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AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
5 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
21 days ago
Finally passed a kt/v test
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
RonZone
in
Kidney Dialysis
7 months ago
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Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
7 months ago
Biopsy for hcc and cirrhosis
hello everyone. Did anyone with HCC have a biopsy? I read somewhere that they dont usually do biopsies after mri and ct and ultrasound but my partner has been told he is having a biopsy next week. Just wondered how many of you had to have this and how did you feel after . Thank you
hello everyone. Did anyone with HCC have a biopsy? I read somewhere that they dont usually do biopsies after mri and ct and ultrasound but my partner has been told he is having a biopsy next week. Just wondered how many of you had to have this and how did you feel after . Thank you
pussycat66
in
British Liver Trust
7 months ago
Fibroscan CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
There are a few things that I don’t understand about Fibroscan CAP scores. I have looked at the NICE 49 full guideline which can be found here: https://www.nice.org.uk/guidance/ng49/evidence/full-guideline-pdf-2548213310 Fibroscan CAP scores are discussed in detail on pages 62 to 74; the CAP scores
mickeymouse42
in
British Liver Trust
7 months ago
Can IBS lead to other conditions?
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
HiAfter having ibs most of my adult life it has, I believe led to an autoimmune condition. Leaky gut then migraines and all the time the link was gluten. Gluten free now and have been for over 3 years, dairy free too for over 2 years, private tests have led to this very restrictive diet. FODMAPDIET didn't
penelope2
in
IBS Network
5 months ago
Scan results
got af in august and lv was 35 percent.finally had mri results been waiting since November. It says ejection fraction is 51 percent what does this mean . Thanks
got af in august and lv was 35 percent.finally had mri results been waiting since November. It says ejection fraction is 51 percent what does this mean . Thanks
Jarvo977
in
AF Association
4 months ago
Prednisolone and blood thinners
As well as having PMR I also have Atrial Fibrillation. I am currently on 6mg of prednisolone.My GP is reluctant to prescribe a DOAC blood thinner for the Afib, because he says there is a risk of gastric bleeding.I am friendly with two retired GP's who are both of the opinion that this shouldn't be an
As well as having PMR I also have Atrial Fibrillation. I am currently on 6mg of prednisolone.My GP is reluctant to prescribe a DOAC blood thinner for the Afib, because he says there is a risk of gastric bleeding.I am friendly with two retired GP's who are both of the opinion that this shouldn't be an
Seamab
in
PMRGCAuk
4 months ago
Misdiagnosis
I am reasonably new to this site and have found it incredibly useful and informative. However, I recently received a bombshell, in that I have possibly been misdiagnosed with AF. I visited my GP at the end of September in 2023 with severe palpitations and given three ECGs. Two of these were viewed by
I am reasonably new to this site and have found it incredibly useful and informative. However, I recently received a bombshell, in that I have possibly been misdiagnosed with AF. I visited my GP at the end of September in 2023 with severe palpitations and given three ECGs. Two of these were viewed by
Maglyn
in
AF Association
4 months ago
continuous AF ?
hi everybody, I’m 63 and have always kept myself pretty fit and healthy. I’m 5’8’ and 10 stone.I lead an active life, running around my little farm place, riding horses etc Always on the go at 90mph! My diet is healthy, most of it homegrown. I do/did enjoy a glass of white wine in the evenings with
hi everybody, I’m 63 and have always kept myself pretty fit and healthy. I’m 5’8’ and 10 stone.I lead an active life, running around my little farm place, riding horses etc Always on the go at 90mph! My diet is healthy, most of it homegrown. I do/did enjoy a glass of white wine in the evenings with
Canteringon
in
AF Association
4 months ago
Beta blockers making me feel awful after 13 yrs ?
hello can anyone advise please I have paramoxol af , have had 2 ablations, and treating a bit they couldn’t do at the time with meds , flecinide 50 mg , Bisopropol 2.5 in morning 50mg flecinide bisoprolol 1.25 evening, have had no side effects for 13 yrs , but for months now I have been experiencing
hello can anyone advise please I have paramoxol af , have had 2 ablations, and treating a bit they couldn’t do at the time with meds , flecinide 50 mg , Bisopropol 2.5 in morning 50mg flecinide bisoprolol 1.25 evening, have had no side effects for 13 yrs , but for months now I have been experiencing
Prosecco1997
in
Atrial Fibrillation Support
4 months ago
Latest Prostate Cancer News from ESMO23
For those interested in the outcomes of recent prostate cancer trials or those just curious about the current thinking on 'where to next' the latest GU Cast podcast from Declan Murphy is well worth watching. The presentation is ‘peppered’ with conversation from the various speakers interviewed that
For those interested in the outcomes of recent prostate cancer trials or those just curious about the current thinking on 'where to next' the latest GU Cast podcast from Declan Murphy is well worth watching. The presentation is ‘peppered’ with conversation from the various speakers interviewed that
marnieg46
in
Advanced Prostate Cancer
7 months ago
vitamin d advice please
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
I’m sub clinic apparently. I plan to start V D but my first look at what’s available is confusing. Is there more than one V D as I see some are called D3? Is the RDA amount available or do you just take lots to make it up. I’m 61 female with AI rheumatoid conditions and veggie.
Stills
in
Thyroid UK
5 months ago
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
New blood pressure procedure is ‘game-changing’ for people with uncontrolled hypertension, say doctors. Procedure reduces blood pressure without medications, say experts:‘Important step forward’ People with treatment-resistant hypertension could benefit from a new procedure that the FDA recently approved
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
7 months ago
Confused about how all the different PCa drugs work?
This recent article (Oct 2023) has a nice high level diagram that organizes the more common prostate cancer drugs and their mechanism of action. Scroll down to Figure 1. De Novo Metastatic Prostate Cancer: Are We Moving toward a Personalized Treatment? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605467
This recent article (Oct 2023) has a nice high level diagram that organizes the more common prostate cancer drugs and their mechanism of action. Scroll down to Figure 1. De Novo Metastatic Prostate Cancer: Are We Moving toward a Personalized Treatment? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10605467
skiingfiend
in
Advanced Prostate Cancer
7 months ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
stress related relapse?
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
CathyMeg
in
PMRGCAuk
4 months ago
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