Hi - I have also posted this in the Pernicious Anaemia section but I know there is also some good knowledge within this group too.
I have autoimmune hypothyroidism. Following a disappointing Endo appointment I wrote a detailed email to request an appointment with the Consultant as I felt I hadn’t had the chance to discuss my concerns properly with her junior. This was granted and I have been offered a trial of T3 - not started yet.
Informed by this forum I was also concerned about my B12 but was told they were unable to do any further tests as my serum B12 was normal. So I have privately tested for Intrinsic Factor antibodies (negative) and Active B12 (below range).
I’ve had (I think..) full blood count done by the NHS - all normal, the other thing Medichecks recommend is a methylmalonic acid (MMA) test.
I think I just need a bit of reassurance as to what to do next. I will contact both my GP and the Endo about the private test results and ask for an MMA test. Both admit to knowing little about B12. Am I likely to be able to get a test or will it require another referral to someone who does know about B12 ?! Should I be asking about anything else?
Immediately after doing the private tests I started taking sublingual B12 (4 days ago). Will this affect an MMA test? Should I stop taking it just now?
My folate is also low so I was intending to also start taking a B Complex in a week or so. Think I will hold off on that just now.
Any comments welcome - thank you!
Active B12 36 pmol/L (37.5 - 188)
Folate 12.4 nmol/L (8.83 - 60.8)
Intrinsic Factor Antibodies 1.05 AU/mL
<1.2 Negative
1.2 - 1.53 Borderline
>1.53 Positive(Range: < 1.2)