Experiences with

Cerebrovascular disease

Good news … after 2 weeks at 25mgs pred, my markers are back to “normal”, ie CRP at 2 and ESR is 8. I have had two TCZ jabs a week apart, so could this have already created the masking effect, which had waned with the 4 weekly jabs? Now to begin the taper: 20mgs for 2 weeks and then 17.5 x 2 etc.

Hello lovely people, I posted last week about my 9 year old daughter being diagnosed with autoimmune hypothyroidism. I received some great support from this community and wonder whether you could perhaps offer me some further wisdom please. It transpires that she also has a cortisol level that is just

Hi, My dad just got an update on his PSA #. 3 weeks ago his PSA was 0.37, our family went on vacation, and he just got back and had his blood work done again. All enzymes normal, but PSA ticked up slightly to 0.47. Is this concerning at all? I thought PSA was suppose to trend to undetectable levels

I have AIH/PBC and Barrett’s oesophagus I have been in remission for about 18months , interested to hear how long anyone else has stayed in remission? I am still on 3mg budesonide, mycophenolate and urso and numerous other tablets, unfortunately I am getting a lot of IBS does anyone else suffer with

Hi everyone, I’m 48 & was diagnosed with IC & Hunners ulcers after having a bladder lift in 2005 & having the mesh fall apart & get stuck in my pelvic floor wall. The mesh was of course toxic and did a number on my bladder as well. I tried EVERYTHING you could imagine & kept track of when pain would

Day +14: I am presently unhooked from my medication pole. It is a great feeling to be able to be more mobile around my “suite”. Accommodations here quite nice considering what most hospital rooms are like. it has been a rough go with a certain amount of nausea, lack of energy, and G.I. situations

Primary analyses from this phase 3 clinical trial of the investigational, subcutaneous infusion of levodopa/carbidopa (LD/CD) (ND0612) showed that treatment in doses of up to 720 mg/90 mg per day, supplemented with oral levodopa provided almost 2 additional hours per day of “Good On” time without troublesome

Hi, I wonder if anyone could offer some words of wisdom, I had an ultrasound yesterday and the sonographer said I had some fat in my liver, nothing to worry about. A week for results to GP. Phone call today from receptionist for urgent bloods, in a week and appt with GP, in 2 weeks. Asked to speak to

rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of

good morning, just to let use know I had my liver scan and got results early, so was told am now compensated from decompensated which is great and apperently have been for months because am not yellow and ascites have gone 🤷‍♀️ meld score down to 12, so all is good news, am done with google I honestly

hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.

Psa at dx 139. Orgovyx and Nubeqa dropped it to 62.93 Started Docetaxil #1 Psa 23.91 #2 Psa 11.41 #3 Psa 7.15 #4 Psa 4.15 #5 Psa 2.38 #6 Psa 1.66 MO wanted to continue to 8. I agreed . There was a 6 week delay before #7. I took a Psa test right before 7 and it had dropped to 0.841 pleasantly

Has anyone experienced Monotherapy - LDR Brachytherapy , without , EBRT or ADT . for Grade1 ( Gleason Score 3+3=6 Prostate Cancer ? OR LDR With EBRT Only ?

I think some of you already know that mom has contractures post her accident and cant move much. Recently her PT said - get her some muscle relaxant and omg what a difference. But i cant give it everyday. Please advise what folks are doing for stiffness and muscular issues please. She does get a massage

Laurie Mischley authored... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9961646/#abstract-a.l.b.stitle Results from this pilot study contribute to a growing body of evidence that PD is not a brain disease, but a systemic metabolic syndrome with disrupted cellular energetics and function in peripheral

I am on a low calorie high protien diet, and have been using protien powder to supplement my diet. However I have become aware of articles saying that one of the ingredients ( Soy Lecithen ) is believed to interfere with thyroid hormone production ! What are people's thoughts on this, as I am very

hello, I went to the GP today to discuss concerns about drinking. I’ve cut down significantly but am concerned about having already done irreversible damage. Historically my results have always been normal (last blood test in March). She said that if gamma-gt is normal, cirrhosis is unlikely, but did

hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because thats the only thing that has changed since my last blood work is I am now doing injections not just oral liquid sublingual. thank you for any

In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another

when i was DX 7 years ago, my AST levels were at around 30. my oncologist hasn't said much about the fluctuations, which have gone up to 50 on occasion. so when i went to see my GP who worked in oncology in another country, told me that i have mild fatty liver, i was shocked as i was obviously unaware