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How long will this last for?
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain wouldn’t allow me keep going. I also started noticing trembling, tingling, pins and needles and headaches/migraines. I reached the point that I was
Peacelily24
in
Pernicious Anaemia Society
3 months ago
Am I on enough thyroid medication for my weight
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
posthinking01
in
Thyroid UK
3 months ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
3 months ago
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TPO high, GP not helpful, and I’m looking for advice
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
Hello, Sorry if this is a bit long. I have been struggling with symptoms of hypothyroidism for about 5 - 6 years. I also have a long family history of hypothyroidism and all of my female relatives battled their way to a diagnosis, and I seem to be following suit. Just before covid struck, my then
TheMudRunner
in
Thyroid UK
3 months ago
Bad batch of B12
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
LizWilsonpa
in
Pernicious Anaemia Society
3 months ago
Increasing Levo but not feeling great
hellooooo I've been having some trouble with increasing my levothyroxine lately and wondered if you could help please? I've been taking levothyroxine for about 4 years roughly and it's very slowly been increasing (as expected). I started on 25, then 50, then I was on 75 for about two and a half
hellooooo I've been having some trouble with increasing my levothyroxine lately and wondered if you could help please? I've been taking levothyroxine for about 4 years roughly and it's very slowly been increasing (as expected). I started on 25, then 50, then I was on 75 for about two and a half
Hidden
in
Thyroid UK
4 months ago
Levothyroxine
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
I would discuss your results with your GP and also let them know what oral iron vitamins etc you are taking and make a decision from there. You should be able to book a telephone consultation. Goid luck
leeHil
in
Thyroid UK
5 months ago
Ferritin, B12 and folate results
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Mogget
in
Thyroid UK
3 months ago
Private blood results
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Hello So this page has been so helpful so after publishing my Dr's nhs results I was advised to pay and get private ones done. After 2 failed blood attempts and multiple needles late finally have my results. If anyone could give me some guidance I'd be extremely greatful. CRP 0.305 Ferritin 30.8
Tinkerbell_84
in
Thyroid UK
3 months ago
GP must have B12 deficiency too.
So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated? How often do they have injections? Do they come up against the same issues we do in the general population? It would be amazingly useful for
So here's the thing there must be GPs or medical professionals who are B12 deficient so it begs the question. How do they feel about how they are treated? How often do they have injections? Do they come up against the same issues we do in the general population? It would be amazingly useful for
Beckburybelle
in
Pernicious Anaemia Society
3 months ago
Nattokinase
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Does anyone take natto or vitamin k, and does it help with side fx of acalabrutinib? Thanks.
Zabb
in
CLL Support
3 months ago
How to change from T3 only to T4?
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
I'm currently self medicating on 50mcg Tiromel and have been for a few years. My doctor prescribed me 75 mcg Eutirox 5 x week and 88 on the weekends. It just wasn't working for me, so after a lot of reading I assumed I was just someone with a faulty conversion gene and decided to try alternatives.
Nikkkita
in
Thyroid UK
3 months ago
tiredness
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
Dogchasers
in
British Heart Foundation
3 months ago
Help please
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
Zolap
in
Thyroid UK
4 months ago
Weeping eye
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
madeline05
in
Thyroid UK
3 months ago
Surgeon in Liverpool as requested thyroid bloods and thyroid antibodies 🤗
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
Hi everyone ❤️ Just posting this, as some members who have been following my struggle with thyroid medication these past 4 years, I decided to discontinue the T4 teva, the silly endo put me back on after taking me off the t3 which was not working due to gastric issues, forgetting also that teva t4 did
birkie
in
Thyroid UK
4 months ago
how quickly did you regress after B12 loading?
I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like I did before; irritable, weepy, fatigued, constipated and so on. I really can’t believe I need monthly injections so am thinking I am imagining
I finished my initial B12 loading almost exactly one month ago and initially felt enormously better. However, during the last week I have started to feel like I did before; irritable, weepy, fatigued, constipated and so on. I really can’t believe I need monthly injections so am thinking I am imagining
TheLabSquad
in
Pernicious Anaemia Society
3 months ago
Does anyone else experience this? pain of the deltoid and trapezius muscles, possibly due to IM b12 both by PCP (monthly) and SI (EOD)
hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I also SI in my leg muscle. I have a system to work around the four areas of my body. I have autoimmune PA so I need to figure this out. Maybe I
hi there I’m trying to figure out if the IM b12 injections are starting to cause this pain I feel on both sides of my body … areas as specified above. I also SI in my leg muscle. I have a system to work around the four areas of my body. I have autoimmune PA so I need to figure this out. Maybe I
Schpsych2414
in
Pernicious Anaemia Society
3 months ago
Is it needed and safe for my mom to supplement with folate or B12?
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Jr499
in
Pernicious Anaemia Society
4 months ago
Benfotiamine B1 5 Day Trial
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
I decided to do a trial of Berfotiamine after reading randomized trials for peripheral neuropathy in diabetics. Yes there is work with efficacy done, just not with B12 deficiency. 1mg EOD is good enough treatment and the maximum ever needed. I no longer experience peripheral neuropathy due to my supplementation
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
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