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Rituximab Agreed
Thanks to everyone for info, advice and support re. Rituximab. The hospital have just called to say MDT agreed to my having these infusions. Treatment should start within a month xx
Thanks to everyone for info, advice and support re. Rituximab. The hospital have just called to say MDT agreed to my having these infusions. Treatment should start within a month xx
SALI
in
NRAS
1 month ago
HAIR LOSS
Hi all Looking to see if any one has problem with hair thinning although no recent change in medication. Las summer Dermatologists prescribed BETACAP SCALP APPLICATION which worked well on flaking red scalp. Did notice hair a bit thinner but put it down to age. Was back with Dermatologist this
Hi all Looking to see if any one has problem with hair thinning although no recent change in medication. Las summer Dermatologists prescribed BETACAP SCALP APPLICATION which worked well on flaking red scalp. Did notice hair a bit thinner but put it down to age. Was back with Dermatologist this
Haired
in
LUPUS UK
1 month ago
How to tell if Rituximab is working?
Are you able to tell if Rituximab is working from changes that show in your blood tests? What specifically would improve or should everything improve?
Are you able to tell if Rituximab is working from changes that show in your blood tests? What specifically would improve or should everything improve?
Redkatt
in
CLL Support
1 month ago
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Possible Leukoplakia
Hi all.Hope your all doing really well this Tuesday. Yesterday I went to my Dentist for my routine check up and Polish and had the polish and clean first then during my check up the Dentist said you have a small pale (not white) on the inside of my cheek. She said it didn’t look sinister but said it
Hi all.Hope your all doing really well this Tuesday. Yesterday I went to my Dentist for my routine check up and Polish and had the polish and clean first then during my check up the Dentist said you have a small pale (not white) on the inside of my cheek. She said it didn’t look sinister but said it
Investigator1
in
Vasculitis UK
2 months ago
A few developments - anybody got similar
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Don’t want to bore you all but I have had a couple of developments recently apart from having my Rituximab extended for another year. Firstly I am on statins since last Thursday, I am fit, I get out, eat a low carb/high fibre diet but my cholesterol is around 7 so it just shows you. No after effects
Investigator1
in
Vasculitis UK
2 months ago
Covid Vulnerability- Baricitinib vs Rituximab
Hi All, I’m in a bit of a dilemma and would welcome opinions on my current situation. I have recently been invited for a Covid vaccination due to being on Rituximab. I don’t really want to have the jab. I have had 3 Pfizer vaccs since 2020 but none since early 2022 as the last jab resulted in a big
Hi All, I’m in a bit of a dilemma and would welcome opinions on my current situation. I have recently been invited for a Covid vaccination due to being on Rituximab. I don’t really want to have the jab. I have had 3 Pfizer vaccs since 2020 but none since early 2022 as the last jab resulted in a big
Claireybee
in
NRAS
2 months ago
Inflammation and mood
Did anyone hear this on bbc radio 4 yesterday afternoon? https://www.bbc.co.uk/programmes/m001z6pj I think this is the one I heard yesterday but it links treatment with biologics with improved mood. For me the first sign that my rituximab needs to be renewed is feeling low, a malaise. Happy to hear
Did anyone hear this on bbc radio 4 yesterday afternoon? https://www.bbc.co.uk/programmes/m001z6pj I think this is the one I heard yesterday but it links treatment with biologics with improved mood. For me the first sign that my rituximab needs to be renewed is feeling low, a malaise. Happy to hear
cathie
in
NRAS
2 months ago
Rituximab effects
I've given consent to try Rituximab after Prednisolone isn't getting ra under control. I've learnt will be 4/5 hour infusion at hospital. And clothing tip, and food tips thanks peeps. Question is. Can I go to and from hospital by public transport or do I have to have someone collect me? Thanks everyone
I've given consent to try Rituximab after Prednisolone isn't getting ra under control. I've learnt will be 4/5 hour infusion at hospital. And clothing tip, and food tips thanks peeps. Question is. Can I go to and from hospital by public transport or do I have to have someone collect me? Thanks everyone
SALI
in
NRAS
2 months ago
What would you do??
My wife's niece who lives in the northern part of Alberta is coming too Ontario for the months of August and September. She has asked to stay with us as we are the closest to where her treatment will be. It will be just her and her husband. My quandary is that both have never had any covid vaccinations
My wife's niece who lives in the northern part of Alberta is coming too Ontario for the months of August and September. She has asked to stay with us as we are the closest to where her treatment will be. It will be just her and her husband. My quandary is that both have never had any covid vaccinations
rcusher
in
CLL Support
2 months ago
Ibrutinib VS V&O
Hi everyone I am looking for some clarity here. I started IMBRUVICA a few years ago and all is well so far thank goodness. What I’m wondering is: it seems from what I’ve gathered here that V and O is fixed term and causes remission back to watch and wait while those of us on IMBRUVICA are on it indefinitely
Hi everyone I am looking for some clarity here. I started IMBRUVICA a few years ago and all is well so far thank goodness. What I’m wondering is: it seems from what I’ve gathered here that V and O is fixed term and causes remission back to watch and wait while those of us on IMBRUVICA are on it indefinitely
GettinThruIt
in
CLL Support
2 months ago
cytoxan
has anyone declined cytoxan and had success with cellcept in treating kidney injury? My son has had Eculizumab and Rituximab with no success and is now declining rapidly with kidney function.
has anyone declined cytoxan and had success with cellcept in treating kidney injury? My son has had Eculizumab and Rituximab with no success and is now declining rapidly with kidney function.
Vegitarianmom
in
Parents of Children with Kidney Disease
2 months ago
Brainfog while I wait for next rituximab infusion is bothering me. I feel unsteady and forgetful
It seems to be worse these days, even though I'm sleeping a bit better than have been. But while rituximab has been great for me, the irregularity of getting the infusions every 8 months or so makes life more difficult than if I was on a regular self injection. I'm interested in other peoples experience
It seems to be worse these days, even though I'm sleeping a bit better than have been. But while rituximab has been great for me, the irregularity of getting the infusions every 8 months or so makes life more difficult than if I was on a regular self injection. I'm interested in other peoples experience
cathie
in
NRAS
2 months ago
Bendamustine
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
Hi Male from 1946. Diagnosed for CLL in 1995. 2013 : Leukeran + Rituximab In 2021 I received only 1 cycle of Bendamustine (90) + Rituximab. No further cycles because of hemolyse. 2024 Now possibly Venetoclax + ? Appointment with oncologist next friday. Not much of a help. Best regards,
dickcll
in
CLL Support
2 months ago
reaction to rituximab
At the beginning of January I had my first 2 infusions of rituximab - all went well but for the first 6 weeks there was no change with my RA. Then at the beginning of March my feet, hands, elbows and face were covered with blisters - saw the GP who sent me away saying it was a reaction to the rituximab
At the beginning of January I had my first 2 infusions of rituximab - all went well but for the first 6 weeks there was no change with my RA. Then at the beginning of March my feet, hands, elbows and face were covered with blisters - saw the GP who sent me away saying it was a reaction to the rituximab
LoveActuall
in
NRAS
2 months ago
rituximab
how long do people find that it takes to feel significantly better after rituximab infusion. It is now 6 weeks since my first infusion and I’m not feeling any better yet. My wrist is so painful I can’t do much at all which is very frustrating.
how long do people find that it takes to feel significantly better after rituximab infusion. It is now 6 weeks since my first infusion and I’m not feeling any better yet. My wrist is so painful I can’t do much at all which is very frustrating.
MartinJM
in
NRAS
2 months ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
2 months ago
Dry throat and skin & headaches after Rituximab infusions
Hi there, I'm wondering if anyone else has experienced these symptoms after Rituximab infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth. But since that first dose 5 months
Hi there, I'm wondering if anyone else has experienced these symptoms after Rituximab infusions? I've just had the second dose after the first infusions 5 months ago. I had a mild reaction both times on the first of two infusions: tingly, scratchy throat and mouth. But since that first dose 5 months
Han1
in
NRAS
3 months ago
belimumab Infusions
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great
MaryannM
in
LUPUS UK
3 months ago
Rituximab
I have been on Rituximab for 4 yrs now since stopping Tocilimab . I have an elderly adopted cat l have not experienced any problems from him passing to me or me to him. I have had nothing but good results from the 2 infusions six monthly l am also on 10mg of methotrexate injections weekly and a maintenance
I have been on Rituximab for 4 yrs now since stopping Tocilimab . I have an elderly adopted cat l have not experienced any problems from him passing to me or me to him. I have had nothing but good results from the 2 infusions six monthly l am also on 10mg of methotrexate injections weekly and a maintenance
Retirednhs
in
NRAS
3 months ago
Rituximab
I had my first infusion of Rituximab two weeks ago which went very smoothly. I am due my second dose tomorrow. Unfortunately I managed to pick up a cough/cold five days ago. Does anyone know if I will be able to go ahead with the treatment ? I haven’t been able to ask due to the weekend and will just
I had my first infusion of Rituximab two weeks ago which went very smoothly. I am due my second dose tomorrow. Unfortunately I managed to pick up a cough/cold five days ago. Does anyone know if I will be able to go ahead with the treatment ? I haven’t been able to ask due to the weekend and will just
Pange63
in
NRAS
3 months ago
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