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Sjogren's Syndrome
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Was diagnosed with PMR 3 years ago. Under control at moment and injections down to monthly. Has anyone on this site gone on to develop Sjogren's Syndrone with PMR?
Bothan
in
PMRGCAuk
5 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
4 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
4 months ago
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What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus?
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
What are the options for splitting the dose of Low Dose Naltrexone (LDN)to treat Sjogrens and Lupus? Answered by Sebastian Denison, RPh https://youtu.be/izCwZrpqJlg
Shewulf
Administrator
in
LDN Research Trust
5 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
What other tests
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
Hi all. Other than ANA which obviously indicates an autoimmune condition (I'm highly positive) And I have many symptoms of what I feel is Lupus. I'm just wondering what tests are available once referred to rheumatology. So I am armed with Knowledge and don't get fobbed off. Is there anything further
JCM1992
in
LUPUS UK
5 months ago
Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
7 months ago
New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
5 months ago
Serum cortisol test results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
J972
in
Thyroid UK
7 months ago
Ablation
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
Midnight2022
in
Atrial Fibrillation Support
4 months ago
Advice post ablation
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
afhanhound
in
Atrial Fibrillation Support
4 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
5 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
7 months ago
Currently in phase 1 but promising: Bispecific Antibody Programs and IL-12 Cytokine, XmAb662
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
Maxone73
in
Advanced Prostate Cancer
7 months ago
Australian research - possible cure?
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
MusicalFurbaby
in
LUPUS UK
5 months ago
Flecainide without Beta-Blocker
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Peg99
in
Atrial Fibrillation Support
4 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
INSURANCE DENIED - STAGE 4 BREAST CANCER
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
Srikalakm
in
Breast Cancer India
4 months ago
I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
katiepops2004
in
LUPUS UK
5 months ago
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