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Benfotiamine B1 5 Day Trial
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Misdiagnosis? Fibromyalgia or PA?
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
Chickens44
in
Pernicious Anaemia Society
3 months ago
Help with results appreciated
Hi everyone, It's been a while since I had full TFTs etc so I was surprised to see some of the results, especially compared to last time (2020). The TSH is lower than in 2020 (when it was 3.7), the Free T4 is slightly higher (16.2 in 2020), but the Free T3 is lower than it was (5.24). My B12 results
Hi everyone, It's been a while since I had full TFTs etc so I was surprised to see some of the results, especially compared to last time (2020). The TSH is lower than in 2020 (when it was 3.7), the Free T4 is slightly higher (16.2 in 2020), but the Free T3 is lower than it was (5.24). My B12 results
AmandaK
in
Thyroid UK
3 months ago
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Help with Labs?
I had been seeing a Functional doctor privately but lost job and cannot really afford a consultation at the moment. secersl years ago a Bluehorizon test showed high RT3 and I was put on liothyronine 50mcg per day and 50 Levo which I have remained taking to present. My gynae just ran some bloods which
I had been seeing a Functional doctor privately but lost job and cannot really afford a consultation at the moment. secersl years ago a Bluehorizon test showed high RT3 and I was put on liothyronine 50mcg per day and 50 Levo which I have remained taking to present. My gynae just ran some bloods which
Dollyrocker000
in
Thyroid UK
3 months ago
More B12 when ill ?
Hi everyone. Strange question. I’m injecting weekly. But just caught the kids flu. Is the advice to inject more frequently when unwell ?
Hi everyone. Strange question. I’m injecting weekly. But just caught the kids flu. Is the advice to inject more frequently when unwell ?
PAapr22
in
Pernicious Anaemia Society
3 months ago
Viramin B12 deficiency
I am Jak 2 ET and taking 1000mg hydroxycarbamide daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks. I'll be doing another blood test then to see if it's
I am Jak 2 ET and taking 1000mg hydroxycarbamide daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks. I'll be doing another blood test then to see if it's
Lilbert
in
MPN Voice
3 months ago
On T3 mono and Ferritin is 17 below rage
considerationHi I am on T3 mono and have been for quite a few years now and all I can see is people's iron goes up on T3 mono and Im the opposite and have hardly any iron. I had a FiT test so not bleeding I keep getting the runs on the iron tablets and stools have only been dark once I take vitamin
considerationHi I am on T3 mono and have been for quite a few years now and all I can see is people's iron goes up on T3 mono and Im the opposite and have hardly any iron. I had a FiT test so not bleeding I keep getting the runs on the iron tablets and stools have only been dark once I take vitamin
Pascha1
in
Thyroid UK
4 months ago
New to RA
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Hi all I have recently been diagnosed with RA and am on Methotrexate, Folic Acid and steroids for 2 months ! now I am on the meds I do feel somewhat better than I have for a while ! Is it normal to get random swelling of my hands without any significant pain ? thanks In anticipation
Pjf0265
in
NRAS
3 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
3 months ago
6 months later
Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K route that I had walked 6 months ago. I 'knew' my self treatment was successful. I wanted a definitive marker and was willing to face that there was no improvement in my ability to walk the same 5K. A small leap of faith.
Inspired by a post by Wwwdot "One Year Later" I decided to walk the same 5K route that I had walked 6 months ago. I 'knew' my self treatment was successful. I wanted a definitive marker and was willing to face that there was no improvement in my ability to walk the same 5K. A small leap of faith.
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
3 months ago
Levo Brands/NICE guidelines
TT two years’ ago from being hypER with goitre. Now on 125mgs Accord Levo. Various ‘symptoms’ but apart from weight gain my main concerns are breathlessness/balance issues/food sensitivities. An interesting consult with my gp this morning and I would like to see what comments the forum might
TT two years’ ago from being hypER with goitre. Now on 125mgs Accord Levo. Various ‘symptoms’ but apart from weight gain my main concerns are breathlessness/balance issues/food sensitivities. An interesting consult with my gp this morning and I would like to see what comments the forum might
C1949K
in
Thyroid UK
3 months ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
3 months ago
Finally spoken to endocrinologist 1st in 20+ years
Got to chat with the endocrinologist (not the one I'd hoped for after seeing list on Thyroid UK) I had to really concentrate as English not her 1st language but we managed to have an in depth chat over the phone. Anyway my doctor referred me as didn't want to put my levo up from 100 to 125mcg luckily
Got to chat with the endocrinologist (not the one I'd hoped for after seeing list on Thyroid UK) I had to really concentrate as English not her 1st language but we managed to have an in depth chat over the phone. Anyway my doctor referred me as didn't want to put my levo up from 100 to 125mcg luckily
Humphre
in
Thyroid UK
5 months ago
B12 - shots v pills
Hi Please could someone confirm the benefits of a B12 injection v taking a supplement? Are we just talking about larger doses and / or ability to avoid the stomach and increase absorption? Is availability of B12 injection really restricted on the NHS? If I decide to go down the chemist route, do
Hi Please could someone confirm the benefits of a B12 injection v taking a supplement? Are we just talking about larger doses and / or ability to avoid the stomach and increase absorption? Is availability of B12 injection really restricted on the NHS? If I decide to go down the chemist route, do
N5girl
in
Thyroid UK
3 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
3 months ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
3 months ago
Which B Complex for Hashi's
I have been on the same B complex for a few years now which was recommended by my then FD https://www.seekinghealth.com/products/b-complex-plus-100-capsules Because I have the mthfr gene I have the methylated ones but wondering whether to change due to constant high B12 readings on blood tests. The
I have been on the same B complex for a few years now which was recommended by my then FD https://www.seekinghealth.com/products/b-complex-plus-100-capsules Because I have the mthfr gene I have the methylated ones but wondering whether to change due to constant high B12 readings on blood tests. The
Jefner
in
Thyroid UK
3 months ago
Results are in
Haven't tested since last July. Wanted to test again end of last year but pharmacies kept messing with my meds so I had to keep waiting for things to settle down for a few weeks Latest results on 125mcg Levo and 10mcg T2 split dose. Levo taken 24hrs before, 5mcg T3 taken around 4pm and 5mcg T3 taken
Haven't tested since last July. Wanted to test again end of last year but pharmacies kept messing with my meds so I had to keep waiting for things to settle down for a few weeks Latest results on 125mcg Levo and 10mcg T2 split dose. Levo taken 24hrs before, 5mcg T3 taken around 4pm and 5mcg T3 taken
Jefner
in
Thyroid UK
3 months ago
Vit B amounts,please
Hi A-Team ,advice as usual please got my Mum a Quality B complex 408 mg today ,also vit B12 500ug, should I start Ma on the B-complex ,only first & for how long ?or one of each daily.. best time of day also please..glad to lose her nhs cyanide tainted vit b..! Thanks Gazdad (Gareth)
Hi A-Team ,advice as usual please got my Mum a Quality B complex 408 mg today ,also vit B12 500ug, should I start Ma on the B-complex ,only first & for how long ?or one of each daily.. best time of day also please..glad to lose her nhs cyanide tainted vit b..! Thanks Gazdad (Gareth)
Gazdad
in
Thyroid UK
3 months ago
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