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Just to introduce myself
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Winner123
in
SHARE Metastatic Breast Cancer
3 years ago
Im new and need advice
Do I have the right to make him leave his home when I find somewhere or does he have to be evicted to make him homeless he will be very upset and stressed and so will I - any advice or will adult social care need to get involved he has no
support
or
carer
other than me thanks Gill
Do I have the right to make him leave his home when I find somewhere or does he have to be evicted to make him homeless he will be very upset and stressed and so will I - any advice or will adult social care need to get involved he has no
support
or
carer
other than me thanks Gill
gillpowell
in
Mencap
3 years ago
Palliative care and intervential radiologist
Good morning to All: I have been reading all of your posts nightly. There has been so many changes with all of you lately. I will try to fill you in. I am now in palliative care . I didn't really understand what this entailed. There is a group of doctors pharmacists nurses social workers etc that
Good morning to All: I have been reading all of your posts nightly. There has been so many changes with all of you lately. I will try to fill you in. I am now in palliative care . I didn't really understand what this entailed. There is a group of doctors pharmacists nurses social workers etc that
Shelby4now
in
SHARE Metastatic Breast Cancer
3 years ago
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Is high dose b 12 safe
Palliative care Doctor suggested products from Millennium to counteract bran fog, extremely high dose b 12, other ingredients riboflavin, pantothenic acid, thiamin. Any feedback? Link to product: https://millenniumhealthstore.com/collections/shop/products/b-is-for-brain Link home page https://millenniumhealthstore.com
Palliative care Doctor suggested products from Millennium to counteract bran fog, extremely high dose b 12, other ingredients riboflavin, pantothenic acid, thiamin. Any feedback? Link to product: https://millenniumhealthstore.com/collections/shop/products/b-is-for-brain Link home page https://millenniumhealthstore.com
Bigpike
in
Advanced Prostate Cancer
3 years ago
Help as an appointee?
I am looking for family/
carer
support
and advice for those caring for adults with learning disabilities. My older brother has learning disabilities and autism and, as a family, we are his appointee for his finances (including his benefits).
I am looking for family/
carer
support
and advice for those caring for adults with learning disabilities. My older brother has learning disabilities and autism and, as a family, we are his appointee for his finances (including his benefits).
h1e90
in
Mencap
4 years ago
ASD and ADHD support groups
Hello, I wondered if there are any
carer
support
groups near Edenbridge, kent I could join. My daughter is currently awaiting an assessment for ASD and ADHD and I feel completely overwhelmed and would love to find other parents in my area who could give me some advice on how best to support her.
Hello, I wondered if there are any
carer
support
groups near Edenbridge, kent I could join. My daughter is currently awaiting an assessment for ASD and ADHD and I feel completely overwhelmed and would love to find other parents in my area who could give me some advice on how best to support her.
cogsyd
in
Mencap
4 years ago
Expert event - carers
This event is now closed, but please read Suzette's posts for advice and information about being a
. There is also lots of
support
for carers on the Carers UK website here - https://www.carersuk.org/ Best wishes Sarah
This event is now closed, but please read Suzette's posts for advice and information about being a
. There is also lots of
support
for carers on the Carers UK website here - https://www.carersuk.org/ Best wishes Sarah
Sarah_Mencap
Administrator
in
Mencap
3 years ago
Some helpful advice
My husband has been diagnosed with lung cancer at a very advanced stage which is also in his chest and lymph nodes diagnosed late February and been told there is no cure he is currently receiving 12 days of radiotherapy in to his gullet which is definitely taking its toll on him. With a bone scan also
My husband has been diagnosed with lung cancer at a very advanced stage which is also in his chest and lymph nodes diagnosed late February and been told there is no cure he is currently receiving 12 days of radiotherapy in to his gullet which is definitely taking its toll on him. With a bone scan also
Bai72
in
The Roy Castle Lung Cancer Foundation
3 years ago
Treatment end
So yesterday was advised that scan shows progression in the lung and a liver met. Treatment is not helping so discontinued. Carry on now with palliative care. In some ways I’m relieved but also feeling a bit lost.
So yesterday was advised that scan shows progression in the lung and a liver met. Treatment is not helping so discontinued. Carry on now with palliative care. In some ways I’m relieved but also feeling a bit lost.
mundy
in
The Roy Castle Lung Cancer Foundation
3 years ago
Struggling to be positive
At home with Stage 4 NSCLC with brain mets. Palliative care only. At first I was ok just trying to make the most of each day but finding it harder and harder to do this. Thinking about how long I’ve got , how fast I’ll deteriorate and how death will be Don’t know how to lift myself out of this
At home with Stage 4 NSCLC with brain mets. Palliative care only. At first I was ok just trying to make the most of each day but finding it harder and harder to do this. Thinking about how long I’ve got , how fast I’ll deteriorate and how death will be Don’t know how to lift myself out of this
Debs0768
in
The Roy Castle Lung Cancer Foundation
4 years ago
Nearing the end
This picture was just one month ago when Joe went to Vienna for cell balancing treatment and he looked AMAZING so it’s hard to believe just a month later- here we are. Joe refuses to go on hospice, but we have a palliative care doctor (who is also a hospice physician) who comes to our home. We are no
This picture was just one month ago when Joe went to Vienna for cell balancing treatment and he looked AMAZING so it’s hard to believe just a month later- here we are. Joe refuses to go on hospice, but we have a palliative care doctor (who is also a hospice physician) who comes to our home. We are no
joekaty
in
Advanced Prostate Cancer
4 years ago
Short of breath again
I was recently in hospital for 5 days, very short of breath on admission. For the last few days, I've been short of breath again. One of our GPs came out to see me at home on Friday, & diagnosed a chest infection & prescribed antibiotics. I'm feeling fed up with being short of breath, feeling discouraged
I was recently in hospital for 5 days, very short of breath on admission. For the last few days, I've been short of breath again. One of our GPs came out to see me at home on Friday, & diagnosed a chest infection & prescribed antibiotics. I'm feeling fed up with being short of breath, feeling discouraged
Di16
in
My Ovacome
4 years ago
Dad still on ventilator with no improvement
Hi, I have just recently joined this site to find some hope in the current situation I am in (and many others are in) and not sure what to do. My dad (66 yrs) has been in ICU for around 5 weeks and on a ventilator. Overall his health and lifestyle was generally good and he was active in the run up to
Hi, I have just recently joined this site to find some hope in the current situation I am in (and many others are in) and not sure what to do. My dad (66 yrs) has been in ICU for around 5 weeks and on a ventilator. Overall his health and lifestyle was generally good and he was active in the run up to
asb316
in
ICUsteps
4 years ago
Is a sore throat a GCA symptom?
I’m writing this for my mother and apologies in advance for the lengthy explanation. My mother was diagnosed with PMR in November. We think she probably had it for sometime but as my father was receiving full time palliative care at home we were not as aware of her health issues as my dad was so poorly
I’m writing this for my mother and apologies in advance for the lengthy explanation. My mother was diagnosed with PMR in November. We think she probably had it for sometime but as my father was receiving full time palliative care at home we were not as aware of her health issues as my dad was so poorly
Tillydog1
in
PMRGCAuk
4 years ago
Information about spinal cord compression.
Has anyone experienced a spinal cord compression or fracture? Can you share your experiences. Has anyone experienced what it means to prevent one. We know that getting an MRI to show the urgency of treatment is one thing and then the mention of surgery. We don't know what that means. Who handles this
Has anyone experienced a spinal cord compression or fracture? Can you share your experiences. Has anyone experienced what it means to prevent one. We know that getting an MRI to show the urgency of treatment is one thing and then the mention of surgery. We don't know what that means. Who handles this
Bluebird11
in
Advanced Prostate Cancer
4 years ago
Frustration
My mum lives with me and I am her full time
carer
,no other family for
support
. Adult social services said they would provide 3 half hour calls a day while I'm away however this worries me.
My mum lives with me and I am her full time
carer
,no other family for
support
. Adult social services said they would provide 3 half hour calls a day while I'm away however this worries me.
Tillytott54
in
PSP Association
3 years ago
In focus: approaches to symptom management - complementary therapies
Hello This month in our Health in Focus posts, we’re looking at some of the different approaches to management of cancer symptoms and side effects of treatment. Today we’ll look more closely at complementary therapies. We’ll also cover food and sleep in our future posts in the series. Complementary
Hello This month in our Health in Focus posts, we’re looking at some of the different approaches to management of cancer symptoms and side effects of treatment. Today we’ll look more closely at complementary therapies. We’ll also cover food and sleep in our future posts in the series. Complementary
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Nomination period for the 10,000 Voices Awards now open
As a positive role model, they may have shared their experience to provide inspiration and
support
to others.
As a positive role model, they may have shared their experience to provide inspiration and
support
to others.
HelenPSPA
in
PSP Association
3 years ago
In focus: approaches to symptom management - palliative and hospice care
Hello This month in our Health in Focus posts, we’re going to look at some of the different approaches to management of cancer symptoms and side effects of treatment. Today we’ll look in more detail at the help available from palliative care teams in hospitals and hospices. We’ll also cover complementary
Hello This month in our Health in Focus posts, we’re going to look at some of the different approaches to management of cancer symptoms and side effects of treatment. Today we’ll look in more detail at the help available from palliative care teams in hospitals and hospices. We’ll also cover complementary
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
New information and support for carers
Looking after someone - information and support for carers - https://www.carersuk.org/help-and-advice/get-resources/looking-after-someone
The guide outlines your rights as a
carer
and gives an overview of the practical and financial
support
available.
Looking after someone - information and support for carers - https://www.carersuk.org/help-and-advice/get-resources/looking-after-someone
The guide outlines your rights as a
carer
and gives an overview of the practical and financial
support
available.
Mencap_online_comms
Administrator
in
Mencap
3 years ago
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