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Flummoxed and in a Pickle 🙃🙂
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Hello from Australia 👋 I hope you're all coping and doing as well as you can. Sorry to barge in from the other side of the world but I have an English based query. I have triple negative Inflammatory beast cancer and nearing completion of about a year and a half of chemo with a mastectomy and
Freckle1000
in
My Breast Cancer Community
4 months ago
I have mutations, What is better ATM Frameshift Mutation Keytruda or Lymparza? Other? Liver Mets and Lung Nodules
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Starting Chemotherapy with I think Docetaxel and Cisplatin MO suggesting Immunotherapy
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Dana Farber 2nd opinion?
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in thoracic and lung area. Apparently, ribociclib (Kisqali) + exemestane didn't work at all. That is the last of the CDK4/6 inhibitors and ER inhibitors
TammyCross
in
SHARE Metastatic Breast Cancer
4 months ago
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ALC doubling time
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
I was diagnosed with CLL/SLL Jan 2023.i completed O and V March 8 th of this year. My most recent labs show that my ALC went from 2.45 in March to 4.8 with yesterday's labs. Almost all of my numbers are down. (Rbc'sHgb, hct, platlets) Throughout treatment my labs were close to within range except for
Shangonmom
in
CLL Support
4 months ago
Peeing , what to do?
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
My husband has had issues with peeing for years ( probably why stage 4 at diagnosis, cause blamed BPH) . He recently finished last chemo 3 weeks ago and is again noticing a change when peeing. Says that he feels a great deal of pressure towards the end of the pee stream and feels like the end of his
positive-thinking
in
Advanced Prostate Cancer
4 months ago
vaginal bleeding post bowel motion
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made notes and realised it was happening about twice a month (between periods), but I’ve had an increase in this recently. Not starting a period, and
PopcornPJ
in
Endometriosis UK
4 months ago
immunotherapy for OVCA
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian
Leniko
in
My Ovacome
4 months ago
How to say it
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
I just cancelled my upcoming appointment for next week. I am also due for Lupron infusion. How do I tell my well meaning MO that I will not be taking anymore infusions. I have been on it for almost two years this time. Why am I doing it? Because I feel miserable, the hot flashes, the sweat especially
Blueribbon63
in
Advanced Prostate Cancer
4 months ago
liver lesions
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy? Med change? My head is spinning.💔
BluHydrangea
in
SHARE Metastatic Breast Cancer
4 months ago
My Father died
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Its been 23 days since i asked here About CLL i got a lot of optimistic response and answers After my father had TP53 mutation with 17p Deletion i was told that my father wont respond to chemotherapy anymore i told my father that but his doctor insisted , a strong dose, it took 2 weeks my father
Ornate2001
in
CLL Support
4 months ago
ibrance
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised after 19 years. I was put on femara and Zometa. Then 2018 switched to ibrance , fasladex and Zometa. Oncologist retired so I went too Sloan. I ended
Jewelyn
in
SHARE Metastatic Breast Cancer
4 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
4 months ago
Secondary breast cancer
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
Has anyone had secondary breast cancer in the bones? I need some help and advice. I had breast cancer stage 3, 7 years ago. I’ve been having a pain in my bottom for a while. First I thought it was internal haemorrhoids but now it seems to be the whole left buttock and I am wondering if the cancer has
maddie50
in
My Breast Cancer Community
4 months ago
Video of my first SBRT
This link is to a video of my first SBRT treatment on April 29, 2024. Thought people might be interested. https://youtu.be/KtyxcqYOnVM The CyberKnife unit is locked on the fiducials in my prostate to within 0.1 to 0.2 mm (.004 to .008 in). The internal computer follows any movement the patient make
This link is to a video of my first SBRT treatment on April 29, 2024. Thought people might be interested. https://youtu.be/KtyxcqYOnVM The CyberKnife unit is locked on the fiducials in my prostate to within 0.1 to 0.2 mm (.004 to .008 in). The internal computer follows any movement the patient make
Worked_the_World
in
Advanced Prostate Cancer
4 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Long complicated paper on gut microbiome and PCa, human and mouse studies.
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
The gut microbiome-prostate cancer crosstalk is modulated by dietary polyunsaturated long-chain fatty acids Nature Communications volume 15, Article number: 3431 (2024) PMID: 38654015 PMCID: PMC11039720 DOI: 10.1038/s41467-024-45332-w Some snippets from the paper: ”Hypercaloric diets, such as
Graham49
in
Advanced Prostate Cancer
4 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
4 months ago
What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
4 months ago
interesting concepts (not applicable yet): Modulating extracellular matrix stiffness - a strategic approach to boost cancer immunotherapy
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
Maxone73
in
Advanced Prostate Cancer
4 months ago
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