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Small update on my Jeff
Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the hospital, they have suspended his cancer treatment. Currently, it’ll be at least Tuesday for discharge. Once he resumes the medication however, his oncologist authorized taking the Zytiga at night and the Prednisone in the
Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the hospital, they have suspended his cancer treatment. Currently, it’ll be at least Tuesday for discharge. Once he resumes the medication however, his oncologist authorized taking the Zytiga at night and the Prednisone in the
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
CHC fast track
Hi, we were contacted a few days ago to say my Nan has been granted fast track CHC funding to have care at home. We were extremely greatful and happy to finally have some help. The carer started yesterday and is a live in carer. But we feel really disheartened and feel my Nan’s needs won’t be met with
Hi, we were contacted a few days ago to say my Nan has been granted fast track CHC funding to have care at home. We were extremely greatful and happy to finally have some help. The carer started yesterday and is a live in carer. But we feel really disheartened and feel my Nan’s needs won’t be met with
StephWx
in
Multiple System Atrophy Trust
3 years ago
Docetaxel and Options Thereafter (NHS)
Hi everyone. We were informed last week that Dad now has liver involvement as our oncologist suspected there would be as he didn't make a decision quickly enough on his next treatment when she informed him he was resistant. He has now started on Docetaxel and had his first infusion last week. The question
Hi everyone. We were informed last week that Dad now has liver involvement as our oncologist suspected there would be as he didn't make a decision quickly enough on his next treatment when she informed him he was resistant. He has now started on Docetaxel and had his first infusion last week. The question
Hillwalker87
in
Advanced Prostate Cancer
3 years ago
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Giving new meaning to life following diagnosis
Julia also shares tips for getting
support
as a
carer
and the hobbies her and her husband started during the lockdown. Read the article in full from page 33 at https://pspassociation.org.uk/app/uploads/2021/07/A4_pspa-matters-issue-6_AW_low-res-spreads.pdf?
Julia also shares tips for getting
support
as a
carer
and the hobbies her and her husband started during the lockdown. Read the article in full from page 33 at https://pspassociation.org.uk/app/uploads/2021/07/A4_pspa-matters-issue-6_AW_low-res-spreads.pdf?
HelenPSPA
in
PSP Association
3 years ago
What is the difference between a support worker or carer?
Has anyone got a job description this is in a supported living setting
Has anyone got a job description this is in a supported living setting
Cakes2695
in
Mencap
3 years ago
Next step. Comments?
I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
I posted a couple of weeks ago. Please look at that plus bio for more background. After Taxotere (6 ending in Feb 2021), PSA went form 1100 (Aug 2020) to 8. From April 20 to July 10, my PSA has risen from 8 to 36. My Alk Phos has risen from 60 to 154. I have had some pain in my hips, sometimes bad, but
RunThru
in
Advanced Prostate Cancer
3 years ago
Fridays meeting with Nurse
Hello guys well you asked me to let you all know what happened on friday wasn’t what I expected I am now under the care of palliative care team; my breathing emphysema has got worse. I also have pick a hospice for my last days but for now I am at home. also the palliative care team are having some kind
Hello guys well you asked me to let you all know what happened on friday wasn’t what I expected I am now under the care of palliative care team; my breathing emphysema has got worse. I also have pick a hospice for my last days but for now I am at home. also the palliative care team are having some kind
Timetobreath
in
Lung Conditions Community Forum
3 years ago
Just saying, don't give up
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
Hi Ladies, I just want to say that never give up. I was diagnosed with stage 4 ovarian cancer with secondary in lung. That was the end of 2016. Had surgery, all the chemo's that they could give me, then out of options, nothing more to give me. I arranged my funeral, Wills done, I was seeing palliative
1032
in
My Ovacome
3 years ago
It’s NOT neuroendocrine or small cell!!!
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Jeff’s PSA has been trending up since March. As of today, it dropped by 166! It was 476 and today he’s at 310! Woot woot! We saw the oncologist and bone biopsy results were back. Jeff does NOT have neuroendocrine or small cell!!! Additionally, his liver levels have been elevated the last 2 checks
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Any Experiences with Palliative Care?
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
Any folks have experience with palliative care. I have had MBC for slightly over 5 years and currently taking Faslodex andt recently (4 months ago) added Ibrance. I've been given many painkillers from Tramadol to Oxy and even CBD and Medical Maraj. but all of them make my pain more intense. I'm miserable
sunnyday3
in
SHARE Metastatic Breast Cancer
3 years ago
About me
My name is Tracey and I'm 54 years old. I have 3 grown up children and 4 Grandchildren. I've worked in Social Care for over 23 years covering adults and children, Dementia, Mental Health, Learning Disabilities, Challenging Behaviour and Palliative Care. My hobbies include going to the gym, paddle
My name is Tracey and I'm 54 years old. I have 3 grown up children and 4 Grandchildren. I've worked in Social Care for over 23 years covering adults and children, Dementia, Mental Health, Learning Disabilities, Challenging Behaviour and Palliative Care. My hobbies include going to the gym, paddle
TraceyJCook
in
Mencap
3 years ago
CLL Society A patient Story: From color, such comfort!
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
AMG 509 personal update
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
Philly13
in
Advanced Prostate Cancer
3 years ago
Managing work with Fibro & CFS
Working as a
Support
Carer
for the council, providing
support
to those with Dementia in their own homes. A role I enjoy. I’ve worked in care for a few years now.
Working as a
Support
Carer
for the council, providing
support
to those with Dementia in their own homes. A role I enjoy. I’ve worked in care for a few years now.
PipPhilippa
in
Fibromyalgia Action UK
3 years ago
Ductal PCA - Avoid T.U.R.P. and Self Cath
I have serious pissing problems with this cancer and after DX last fall, a TURP was done in December. From that sample, pathology determined this beast to be a Ductal PCA, a very aggressive cancer. Pissing problems returned in March, and the answer was to perform another TURP. Radiation Doc
I have serious pissing problems with this cancer and after DX last fall, a TURP was done in December. From that sample, pathology determined this beast to be a Ductal PCA, a very aggressive cancer. Pissing problems returned in March, and the answer was to perform another TURP. Radiation Doc
DMohr011
in
Advanced Prostate Cancer
3 years ago
Stair Climbing Wheelchairs
I have an aggressive form of MSA and although I can manage a flight of 4 steps with the
support
of a
carer
it has been recommended that I get a stair lift ( installed by council at no expense to me).
I have an aggressive form of MSA and although I can manage a flight of 4 steps with the
support
of a
carer
it has been recommended that I get a stair lift ( installed by council at no expense to me).
Orla789
in
Multiple System Atrophy Trust
3 years ago
Last Legs Keytruda(Pemberolizumab)
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
DunandDusted
in
Advanced Prostate Cancer
3 years ago
Androgen receptor (AR) heterogeneity ... and therapy resistance
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
pjoshea13
in
Advanced Prostate Cancer
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
Hubby update, saw Hepatology Registrar
Hubby was very shocked at what she said. Hubby had a CT scan recently, it shows the lymph nodes in his lungs are stable, they are about 12mm in size. His liver is still Decompensated. She told hubby that his condition is very serious. She said that if he does not stop drinking, then he probably has
Hubby was very shocked at what she said. Hubby had a CT scan recently, it shows the lymph nodes in his lungs are stable, they are about 12mm in size. His liver is still Decompensated. She told hubby that his condition is very serious. She said that if he does not stop drinking, then he probably has
mumof3girls
in
British Liver Trust
3 years ago
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