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No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
9 months ago
I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
Mark1499
in
My MSAA Community
11 months ago
sjogrens
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Hi Everyone, Diagnosed last Nov with PBC. 2 weeks ago I started getting a really bad taste in mouth and some dry mouth. The taste is terrible ! How do you treat this to get rid of taste? Does anyone have Sjogrens w/ PBC? What are the symptoms? How is this treated? I see my doc in Oct. Thanks
Samanthaann
in
PBC Foundation
11 months ago
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visual disturbances and eye problems
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are open and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with
Loobyloo1966
in
Functional Neurological Disorder - FND Hope
11 months ago
visual snow and fibromyalgia
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and white static vision. I’ve have issues with my eyelids not automatically opening too. Migraines are most likely linked but not the reason. It’s bizarre
Loobyloo1966
in
Fibromyalgia Action UK
11 months ago
Tapering - have I got it wrong?
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
Hi. I am a new member and this is my first post. Diagnosed with PMR in March 2023, started on 15mg of pred on 31st March. It worked like a dream and within 48 hrs, my pain was down 70% and my energy was up 70%. I felt fantastic and within a month started slowly to increase my level of exercise and activity
EnyaBlue
in
PMRGCAuk
11 months ago
What's your experience of coming of steroids
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
So I have my rheumatology appointment next week so hopefully will get a better understanding of what's going on. In the meantime I am on mycophenalate and a weaning dose of prednisolone for eye inflammation, started with 800mg in December and am now on 2.5mg before stopping in 2 months time. However
Autolupus
in
LUPUS UK
11 months ago
brain fog!
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
hi there, last year I had a closed angle glaucoma. I had little warning, thr blood pressure in my right eye suddenly shot up to 80 and I was temporarily blind in that eye. I had a week’s stay in hospital and an operation to bring the pressure down. It is amazing that I have retained quite a bit of
Belladoodle
in
Glaucoma UK
11 months ago
New Diagnosis: Right Eye Normal Pressure Glaucoma.
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Apparently two yrs ago at my previous eye test with photos of the back of my eye, a note was made that there seemed to be something going on with the optic nerve. I wasn't informed. At my last eye test the new optician reported the same and told me of the previous photo. She referred me to the hospital
Timesarrow
in
Glaucoma UK
11 months ago
Ectropion eye
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Has anyone any advice on ectropion eye? I have glaucoma and diplopia and have been advised to have an operation to tighten the bottom eyelid. This is on my good eye, so I am rather nervous about it.
Tequilasunrise
in
Glaucoma UK
11 months ago
Got a job interview. Plus my top 3 choice for therapists in my homecity. Overthinking the decisions
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Okay so yesterday was a mayhem. Mom decided to clean while she's off work and got the house upside down, before that the night before that telling sis over and over again to drink water and telling me to tell her. Sis was avoiding me, asked me to stay in the car instead in the café with her, yelled at
Against_the_current
in
Anxiety and Depression Support
16 days ago
Ex is going to the Netherlands next week. I'm stuck in what help i should get. I have dissosiated and headache
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Had headache, fell asleep, had nightmares about dad, woke up panicking, searched therapists and psychiatrists but i can't choose nor pay, texted my ex, he said he's going back to the Netherlands next week. Almost puked. Mom came home, stressed. I wonder whether to travel to see him for the last time
Against_the_current
in
Anxiety and Depression Support
21 days ago
EYES DRY, ITCHY, BURNING, TEARING
My eyes have changed over the last few weeks. They are so dry, but I use eye gel. Tearing at random, blurry when reading. Feels scratchy and like there's somethinf in them. Eye drops help for less than an hour. When reading I find myself inadvertently closing my right eye, left eye is better. Yesterday
My eyes have changed over the last few weeks. They are so dry, but I use eye gel. Tearing at random, blurry when reading. Feels scratchy and like there's somethinf in them. Eye drops help for less than an hour. When reading I find myself inadvertently closing my right eye, left eye is better. Yesterday
Missus835
in
PMRGCAuk
11 months ago
EMDR THERAPY
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
kanzler1987
in
Anxiety and Depression Support
2 months ago
does it ever completely go away?
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
Kalee55
in
Heal My PTSD
2 months ago
Update
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
AlexaMac
in
Endometriosis UK
11 months ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
11 months ago
Longtime glaucoma patient
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Dougalldoo
in
Glaucoma UK
11 months ago
Cosopt eye drops
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
Charliecat123
in
Glaucoma UK
1 year ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
11 months ago
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