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1st Palliative Care Appt.
I've had quite a week! Monday had ureter stent exchange, under anesthesia, Tues the C-Pap guy stopped by to bring me an oxygen tester, and then Wed my husband joined me for my first, in over 18 years as an MBC patient, appt with the Palliative Care Physician Asst. We went to that appt expecting a "
I've had quite a week! Monday had ureter stent exchange, under anesthesia, Tues the C-Pap guy stopped by to bring me an oxygen tester, and then Wed my husband joined me for my first, in over 18 years as an MBC patient, appt with the Palliative Care Physician Asst. We went to that appt expecting a "
PJBinMI
in
SHARE Metastatic Breast Cancer
2 years ago
Treatment
Does anyone have experience with Xeloda?Oncologist wants that for next trial but reading all side effects is scary.Also Ihave to see oncogist monthly and Palliative care nurse monthly and only get enough meds.cor 15days I am seeing someone every 2 wks! that feels extremeand than add Pcp and Dedmatologist
Does anyone have experience with Xeloda?Oncologist wants that for next trial but reading all side effects is scary.Also Ihave to see oncogist monthly and Palliative care nurse monthly and only get enough meds.cor 15days I am seeing someone every 2 wks! that feels extremeand than add Pcp and Dedmatologist
LastRoadTrip
in
SHARE Metastatic Breast Cancer
2 years ago
So what do I do now?
Got through 4 docetaxel cycles. But by then I had: Burnt out vein from 1st cycle Sore tongue and mouth (since 1st cycle) Difficulty thinking Feet tender with balls of feet numb and heels too sore to wear shoes Fingers numb to point where I couldn’t pick things up Cramps in evening in hands and
Got through 4 docetaxel cycles. But by then I had: Burnt out vein from 1st cycle Sore tongue and mouth (since 1st cycle) Difficulty thinking Feet tender with balls of feet numb and heels too sore to wear shoes Fingers numb to point where I couldn’t pick things up Cramps in evening in hands and
Miccoman
in
Advanced Prostate Cancer
2 years ago
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Aplastic anaemia? Managing stress and uncertainty- free online course, starts Aug 18
Sign up now to join our Managing Stress Course https://www.theaat.org.uk/Event/managing-stress-and-uncertainty We are so excited to tell you about a new 12-week course that our sister charity the Aplastic Anaemia Trust are running in collaboration with Maggie's for people affected by aplastic anaemia
Sign up now to join our Managing Stress Course https://www.theaat.org.uk/Event/managing-stress-and-uncertainty We are so excited to tell you about a new 12-week course that our sister charity the Aplastic Anaemia Trust are running in collaboration with Maggie's for people affected by aplastic anaemia
DC_motheranddaughter
Partner
in
DC Action
2 years ago
Been for my appointment at the LGI today
Hi everyone well I’ve been to the Lgi today to see my cardiologist. It was a bit of an emotional appointment as I have made the decision not to go through transparent. There are more cons than pros for me. It will be palliative care now. All my checks today looked good and he was pleased with my weight
Hi everyone well I’ve been to the Lgi today to see my cardiologist. It was a bit of an emotional appointment as I have made the decision not to go through transparent. There are more cons than pros for me. It will be palliative care now. All my checks today looked good and he was pleased with my weight
buddy2blue
in
British Heart Foundation
2 years ago
Got PSMA SCAN Results-Now What?
In 2020 my PSA started to rocket up from a 4 at the beginning of the year to a 15.9 at year end. A biopsy was performed. On March 5, 2021 I received the results which indicated adenocarcinoma prostate cancer, with three Gleason score 8s and two 9s. On March 19 of that year a whole-body bone scan was
In 2020 my PSA started to rocket up from a 4 at the beginning of the year to a 15.9 at year end. A biopsy was performed. On March 5, 2021 I received the results which indicated adenocarcinoma prostate cancer, with three Gleason score 8s and two 9s. On March 19 of that year a whole-body bone scan was
Skippy3
in
Advanced Prostate Cancer
2 years ago
Pain management alternatives
“Things I learned along the way” … in the event this may help others, I thought I’d share … If you or your loved one is struggling a great deal with pain, you may want to consider 1) having a pain pump placed 2) acupuncture. As my Jeff’s pain became harder to manage with his drug regimen, we were referred
“Things I learned along the way” … in the event this may help others, I thought I’d share … If you or your loved one is struggling a great deal with pain, you may want to consider 1) having a pain pump placed 2) acupuncture. As my Jeff’s pain became harder to manage with his drug regimen, we were referred
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Brain damage
Mum in Icu for the past 3 weeks. Totally unexpected shock, she had chest pains and got taken in ambulance with suspected heart attack. Turned out to be a tear in her aorta. Had emergency surgery. The damage went from the top of her legs to her neck/head. When they operated they noticed damage to the
Mum in Icu for the past 3 weeks. Totally unexpected shock, she had chest pains and got taken in ambulance with suspected heart attack. Turned out to be a tear in her aorta. Had emergency surgery. The damage went from the top of her legs to her neck/head. When they operated they noticed damage to the
Cmc87
in
Headway
2 years ago
Medical Marijuania
I saw my Palliative Care doctor yesterday and she was very concerned about my 8 lb weight loss in one month. She has put me on medical marijuania to help boost my appetite. I can't stand looking at food let alone eating it. It is also to help my extreme pain from cancer in my spine. This is in addition
I saw my Palliative Care doctor yesterday and she was very concerned about my 8 lb weight loss in one month. She has put me on medical marijuania to help boost my appetite. I can't stand looking at food let alone eating it. It is also to help my extreme pain from cancer in my spine. This is in addition
Gram10
in
SHARE Metastatic Breast Cancer
2 years ago
Palliative Care Easy Information:
I found this to be a really good read : Short and informative. I filled out the questionnaire and definitely qualify. I am going to pursue it with my oncologist. My pain management person has already suggested it. https://getpalliativecare.org/whatis/disease-types/breast-cancer-palliative-care
I found this to be a really good read : Short and informative. I filled out the questionnaire and definitely qualify. I am going to pursue it with my oncologist. My pain management person has already suggested it. https://getpalliativecare.org/whatis/disease-types/breast-cancer-palliative-care
Mary115
in
SHARE Breast Cancer Support
2 years ago
Help with letter
Please can someone direct me to a template for a
support
letter from my
carer
for my claim for PIP. Thanks in advance
Please can someone direct me to a template for a
support
letter from my
carer
for my claim for PIP. Thanks in advance
Lainey1959
in
Fibromyalgia Action UK
2 years ago
trip to safari park
We were also charged full price for a second
carer
as my son requires 2:1
support
when out in the community. To get a discount for a second carer, I was asked for written evidence that he needs 2:1 support. His blue badge was not enough.
We were also charged full price for a second
carer
as my son requires 2:1
support
when out in the community. To get a discount for a second carer, I was asked for written evidence that he needs 2:1 support. His blue badge was not enough.
Lucacielle
in
Autism Support
2 years ago
Decision time. Input welcome
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Miccoman
in
Advanced Prostate Cancer
2 years ago
Still in shock,
Hello, the above says it all. Last October my husband of 30+ years went out to play table tennis and never came back. Long story short, an undiagnosed heart condition. Then 4 days after his funeral I was told the long Covid I thought I was suffering from was in fact advanced and incurable lung cancer
Hello, the above says it all. Last October my husband of 30+ years went out to play table tennis and never came back. Long story short, an undiagnosed heart condition. Then 4 days after his funeral I was told the long Covid I thought I was suffering from was in fact advanced and incurable lung cancer
Red00
in
The Roy Castle Lung Cancer Foundation
2 years ago
Help
Wondering if anyone can give me any information. My 21 year old daughter with AIH has had a transplant 5 years ago through negligence which I won't go into it's a real long story. Seeing as she was misdiagnosed the need for transplant was an emergency which in turn caused mental health issues. We have
Wondering if anyone can give me any information. My 21 year old daughter with AIH has had a transplant 5 years ago through negligence which I won't go into it's a real long story. Seeing as she was misdiagnosed the need for transplant was an emergency which in turn caused mental health issues. We have
Worriedparent33
in
British Liver Trust
2 years ago
Glioblastoma Caregiver
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
My wife, 77, and I learned on March 30, 2022 that she has gliobllastoma. We have no idea what we are facing. Life expectancy? Surgery? Medications? Palliative care? We wish to learn and receive, as well as offer, support to others also facing this disease.
Piper16
in
Glioblastoma Support
2 years ago
Talking about wee and poo webinar with ERIC
Our next parent &
carer
webinar on toileting and how to
support
children's bowel and bladder health is happening on June 8th.
Our next parent &
carer
webinar on toileting and how to
support
children's bowel and bladder health is happening on June 8th.
ERIC-Charity
Partner
in
ERIC
2 years ago
Steroid use in Glioblastoma Battle
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Good Morning Everyone. I was just wondering what kind of steroid doses people are on for countering the swelling on the brain around the tumour. My dad (a 78 year old diagnosed in October) had to stop radiotherapy 5 sessions into a course of 15 in January after an initially successful debulking. We cut
Hast23388
in
Glioblastoma Support
3 years ago
Other experiences of late stage glioblastoma
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
My husband of thirty years who is a little older than me and in his mid 60s has glioblastoma. He began hospice and palliative care at home in mid-October and they didn’t think he would make Christmas. He has done really well but I am exhausted. The cancer is definitely taking hold of him now. He sleeps
Endstage
in
Glioblastoma Support
3 years ago
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