Thanks to everyone for info, advice and support re. Rituximab. The hospital have just called to say MDT agreed to my having these infusions.
Treatment should start within a month xx
Thanks to everyone for info, advice and support re. Rituximab. The hospital have just called to say MDT agreed to my having these infusions.
Treatment should start within a month xx
Good luck and hope it works great for you. 🙏
Good Luck..Hope it works as well for you as it did for me. X
👏🏻 great news 🤞🏻 for you
Good news! I hope it works as well for you as it does for me 👍
hoping it works well for you - but be patient- it takes a while for full effect - at least it did for me!
Good luck. 🤞
That’s great! Hope it works really well for you.
That's brilliant! Hope it works for you.
Hope it all goes well.
Good luck with your new treatment regime .
Rituximab works like a miracle for me, I can go a year between infusions & they’ve given me my pain free life back… I really hope it works as well for you 🤞🏼🙏🏻Xx
Good luck Sali, hope it all goes well, I also start Monday 10th June (2weeks!!) 🤞
Hi
Hope it's effective for you! How long did it take between them first recommending it as an option and being told you can have it?
I was sent for a chest X Ray and blood tests on the day my consultant suggested it - mid April - but not heard anything since.
Had an ultrasound appt booked in meantime and the guy seemed quite shocked at the inflammation. Said it shouldn't be like that.
Still heard nothing so I left a message with the helpline and have got a tel appt for next week so hopefully something can be done soon as I'm really struggling. Under two eye clinics now as well and wondering if there's more going on, like Sjogren's, maybe.