Kind Folk of Our Forum,
Last night I replied to "Running on Empty" as have done many of you..
I have been hiding my situation which is Very Similar to her sadly..
My husband has Stage 3 Aggressive Bladder Cancer and just a few friends on here know my situation in detail..
Sand Dancer being the beautiful soul she is, has supported me hugely..
Steve Australia with MPN Mates has also been of support along with Our Dear Biggles author, Peter...
Maz has and is as Always a Ray of Sunshine, Hope and Inspiration to All of us..
My reason for not posting back in May was rather silly in some respects when I think about it..
Whenever I have posted this Forum has always responded with generosity.
And I always thank individually, I didn't think I was up to the job this time around.
I simply couldn't believe that in 16 months of becoming a member firstly with ET then May 18 I got the MF Diagnosis my world crumpled at that point in time..
Fast forward to the Friday May 17th this year and my husband was told he had Bladder Cancer exactly One year to the day, Black Friday I call it..
We are going through his first round of treatment, last one tomorrow..
Then in October he will have Surgery again and if the treatment is slowing the Cancer he will receive another cycle of 4 treatments..
If it's Not working he has made the Decision to Not have Invasive Surgery and would definitely not have the Bladder Removed..
His elder brother had the same type of Cancer and he lived for 16 miserable months with Chaemotherapy, Radiotherapy and eventually his Bladder Removed..
My husband doesn't want to end his days like that, it's not for him and who can blame him..
Thus our Roles have reversed from hubby being my support system to me being Carer, Head Cook and Bottle Washer in a manner of speaking..
With MF there are bad days, and they are hard to overcome as I'm sure we can all testify to..
Sand Dancer Lesley has a wonderful Enthusiasm for Life and Moving Forward..
In fact her husband has published a book a Crime Novel titled,
"From the Past" and it's very good, I have found it difficult to put down..
Talented family, but put it down I did last night to read the Weekly Round Up from Voice..
Glad I did for then I read the Post and replied to the lady and from that came a Reply to me on a Theoretical Question ? How many folk have 2 people living with Cancer in their home,? I must say now rather Selfish of me or Naieve one of the two for sure!
I received a Reply from Garstongal this morning and her story is so much worse than my situation.
My heart goes out to her and the family involved especially with two small boys her grandsons having just lost their Daddy and now she and her daughter are faced with her husband being so ill..
Life can be very cruel and this family have had devastation rip through their lives..
Which is my reason for posting today,
" No matter how bad we think we have it, there is someone Worse Off than yourself " it's quite true..
I wish both these ladies All the Very Best and my Thoughts are with them..
I thank those that have known about us from the beginning for their support, I am truly blessed to have their support..
Whatever guides us definitely picks it's victims and timeing..
Last year for me was a Nightmare, ET MF on the Friday before Royal Wedding (Harry and Meghan ) on the Saturday a letter told me I very possibly had Breast Cancer I had Surgery in June and waited with bated breath for the All Clear in July..
I was glad to see 2018 over but hey ho we are off again this time it's the hubby..
That's the Brass Tacks of it and Maz has been wonderful as she is with All of Us..
Steve in Oz advised me to share on Voice months ago, I declined and neither did I share on his endeavours of MPN Mates Australia..
No matter where it is, help and research into the One thing that Unites us our particular flavour of MPN..
Let us hope that those who come behind us have better options open to them..
I will be attending London on the
16th November and look forward to it with Enthusiasm..
Absolutely gutted there isn't a Newcastle Forum this year, I was looking forward to my flight up North and 2 nights in the County Hotel with good old fashioned manners for guests, especially single female traveller I felt very safe indeed last year..
Hopefully someone will take over the role that Dr Johnathan Wallis has left..
I must check on the Fastnet Race on his Endeavours in Aid of MPN's...
Big shoes to fill that one, not easy for any candidate I suspect to perform so well at Forums very nice and knowledgeable Doctor with great Empathy for patients..
It's just London for me this year, maybe put faces to names of the generous folk on this Forum..
Whatever is going on with you, I hope you have a good Monday and to those In Need, I hope you get the Help you so Deserve... 😊