week ago, as I have Adrenal Insufficiency I was
primrose123
in
Lung Conditions Community Forum
5 months ago
Primrose 123
Good morning everyone, I was wondering if anyone had developed sore arms and very bad Flu symptoms after having both Flu & COVID vaccines. I got both vaccines 1 week ago , 1 on each arm & I have felt quite unwell since, as I am on 10mg Hydrocortisone tablet in the morning + 5 mg at lunchtime,as I have
Good morning everyone, I was wondering if anyone had developed sore arms and very bad Flu symptoms after having both Flu & COVID vaccines. I got both vaccines 1 week ago , 1 on each arm & I have felt quite unwell since, as I am on 10mg Hydrocortisone tablet in the morning + 5 mg at lunchtime,as I have
primrose123
in
Lung Conditions Community Forum
5 months ago
Turkish Hydrocortisone
Can anyone tell me what the above is for?
Can anyone tell me what the above is for?
Nicola1964
in
Thyroid UK
6 months ago
Adrenal cortisol expertise needed
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Rileyfloof
in
Thyroid UK
6 months ago
Update after cardiac catheterization.
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
First a BIG THANK YOU for all the advice and support. I felt you with me every step of the way. The catheterization showed no narrowing of the major cardiac arteries. But head cardiologist came and said all my symptoms were classic heart attack and clearly something was blocked...so i have a bucket
agingfeminist
in
PMRGCAuk
6 months ago
Ferritin and folate levels
I have pituitary failure and it's taken me almost 20years to get myself sorted. I take T3 in the form of Cytomel which is reluctantly prescribed by my local Endo but beyond that they are totally useless. I now see a specialist in Leicester who has got a better idea and I now have hydrocortisone, growth
I have pituitary failure and it's taken me almost 20years to get myself sorted. I take T3 in the form of Cytomel which is reluctantly prescribed by my local Endo but beyond that they are totally useless. I now see a specialist in Leicester who has got a better idea and I now have hydrocortisone, growth
heathermr
in
Thyroid UK
6 months ago
Adrenal crisis or flare ?
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Cyclo5
in
Thyroid UK
6 months ago
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