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Anyone familiar with DNMT3A?
Hi everyone, hope all is well with everyone! Btw some updates about my mpn, I’ve just got my results from NGS test recently, as a result got my jak2 and DNMT3A positive, so now I’m confirmed primary myelofibrosis and 5 days ago I’ve gone through routine endoscopy (as a result ligation in several spots
Hi everyone, hope all is well with everyone! Btw some updates about my mpn, I’ve just got my results from NGS test recently, as a result got my jak2 and DNMT3A positive, so now I’m confirmed primary myelofibrosis and 5 days ago I’ve gone through routine endoscopy (as a result ligation in several spots
Dan39
in
MPN Voice
2 years ago
Parodies for PSP-CBD
February 28th is Worldwide Rare Disease Day. https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DYe8K9VfHIJ4%26feature%3Dshare%26fbclid%3DIwAR3f7KcW_AvfmkMKJUaTrCIAsoY3rvick0Di9Fdmm5Qwh8y9gfO9b1PM87I&h=AT2e7EmfleRrg2aluzrMPbVdhGim5eT2U2owAv_CsUWEgZCdmnByUm--5BipP0qh2RJWx_KByw8jlQim-mvb_WoZl6TK_DSJvkdwAi4
February 28th is Worldwide Rare Disease Day. https://l.facebook.com/l.php?u=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DYe8K9VfHIJ4%26feature%3Dshare%26fbclid%3DIwAR3f7KcW_AvfmkMKJUaTrCIAsoY3rvick0Di9Fdmm5Qwh8y9gfO9b1PM87I&h=AT2e7EmfleRrg2aluzrMPbVdhGim5eT2U2owAv_CsUWEgZCdmnByUm--5BipP0qh2RJWx_KByw8jlQim-mvb_WoZl6TK_DSJvkdwAi4
daddyt
in
PSP Association
2 years ago
New post about Itch
I wonder if
CBD
might help, orally and topically? Is it true that the itch comes and goes, or once it starts it never goes away? Some people say it gets worse in the evenings and at night time but they don't feel it so much during the day. Why would that be?
I wonder if
CBD
might help, orally and topically? Is it true that the itch comes and goes, or once it starts it never goes away? Some people say it gets worse in the evenings and at night time but they don't feel it so much during the day. Why would that be?
KatherineM_PBC
in
PBC Foundation
2 years ago
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Cocktail a cause perhaps?
I’ve been on Prednisolone for 2 years this month starting at 15mg steadily going down until January when I stopped at 1mg . It wasn’t long before I had to back up to 5 mg . I am also on weekly Risondodate for bone protection as well as two blood pressure tablets 15mg candesartan and 2.5 mg indapamide
I’ve been on Prednisolone for 2 years this month starting at 15mg steadily going down until January when I stopped at 1mg . It wasn’t long before I had to back up to 5 mg . I am also on weekly Risondodate for bone protection as well as two blood pressure tablets 15mg candesartan and 2.5 mg indapamide
Loveopera
in
PMRGCAuk
2 years ago
Case Review at Major Teaching Hospital Part 2
To the 3 people that responded to my original post, thank you. The case review was at best a complete failure and waste of my time and gas money. Never mind the stress before, during, and after. I had emailed the 8 sets of lab work & tests including the two done last month. I called June 3 to ensure
To the 3 people that responded to my original post, thank you. The case review was at best a complete failure and waste of my time and gas money. Never mind the stress before, during, and after. I had emailed the 8 sets of lab work & tests including the two done last month. I called June 3 to ensure
irishponies
in
Vasculitis UK
2 years ago
After the Wedding trip to USA I am now in hospital!
After a wonderful trip , feeling really good, I gradually felt tired and “strange “ over the next 2 days . I took my blood pressure and found it was much higher than usual so phoned 111. When the Dr phoned me it was even higher and he said I should go to A&E and was admitted. I’ve had lots of tests and
After a wonderful trip , feeling really good, I gradually felt tired and “strange “ over the next 2 days . I took my blood pressure and found it was much higher than usual so phoned 111. When the Dr phoned me it was even higher and he said I should go to A&E and was admitted. I’ve had lots of tests and
KerryIreland
in
PMRGCAuk
2 years ago
Rollercoaster Ride - MPN
Hi Everyone, I know I don’t post on here all the time but I do think it helps me to rationalise my thoughts My story - April 2020 I found out: - I had Varices Grade 4 - Portal Vein Thrombosis and collaterals - Jax2 Positive I was then treated for ET MPN as my platelet count was high. After over 12
Hi Everyone, I know I don’t post on here all the time but I do think it helps me to rationalise my thoughts My story - April 2020 I found out: - I had Varices Grade 4 - Portal Vein Thrombosis and collaterals - Jax2 Positive I was then treated for ET MPN as my platelet count was high. After over 12
FAM_KT
in
MPN Voice
2 years ago
Getting up at night to go to the toilet
Hi every night I have to get up at least once to go to the toilet. I put on my oxygen but by thr time I get back to my bed I am so short of breath it will take 10 minutes to get my breathing under control sufficiently to take off my oxygen. I get into bed and it will take another 5/10 minutes to get
Hi every night I have to get up at least once to go to the toilet. I put on my oxygen but by thr time I get back to my bed I am so short of breath it will take 10 minutes to get my breathing under control sufficiently to take off my oxygen. I get into bed and it will take another 5/10 minutes to get
barbs47
in
Lung Conditions Community Forum
2 years ago
Autoimmune lung disease?
Anyone know anything about it? I had never heard of it, but it is one of the diagnosis they are currently looking at. I have been ill since the second vaccine, high blood pressure, veins popping, my other 7 autoimmune conditions much worse, high heart rate, and now my legs give up after a few yards
Anyone know anything about it? I had never heard of it, but it is one of the diagnosis they are currently looking at. I have been ill since the second vaccine, high blood pressure, veins popping, my other 7 autoimmune conditions much worse, high heart rate, and now my legs give up after a few yards
serenfach
in
Thyroid UK
2 years ago
ADMire Ablation
The below article may be of interest. Point is improved procedures are being developed. If link does not work I can copy and paste though article is fairly long. EP's from across the globe attended this conference. https://www.statesman.com/story/news/healthcare/2022/06/09/austin-becomes-global-draw-doctors-learning-heart-arrhythmia
The below article may be of interest. Point is improved procedures are being developed. If link does not work I can copy and paste though article is fairly long. EP's from across the globe attended this conference. https://www.statesman.com/story/news/healthcare/2022/06/09/austin-becomes-global-draw-doctors-learning-heart-arrhythmia
mav7
in
Atrial Fibrillation Support
2 years ago
Experiences with Cyclophosphamide
My Consultant is considering adding a course of cyclophosphamide to my treatment plan. I am reading as much as I can about it but am keen to know how people felt if they have had the drug. - how did you feel after each infusion, how long did it take after each infusion to feel better - did you find
My Consultant is considering adding a course of cyclophosphamide to my treatment plan. I am reading as much as I can about it but am keen to know how people felt if they have had the drug. - how did you feel after each infusion, how long did it take after each infusion to feel better - did you find
SnowSeeker19
in
LUPUS UK
2 years ago
Regarding PMR and trial and error tips from meds to sleep.
Covid closed all the walk in clinics, practices closed all over.i have been taking Tylenol Extra Strength,,Advil mini gels, Tylenol Arthritis and high strength
CBD
oil.
Covid closed all the walk in clinics, practices closed all over.i have been taking Tylenol Extra Strength,,Advil mini gels, Tylenol Arthritis and high strength
CBD
oil.
TheVortex
in
PMRGCAuk
2 years ago
Vein of Marshall 6 wk Followup
Because of my scheduling today was my follow up for my Vein of Marshall ablation. It has been almost 6 weeks. Good news I am in perfect sinus rhythm and have already been removed from Multaq. as of today. I have been very down because I am still having issues breathing and walking with the same type
Because of my scheduling today was my follow up for my Vein of Marshall ablation. It has been almost 6 weeks. Good news I am in perfect sinus rhythm and have already been removed from Multaq. as of today. I have been very down because I am still having issues breathing and walking with the same type
DawnTX
in
AF Association
2 years ago
Is your Afib regular and in between you are ok?
Does anybody have Afib regularly, say every 14 days but between that time you are ok. My Afib is not a fast heartbeat type. I am just irregular. It’s lasts about 3 days. After a night I can exercise and my heart rate may go occasionally up to 160, it goes back down when I stop. This is the only way I
Does anybody have Afib regularly, say every 14 days but between that time you are ok. My Afib is not a fast heartbeat type. I am just irregular. It’s lasts about 3 days. After a night I can exercise and my heart rate may go occasionally up to 160, it goes back down when I stop. This is the only way I
Lucybod
in
AF Association
2 years ago
Reactions to Flecainide and Amiodarone?
I am so glad to find this forum. Really validating to see how incredibly different people’s experiences with Afib are and the willingness to share. I’ve been in Afib persistently for a little over three months now. It returned several months after my first cardioversion, and hasn’t stopped except
I am so glad to find this forum. Really validating to see how incredibly different people’s experiences with Afib are and the willingness to share. I’ve been in Afib persistently for a little over three months now. It returned several months after my first cardioversion, and hasn’t stopped except
JumpingDo
in
AF Association
2 years ago
Pacemaker with a leaky valve?
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
BainaiThai_1_2
in
Advanced Prostate Cancer
2 years ago
Share your experience of CBD
We understand how important it is to talk to and read about other peoples' experiences of
CBD
.
We understand how important it is to talk to and read about other peoples' experiences of
CBD
.
HelenPSPA
in
PSP Association
2 years ago
Digoxin again (and again)
Long story but after being on digoxin for just under a fortnight I began to feel ill : violent palpitations, high heart rate, diarrhoea ( frequent) and generally feeling terrible. Consulted gp who told me it was a bug but he’d write to cardiologist and if I didn’t hear anything after ten days to phone
Long story but after being on digoxin for just under a fortnight I began to feel ill : violent palpitations, high heart rate, diarrhoea ( frequent) and generally feeling terrible. Consulted gp who told me it was a bug but he’d write to cardiologist and if I didn’t hear anything after ten days to phone
jd2004
in
AF Association
2 years ago
? To denerve or not to denerve?!
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
I’ve had preliminary local anaesthetic jabs, one side, (no steroid) in lower facet joints via pain management clinic. This is to try to identify whether it would be valuable to try denervation. Really hard for me to isolate the pain and to know how effective they were over approx. a 24 hour period.
Gillyflower70
in
NRAS
2 years ago
A Role of Thyroid Hormones in Acute Myocardial Infarction: An Update
Yet again, cardiac people seem ahead of too many endocrinologists. The last sentence of this abstract says so much: [i]The implications for the identification of the effects of thyroid disease on acute myocardial infarction include the observation that restoration of normal thyroid function repeatedly
Yet again, cardiac people seem ahead of too many endocrinologists. The last sentence of this abstract says so much: [i]The implications for the identification of the effects of thyroid disease on acute myocardial infarction include the observation that restoration of normal thyroid function repeatedly
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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