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Flu Jab & Infection update!!!
Hi All Just a little update. I had my first infection and completed a course of antibiotics last tuesday. 2 days later I had a flare and had been of work since last friday. Went back today. I had to stop cimzia and I managed to take the antibioctics either side of mtx - I was hoping to cheat a
Hi All Just a little update. I had my first infection and completed a course of antibiotics last tuesday. 2 days later I had a flare and had been of work since last friday. Went back today. I had to stop cimzia and I managed to take the antibioctics either side of mtx - I was hoping to cheat a
sciqueen
in
NRAS
12 years ago
Cimzia side effects
Hi everyone- I don't get a chance to post on here very often but I've been reading the blogs and questions and the information on this site is priceless. Plus, I'm in the US and find the differences between the health care system here and NHS very interesting and informative. Anyway, I've
Hi everyone- I don't get a chance to post on here very often but I've been reading the blogs and questions and the information on this site is priceless. Plus, I'm in the US and find the differences between the health care system here and NHS very interesting and informative. Anyway, I've
lisag43
in
NRAS
12 years ago
Cimzia arrived today!
Was very excited - but when I opened the first box I started to feel sick with nerves! I have had to come off of Enbrel as it has stopped working for me (was wonderful for 2.5 years), Enbrel is easy as the injector pen does it all for you. Seeing actual injections is freaking me out, still waiting
Was very excited - but when I opened the first box I started to feel sick with nerves! I have had to come off of Enbrel as it has stopped working for me (was wonderful for 2.5 years), Enbrel is easy as the injector pen does it all for you. Seeing actual injections is freaking me out, still waiting
Lady_Jules
in
NRAS
12 years ago
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FIRST INFECTION ON CIMZIA!!!
Hi All Got my first infection since being prescribed cimzia. I have probably had it for about two wks, but its got sufficiently worse now that I am forced to stop the cimzia and had to seek medical attention. Gp prescribed amoxycillin 500mg yesterday and together with coco's I am managing the
Hi All Got my first infection since being prescribed cimzia. I have probably had it for about two wks, but its got sufficiently worse now that I am forced to stop the cimzia and had to seek medical attention. Gp prescribed amoxycillin 500mg yesterday and together with coco's I am managing the
sciqueen
in
NRAS
12 years ago
NOW magazine staff running the Royal Parks half marathon for NRAS - it would be great if you could sponsor/support them !
Hi everyone, I've not blogged for ages but I have been reading how everyone is doing and I'm glad to say that I have had very positive results after 2 cycles of Rituximab. Those that know me from old know that I had tried most things including CIMZIA anti-tnf with no improvement and after 3 years was
Hi everyone, I've not blogged for ages but I have been reading how everyone is doing and I'm glad to say that I have had very positive results after 2 cycles of Rituximab. Those that know me from old know that I had tried most things including CIMZIA anti-tnf with no improvement and after 3 years was
HarleySue
in
NRAS
12 years ago
BACK TO WORK!!!
Hi All Had a great holiday at totnes. Was very active and swam almost every day. Been back at work for two wks. It's alot better this time around as I have more energy and less fatigue due to cimzia. So I am hopeing to be well for longer, this autumn/winter. Saw the consultant at the end of
Hi All Had a great holiday at totnes. Was very active and swam almost every day. Been back at work for two wks. It's alot better this time around as I have more energy and less fatigue due to cimzia. So I am hopeing to be well for longer, this autumn/winter. Saw the consultant at the end of
sciqueen
in
NRAS
12 years ago
Can anyone offer info about the anti tnf Cimzia please?
Hello all, Thanks for all your helpful responses the last time I posted a question, it's really good to know there are so many people out there taking an interest. Hopefully, I will be treated with the anti tnf drug Cimzia in the next few weeks as I failed miserably with the D-mards. I have
Hello all, Thanks for all your helpful responses the last time I posted a question, it's really good to know there are so many people out there taking an interest. Hopefully, I will be treated with the anti tnf drug Cimzia in the next few weeks as I failed miserably with the D-mards. I have
Babyboolove
in
NRAS
12 years ago
Hi all..Can anyone help whats the info on Cimzia?
cowpat
in
NRAS
12 years ago
Sciqueen sends her regards.....
I have had a message from sci today, she has good news. She is doing that well on cimzia that they have reduced her mtx to 15mg. She is busy getting ready to go back to work next week and asked to pass on her news. She still pops in and reads the blogs,but she is so busy at the moment all she can do
I have had a message from sci today, she has good news. She is doing that well on cimzia that they have reduced her mtx to 15mg. She is busy getting ready to go back to work next week and asked to pass on her news. She still pops in and reads the blogs,but she is so busy at the moment all she can do
sylvi
in
NRAS
12 years ago
Is this 'normal' for RA??!!
Hi There I have had RA for nearly two years now. I have my good days and my bad, although usually they are 'in the middle'... as in, I've had worse, but had better!! Anyway, I always have some swollen/painful joints and I'm used to that now, and I used to feel abit washed out and tired, but recently
Hi There I have had RA for nearly two years now. I have my good days and my bad, although usually they are 'in the middle'... as in, I've had worse, but had better!! Anyway, I always have some swollen/painful joints and I'm used to that now, and I used to feel abit washed out and tired, but recently
CB43
in
NRAS
12 years ago
On Cimzia, CRP/ESR now near normal, so why are all my joints worse than ever? Anyone else had this?
In spite of good blood results for the first time in 15 months, RA is more active than ever, I feel really poorly, pain, swelling, stiffness, muscle weakness, mobility are all increasingly bad. Wondered if anyone else had had a similar experience? And is it likely to improve anytime soon?
In spite of good blood results for the first time in 15 months, RA is more active than ever, I feel really poorly, pain, swelling, stiffness, muscle weakness, mobility are all increasingly bad. Wondered if anyone else had had a similar experience? And is it likely to improve anytime soon?
Sailaway
in
NRAS
12 years ago
Feeling Miserable!!!
Hi I've been real busy and active. Almost like how I use to be. My biggest worry was what dress shall I wear today. It's almost like having 2 lives - when cimzia works it really work and I can almost forget that I've got ra, but it runs out, this time I got 11 days and I am now fed up of morning
Hi I've been real busy and active. Almost like how I use to be. My biggest worry was what dress shall I wear today. It's almost like having 2 lives - when cimzia works it really work and I can almost forget that I've got ra, but it runs out, this time I got 11 days and I am now fed up of morning
sciqueen
in
NRAS
12 years ago
ACHY SUNDAY!!!
Hi Have been real busy of late. Manage to walk the dog every evening without the use of the stick . We walk for about an hour or so and by the time we get back the dog and I are tired, but at least its excercise. Yesterday we went out for the whole day hubby & I. We had lunch went to the flicks
Hi Have been real busy of late. Manage to walk the dog every evening without the use of the stick . We walk for about an hour or so and by the time we get back the dog and I are tired, but at least its excercise. Yesterday we went out for the whole day hubby & I. We had lunch went to the flicks
sciqueen
in
NRAS
12 years ago
Restart of RA medication after an operation
I've had a TURP last week. If you don't know what that is then please ignore this question. 4 days after the op I re-started Sulfasalazine. Today I am about to re-start MTX. CIMZIA will have to wait another 3 weeks at least, I was told. Has anybody been in a similar situation? Are there things I should
I've had a TURP last week. If you don't know what that is then please ignore this question. 4 days after the op I re-started Sulfasalazine. Today I am about to re-start MTX. CIMZIA will have to wait another 3 weeks at least, I was told. Has anybody been in a similar situation? Are there things I should
stbernhard
in
NRAS
12 years ago
I'M BECOMING A NITE TIME BLOGGER!!!
Hi All I've had intermitten lower back pain for the last 3 or 4 days. I haven't take and pain relief for it as its been caused by severe constipation and thus pain releif does not work. I finally went today - but have releived my back - good news, but had loose stools/diarrhoea in the morning, so
Hi All I've had intermitten lower back pain for the last 3 or 4 days. I haven't take and pain relief for it as its been caused by severe constipation and thus pain releif does not work. I finally went today - but have releived my back - good news, but had loose stools/diarrhoea in the morning, so
sciqueen
in
NRAS
12 years ago
CIMZIA - My Experience!!!
Hi All My first dose lasted 8 days before it wore of slightly - about 10%. I felt very energised for the first 8 days. Was able to clean the house, all 3 bathrooms, do washing all in the same day. Have trouble sleeping during the days now as I am not tired, even though I know I should
Hi All My first dose lasted 8 days before it wore of slightly - about 10%. I felt very energised for the first 8 days. Was able to clean the house, all 3 bathrooms, do washing all in the same day. Have trouble sleeping during the days now as I am not tired, even though I know I should
sciqueen
in
NRAS
12 years ago
Cimzia update
Evening everyone. Well, I'm due for my 2nd dose of cimzia tomorrow... The 1st was ok - didn't hurt at all but I did feel sick and light-headed and 'strange' the next day, as I said in my last blog. That lasted for 2 or 3 days and then I felt really well. The pain in my right hand almost disappeared
Evening everyone. Well, I'm due for my 2nd dose of cimzia tomorrow... The 1st was ok - didn't hurt at all but I did feel sick and light-headed and 'strange' the next day, as I said in my last blog. That lasted for 2 or 3 days and then I felt really well. The pain in my right hand almost disappeared
bub124
in
NRAS
12 years ago
Feeling weird
I took my first loading dose of Cimzia last night. The injections didn't bother me - an old hand at it now - but I do feel sort of weird. I can't explain it. I was told I'd feel really nauseous and I do sort of but it's more that I'm feeling really light-headed and just can't be bothered to do much
I took my first loading dose of Cimzia last night. The injections didn't bother me - an old hand at it now - but I do feel sort of weird. I can't explain it. I was told I'd feel really nauseous and I do sort of but it's more that I'm feeling really light-headed and just can't be bothered to do much
bub124
in
NRAS
12 years ago
CIMZIA!!!
Hi All Had my first of 3 loading dose this afternoon. I did both injections in my tummy - my preferred area and they did not hurt or sting. Got a slight headache soon after and I've been a sleep all afternoon. Just had dinner and I am heading back to bed. I was aprehensive at the start, but
Hi All Had my first of 3 loading dose this afternoon. I did both injections in my tummy - my preferred area and they did not hurt or sting. Got a slight headache soon after and I've been a sleep all afternoon. Just had dinner and I am heading back to bed. I was aprehensive at the start, but
sciqueen
in
NRAS
12 years ago
Due to start Cimzia next wk!!!
Hi All - hope you are well? Just a quickie to update every one. Had my final assessment about two and half wks ago. Got the phone call on tuesday to arrange delivery and then to book nurse to demonstrate/teach how to administer the drug. I am due to start next wednesday. I should mention that
Hi All - hope you are well? Just a quickie to update every one. Had my final assessment about two and half wks ago. Got the phone call on tuesday to arrange delivery and then to book nurse to demonstrate/teach how to administer the drug. I am due to start next wednesday. I should mention that
sciqueen
in
NRAS
12 years ago
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