carbidopa, levodopa and anal/rectal pain - Cure Parkinson's

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carbidopa, levodopa and anal/rectal pain

MissRita profile image
5 Replies

Hello all!

I know this might be a little bit of TMI for some of you, but I have to know if anyone of you out there has ever experienced severe anal/rectal pain from using carbidopa levodopa? Especially from the time you take it until the time it seems to start to work?

I have been on C/L since February 2021 and it’s basically the only thing that I can take (and I don’t take too much of it) after everything they had tried for the tremor/spasm failed. Now it seems like the tremor/spasm has either irritated or made my pudendal nerve worse (that is the area that is called the perineum or perineal area which I essentially nickname “the devils highway” lol) or it has begun to start to affect or irritate my anal/rectal area.

Additionally, a great deal of my tremor/spasm affects that lower region more so than anywhere else in my body.

Any information from anyone that has experience this would be greatly appreciated. Thanks.

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MissRita
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Sydney75 profile image
Sydney75

I would get a micro nutrient blood panel completed you may be deficient in a key nutrient that C/L exacerbates.

MissRita profile image
MissRita in reply to Sydney75

what kind of test is that and what kind of doctor would do it?

Sydney75 profile image
Sydney75 in reply to MissRita

We used a functional medicine MD (she is also a internist). It was called a micro nutrient panel by The MicroNutrient panel by Specta Cell Labs, they are in Houston TX. You may be able to find a provider thru their website. We also did urine test thru Great Plain but start with the blood tests first. I think the cost was about $300.

Speak with your Neuro movement specialist too, not just your GP. This is a bit strange. You may benefit from some of the PD add-on meds to address this symptom. Also make sure you do not have another underlying condition that the PD has exacerabated.

I am not sure if the article below is what your symptoms are, it may be informative.

Anorectal Manometric Dysfunctions in Newly Diagnosed,

Early-Stage Parkinson’s Disease*

chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/thejcn.com/Synapse/Data/PDF...

Sydney75 profile image
Sydney75 in reply to MissRita

We used a functional medicine MD (she is also a internist). It was called a micro nutrient panel by The MicroNutrient panel by Specta Cell Labs, they are in Houston TX. You may be able to find a provider thru their website. We also did urine test thru Great Plain but start with the blood tests first. I think the cost was about $300.

Speak with your Neuro movement specialist too, not just your GP. This is a bit strange. You may benefit from some of the PD add-on meds to address this symptom. Also make sure you do not have another underlying condition that the PD has exacerabated.

I am not sure if the article below is what your symptoms are, it may be informative.

Anorectal Manometric Dysfunctions in Newly Diagnosed,

Early-Stage Parkinson’s Disease*

chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/thejcn.com/Synapse/Data/PDF...

Hope it helps or leads you in the right direction.

Sydney75 profile image
Sydney75 in reply to Sydney75

sorry posted twice for some reason

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