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Newbie here, tests/symptoms suggest PA or AAG
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Pante
in
Pernicious Anaemia Society
2 years ago
Needed LDL Cholesterol lowering ideas naturally
Hi everybody. I am getting side effects of taking for 4 years of Statins. My medicine side effects are weakness, fatigue, Low Immunity Power so I would like to give LDL lowering medicine. I tried Omega 3 Fish oil but it reduced my only Triglycerides to normal level and increased my HDL and my LDL is
Hi everybody. I am getting side effects of taking for 4 years of Statins. My medicine side effects are weakness, fatigue, Low Immunity Power so I would like to give LDL lowering medicine. I tried Omega 3 Fish oil but it reduced my only Triglycerides to normal level and increased my HDL and my LDL is
rameshadhikari
in
Cholesterol Support
2 years ago
medication trials and headaches!
hello all, I’m back, maybe a year after first joining and asking about advice pro and con medication for our 8 year old son. we did a few trials over the summer, none of them positive but just before school started we tried focalin and it seemed to actually help. Fast forward a couple of weeks and
hello all, I’m back, maybe a year after first joining and asking about advice pro and con medication for our 8 year old son. we did a few trials over the summer, none of them positive but just before school started we tried focalin and it seemed to actually help. Fast forward a couple of weeks and
Vintagecollector
in
CHADD's ADHD Parents Together
2 years ago
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I don't know what to do :(
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
I was diagnosed with an underactive thyroid back in 2018. I assume it's autoimmune related as my anti body score was 410.8 but it's never been stated as such. My mum also has an underactive thyroid which I think is the main reason they started me on levothyroxin in the first place; 2 years before in
BluePumpkin
in
Thyroid UK
2 years ago
High cholesterol particularly LDL
I have been diagnosed with high LDL in 2006 and put on Crestor 10mg OD since that time, now suffering from muscle pain allover the body particularly on back and sholders mudcles. I would appreciate if someone could advise his experience with natural food or herb which can help in reducing or getting
I have been diagnosed with high LDL in 2006 and put on Crestor 10mg OD since that time, now suffering from muscle pain allover the body particularly on back and sholders mudcles. I would appreciate if someone could advise his experience with natural food or herb which can help in reducing or getting
Waise
in
PBCers Organization
2 years ago
Ferritin that will not raise - what to investigate?
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
liaratsoni
in
Thyroid UK
2 years ago
Intrinsic Factor Test
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Sean2310
in
Pernicious Anaemia Society
2 years ago
Keto, Eggs and PD Meds
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
So I decided that Keto was the way forward. Tried it when I was first DXed for 4 weeks but didn’t help. I probably expected too much in too little time. Anyway, 7 years later and I’m ready for the ‘big push’. Got my larder full of erithytol, almond flour, Keto snacks, MCT oil. Yesterday I had a breakfast
jeeves19
in
Cure Parkinson's
2 years ago
Could ET mask a diagnosis of Vitamin B12 deficiency/Pernicious anaemia?
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
Cb1001
in
MPN Voice
2 years ago
Testing coming up
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
kushami36
in
Pernicious Anaemia Society
2 years ago
Castor oil pack for urinary strictures
Tonight my husband decided to try the
castor
oil
pack to help with PC radiation related urinary strictures. He has a suprapubic catheter. After the pack he was bleeding at the catheter insertion site. Has anyone had this experience?
Tonight my husband decided to try the
castor
oil
pack to help with PC radiation related urinary strictures. He has a suprapubic catheter. After the pack he was bleeding at the catheter insertion site. Has anyone had this experience?
Stressbaker
in
Advanced Prostate Cancer
2 years ago
AFIB and Fish Oil Supplementation
Very interesting research noted on Consumerlab.com: "All these studies focused on people at increased cardiovascular risk, although an observational study in the UK found that even among people WITHOUT cardiovascular disease, fish oil supplementation was associated with a higher risk of ATRIAL FIBRILLATION
Very interesting research noted on Consumerlab.com: "All these studies focused on people at increased cardiovascular risk, although an observational study in the UK found that even among people WITHOUT cardiovascular disease, fish oil supplementation was associated with a higher risk of ATRIAL FIBRILLATION
Kingst
in
AF Association
2 years ago
GP refusing to offer IFAB Test
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
cloudspotting
in
Pernicious Anaemia Society
2 years ago
Questions & Advice for a newbie please!
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Spiralizer
in
Pernicious Anaemia Society
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
acetone reflux with peppermint oil caps
I think it’s called acetone it’s like the smell of nail varnish remover when I take two Peppermint Oil Caps with a cold drink Not every time but some After around 10 mins of taking I burp what I can only describe as nail polish remover taste/smell it’s very strange but I’m in no discomfort I take with
I think it’s called acetone it’s like the smell of nail varnish remover when I take two Peppermint Oil Caps with a cold drink Not every time but some After around 10 mins of taking I burp what I can only describe as nail polish remover taste/smell it’s very strange but I’m in no discomfort I take with
Arpin
in
IBS Network
2 years ago
TSH reduced but still high levels of inflammation
Hi, I was wondering if anyone could offer insight into my recent results?I received these results today and have an appointment to speak to her next week. Currently on 100mg thyroxine now but although my TSH levels have reduced, symptoms of fatigue, aches and pains etc seem to be worse than ever and
Hi, I was wondering if anyone could offer insight into my recent results?I received these results today and have an appointment to speak to her next week. Currently on 100mg thyroxine now but although my TSH levels have reduced, symptoms of fatigue, aches and pains etc seem to be worse than ever and
Holiday74
in
Thyroid UK
2 years ago
B12 next steps - advice please
Hi - I have also posted this in the Pernicious Anaemia section but I know there is also some good knowledge within this group too. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had
Hi - I have also posted this in the Pernicious Anaemia section but I know there is also some good knowledge within this group too. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had
GW1000
in
Thyroid UK
2 years ago
IFA negative, Low Active B12 - advice please.
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
Hi - a brief update and request for advice on B12. I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted
GW1000
in
Pernicious Anaemia Society
2 years ago
MDS is Doubling down on nutrition and lifestyle
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
LeharLover62
in
Cure Parkinson's
2 years ago
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