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New information and support for carers
Looking after someone - information and support for carers - https://www.carersuk.org/help-and-advice/get-resources/looking-after-someone
The guide outlines your rights as a
carer
and gives an overview of the practical and financial
support
available.
Looking after someone - information and support for carers - https://www.carersuk.org/help-and-advice/get-resources/looking-after-someone
The guide outlines your rights as a
carer
and gives an overview of the practical and financial
support
available.
Mencap_online_comms
Administrator
in
Mencap
3 years ago
Volunteers needed for Medical Student Education
Dr Lucy Ziegler, Associate Professor in Palliative Care at the University of Leeds, is looking for volunteers to be a part of the Chronic Illness & Disability Project for first-year medical students. As a volunteer you will be matched with two or three first-year medical students via Zoom or an alternative
Dr Lucy Ziegler, Associate Professor in Palliative Care at the University of Leeds, is looking for volunteers to be a part of the Chronic Illness & Disability Project for first-year medical students. As a volunteer you will be matched with two or three first-year medical students via Zoom or an alternative
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
4 years ago
Food and nutrition for CLL
There are lots of things you can do with food and nutrition. My husband has CLL we were told there was nothing to do but wait and watch. Then 4 months later it transformed into a brain tumor. I was told to take him home and start palliative care. I started him on a crazy juicing program and we
There are lots of things you can do with food and nutrition. My husband has CLL we were told there was nothing to do but wait and watch. Then 4 months later it transformed into a brain tumor. I was told to take him home and start palliative care. I started him on a crazy juicing program and we
Abbysmom
in
CLL Support
4 years ago
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Richter’s Transformation - Update 27-01-2021
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
Priss69
in
CLL Support
4 years ago
My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
UniversallyPersonal
in
CLL Support
4 years ago
It’s been a week post Lu 177 #1
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
Cleodman
in
Advanced Prostate Cancer
4 years ago
Let's celebrate young carers
It can be hard to find time to fit everything in when you a
carer
. Most schools offer
support
for young carers, and many local carers centres run regular groups for young carers. These groups can be a vital lifeline, a chance to meet other young people who face similar challenges.
It can be hard to find time to fit everything in when you a
carer
. Most schools offer
support
for young carers, and many local carers centres run regular groups for young carers. These groups can be a vital lifeline, a chance to meet other young people who face similar challenges.
Mencap_online_comms
Administrator
in
Mencap
4 years ago
Quest for Lu 177 therapy 3.0
Hello everyone. My wife and I made it to Windsor, England this morning. Tomorrow we head to Oxford for my first PSMA PET CT. I hope that thing lights up fiercely or this will be a very sad and disappointing trip indeed. The trip was rough but we are glad we paid those insane fees for first class.
Hello everyone. My wife and I made it to Windsor, England this morning. Tomorrow we head to Oxford for my first PSMA PET CT. I hope that thing lights up fiercely or this will be a very sad and disappointing trip indeed. The trip was rough but we are glad we paid those insane fees for first class.
Cleodman
in
Advanced Prostate Cancer
4 years ago
Palliative care
I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hospital 3 times and am in at the moment. Been told no further treatment and palliative care team have been to see me. Devastated that I have not even had a year, now have to prepare for the end
I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hospital 3 times and am in at the moment. Been told no further treatment and palliative care team have been to see me. Devastated that I have not even had a year, now have to prepare for the end
Debs0768
in
The Roy Castle Lung Cancer Foundation
4 years ago
Starting Soon: Reducing Misery From Prostate Cancer: Palliative Care for Patients
https://youtu.be/4scjZAMtUyA Reducing Misery From Prostate Cancer: Palliative Care for Patients Pauline Filipou MD
https://youtu.be/4scjZAMtUyA Reducing Misery From Prostate Cancer: Palliative Care for Patients Pauline Filipou MD
Darryl
Partner
in
Advanced Prostate Cancer
4 years ago
Introducing myself to your Community.
As a newbie to this community, I am not new to to HU, as I have a large number of co-morbidity diagnoses, some of which have included the word ‘atrophy - ie. brain atrophy and muscle atrophy. I am exploring this trust forum to gain some more insight and understanding of your area of expertise and
As a newbie to this community, I am not new to to HU, as I have a large number of co-morbidity diagnoses, some of which have included the word ‘atrophy - ie. brain atrophy and muscle atrophy. I am exploring this trust forum to gain some more insight and understanding of your area of expertise and
Splodge60
in
Multiple System Atrophy Trust
4 years ago
Good news - Stage IIIB
Hi all, just wanted to share good news. I have had clear scan results today after being diagnosed with Stage IIIB, non small cell, adenocarcinoma in 2014, aged 43. My prognosis at the time was poor and I was told I was inoperable, terminal and treatable with palliative care. Discussions were around
Hi all, just wanted to share good news. I have had clear scan results today after being diagnosed with Stage IIIB, non small cell, adenocarcinoma in 2014, aged 43. My prognosis at the time was poor and I was told I was inoperable, terminal and treatable with palliative care. Discussions were around
Janey_H
in
Lung Cancer Support
4 years ago
Newbie. Advice needed
Hi, my mum has recently been diagnosed with Lung cancer. She has a tumour at the top of her right lung and two nodules on the left lung. She is inoperable. She got a biopsy last week and gets the results next week as to what stage it’s at and what the plan will be. The waiting is terrifying, she’s only
Hi, my mum has recently been diagnosed with Lung cancer. She has a tumour at the top of her right lung and two nodules on the left lung. She is inoperable. She got a biopsy last week and gets the results next week as to what stage it’s at and what the plan will be. The waiting is terrifying, she’s only
Christine2020
in
The Roy Castle Lung Cancer Foundation
4 years ago
Mum just been diagnosed with psp
My mum has been treated for Parkinson's for the past 5 years, but now is in hospital virtually paralysed and we have been told she doesn't have Parkinson's she has PSP. I'm looking for any help and advice . Mum can't swallow, is struggling to even open eyes. She will be on palliative care when she comes
My mum has been treated for Parkinson's for the past 5 years, but now is in hospital virtually paralysed and we have been told she doesn't have Parkinson's she has PSP. I'm looking for any help and advice . Mum can't swallow, is struggling to even open eyes. She will be on palliative care when she comes
BrackenandTasha
in
PSP Association
4 years ago
The difficult question most all of us will face (Part II)
Three months since I wrote Part I here: https://healthunlocked.com/advanced-prostate-cancer/posts/144050608/the-difficult-question-most-all-of-us-will-face. Let's Update. :) Shortly after the meeting with my new ONC I had a lesion on my C7 radiated. 13 weeks later I still have a cough. For 7 weeks
Three months since I wrote Part I here: https://healthunlocked.com/advanced-prostate-cancer/posts/144050608/the-difficult-question-most-all-of-us-will-face. Let's Update. :) Shortly after the meeting with my new ONC I had a lesion on my C7 radiated. 13 weeks later I still have a cough. For 7 weeks
dpowellnt
in
Advanced Prostate Cancer
4 years ago
ESLD end of life signs
Hi all My mum was recently admitted with alcoholic hepatitis. She is extremely unwell has Aki 3 renal insufficiency which improved but this had worsened again rapidly. She had refractory ascities draining 9litres every 3-4days but when they do this is completely throws her kidney function off.. her
Hi all My mum was recently admitted with alcoholic hepatitis. She is extremely unwell has Aki 3 renal insufficiency which improved but this had worsened again rapidly. She had refractory ascities draining 9litres every 3-4days but when they do this is completely throws her kidney function off.. her
DreamRn
in
British Liver Trust
4 years ago
Continuing Liver Drama
I joined this forum two or three years ago in an effort to obtain some feedback and understanding of some of the liver problems I had at the time which I could gain no knowledge of from the medics with whom I was involved. In that respect alone I have never been disappointed in you wonderful Forum
I joined this forum two or three years ago in an effort to obtain some feedback and understanding of some of the liver problems I had at the time which I could gain no knowledge of from the medics with whom I was involved. In that respect alone I have never been disappointed in you wonderful Forum
Splodge60
in
British Liver Trust
4 years ago
Here's the speaker/topic list
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art
Darryl
Partner
in
Prostate Cancer Network
4 years ago
Here's the speaker/topic list
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art
Darryl
Partner
in
Prostate Cancer Caregivers
4 years ago
Here's the speaker/topic list
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art Bell,
Free tickets for online prostate cancer patient conference. https://www.eventbrite.com/e/prostate-cancer-patient-conference-a-festival-of-prostate-cancer-care-tickets-118358165459 Keynote Patrick Walsh, MD, Johns Hopkins - Discoveries & Care Come from Listening to Your Patients Closing Art Bell,
Darryl
Partner
in
Prostate Cancer And Gay Men
4 years ago
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