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PMR/GCA monitoring and bone supplements
Hi recently diagnosed with PMR and just started course of steroids in the last week. Doctor has now sent me the tapering programme for following year. As I have osteopenia of the femur he has suggested I take supplements for my bones. Either calcium and vit D or bisphosponates? Any advice on which
Hi recently diagnosed with PMR and just started course of steroids in the last week. Doctor has now sent me the tapering programme for following year. As I have osteopenia of the femur he has suggested I take supplements for my bones. Either calcium and vit D or bisphosponates? Any advice on which
Sunshine8888
in
PMRGCAuk
12 days ago
My labs after TT: Grave’s
Hi new here. Also in the US. I had TT 4/23/24 and was started on 137 mcg levo right after. Fast forward to May I was having numbness to my feet and arms like tingling and had already gotten my Calcium where it needed to be so was able to stop supplements and calcitriol. So 5/24 had my labs drawn and
Hi new here. Also in the US. I had TT 4/23/24 and was started on 137 mcg levo right after. Fast forward to May I was having numbness to my feet and arms like tingling and had already gotten my Calcium where it needed to be so was able to stop supplements and calcitriol. So 5/24 had my labs drawn and
Reginarn73
in
Thyroid UK
13 days ago
The latest news ( part 3 )
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Dearest friends, You really do lift our spirits when you write such caring replies. Thank you from the bottom of our hearts! Dear Sunseaandsand, Fruitandnutcase & WELLNESS1, We were informed on Tuesday via the hospital portal that there was a new reply waiting for us to read. The day before we had
Angelicspirit
in
Bone Health and Osteoporosis UK
13 days ago
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Does anyone know dosage for vitamin D3 and Coenzyme Q10??
At my appointment last week my consultant suggested I start taking vitamin D3 and Coenzyme Q10. However he didn't give a dosage and I didn't think to ask. He is on holiday in August so I'm stuck till he is back. Has anyone else been told to try this, and what amount? I know there's a big international
At my appointment last week my consultant suggested I start taking vitamin D3 and Coenzyme Q10. However he didn't give a dosage and I didn't think to ask. He is on holiday in August so I'm stuck till he is back. Has anyone else been told to try this, and what amount? I know there's a big international
Iona57
in
Glaucoma UK
1 year ago
A Blip in time!
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
I am 74 (F) and was diagnosed in Nov, 2019 with PV and JAK 2 positive. I have been in clinical remission for 18 months and take Jakafi 10mg 2x daily. I have an allele burden of 15 currently down from 60 at diagnosis. My blood draws have been within limits for 18 months with only a blip in the blood calcium
Barney50
in
MPN Voice
15 days ago
Low adjusted calcium level
Is there any link between thyroid issues and a low adjusted calcium level? Vitamin D is higher in the range around 100 (I take 3,000IU per day) plus was on a multivitamin as well. It has never been a problem previously but two blood tests in the last year (since starting levothyroxine) have shown a low
Is there any link between thyroid issues and a low adjusted calcium level? Vitamin D is higher in the range around 100 (I take 3,000IU per day) plus was on a multivitamin as well. It has never been a problem previously but two blood tests in the last year (since starting levothyroxine) have shown a low
Curious123
in
Thyroid UK
21 days ago
Serum parathyroid hormone
Finally, after a year of the labs refusing to test Vit D, I finally had it tested, and as suspected, it was below the bottom of the scale - 23. So back on tablets and spray, and hopefully my leg muscles will start working again... The lab refusing to test has made me ill...grumble, grumble. Anyway
Finally, after a year of the labs refusing to test Vit D, I finally had it tested, and as suspected, it was below the bottom of the scale - 23. So back on tablets and spray, and hopefully my leg muscles will start working again... The lab refusing to test has made me ill...grumble, grumble. Anyway
serenfach
in
Thyroid UK
23 days ago
latest bloods ahead of neurology appt tomoz advice needed
hi all Just got my latest bloods is ahead of my neurology appt tomoz and am looking for advice Serum ferritin - 37 down from 54 Serum folate >20 Serum magnesium 0.91 Platelets 120 mine are usually low Serum iron level 16 Transferrin 2.3 I’ve also got low calcium at 2.09 And High anticardiolipin
hi all Just got my latest bloods is ahead of my neurology appt tomoz and am looking for advice Serum ferritin - 37 down from 54 Serum folate >20 Serum magnesium 0.91 Platelets 120 mine are usually low Serum iron level 16 Transferrin 2.3 I’ve also got low calcium at 2.09 And High anticardiolipin
Zenawarrior73
in
Restless Legs Syndrome
23 days ago
Hot flushes
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
Hello I’m on week 4 of daily pred (20mg), 30mg lanzaprozole, 70mg alendronic acid (weekly not daily). I’ve suddenly started having horrendous hot flushes - mainly at night but yesterday evening had a horrible sweaty and ill feeling 30 mins. Very reminiscent of my early menopause days pre HRT. I have
NewPMR53
in
PMRGCAuk
28 days ago
Advice re calcium, K2 and vit D
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Blood tests show normal levels of calcium, should I now take extra given the pred.? Also how much Vit D and K vit, reading through I have managed to get confused. Today decided not to take AA until I have a dexa scan, which many on here have advised. Iron and VitB12 low (recently gone pescatarian,
Fatsiajaponica
in
PMRGCAuk
28 days ago
High blood pressure
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
As well as Tzc, I am taking 5mg pred, 10mg amitryptiline, naproxen, lanzoprazole, risendronate sodium, calcium and vit D. Could any of these be the culprit for high blood pressure rather than Tocilizumab injections?
AliDeJ
in
PMRGCAuk
28 days ago
Last dexa was good news
Two years ago my left femoral was -2.9, well into the osteoporosis range and my spine was .6, but nobody really knows what's going on with my spine because bone spurs which they've seen on a ct can make your spine look much better than it is. My doctor immediately suggested fosamax, but I wanted to
Two years ago my left femoral was -2.9, well into the osteoporosis range and my spine was .6, but nobody really knows what's going on with my spine because bone spurs which they've seen on a ct can make your spine look much better than it is. My doctor immediately suggested fosamax, but I wanted to
Bubba3xt
in
Bone Health and Osteoporosis UK
8 months ago
My mother’s PSP , an update
Last Wednesday, we took my mom to ER, she was having diarrhea and was severely dehydrated and was having sever electrolyte imbalance. They decided to admit her to investigate her condition. At the beginning the diagnosis was septic shock with sever electrolyte imbalance. Her magnesium was very low and
Last Wednesday, we took my mom to ER, she was having diarrhea and was severely dehydrated and was having sever electrolyte imbalance. They decided to admit her to investigate her condition. At the beginning the diagnosis was septic shock with sever electrolyte imbalance. Her magnesium was very low and
Blueclouds07
in
PSP Association
8 months ago
Latest blood test
Had my latest blood test done at my local hospital yesturday as the nurse at my surgery was unsuccessful in extracting any. Had a text from my surgery last night from what they c all a sessional GP which I think is the same as a locum most of my results are normal or satisfactory apart from vitamin D
Had my latest blood test done at my local hospital yesturday as the nurse at my surgery was unsuccessful in extracting any. Had a text from my surgery last night from what they c all a sessional GP which I think is the same as a locum most of my results are normal or satisfactory apart from vitamin D
Coopergirl52
in
British Heart Foundation
7 months ago
jak2 positive with consistent relative monocytosis
hi MPN community, I am interested if others have also seen a history of both absolute and relative monocytosis with their MPN? my monos count for past 20 years ( I am 58 now diagnosed 2,5 yr ago) has always been over .5 absolute bar 3-4 tests sometimes 1 to 1.1 currently it’s been sitting around
hi MPN community, I am interested if others have also seen a history of both absolute and relative monocytosis with their MPN? my monos count for past 20 years ( I am 58 now diagnosed 2,5 yr ago) has always been over .5 absolute bar 3-4 tests sometimes 1 to 1.1 currently it’s been sitting around
Gooseey
in
MPN Voice
8 months ago
Low Potassium/High Calcium Caution
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Wwwdot
in
Pernicious Anaemia Society
1 month ago
Hike in T-Score due to steroid use. Worrying.
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
Hi All, just yesterday I finally got results from my DEXA .scan which I had done on 3rd of April. My T Score was T-2.3 (osteopina). My last DEXA scan showed my T-Score as -1.7 and deemed to be ok. This is quite a hike and I'm quite upset by i seeing that T-2.5 is Osteoporosis. I am Prednisolone
lkcreedon
in
PMRGCAuk
1 month ago
Newly diagnosed with PMR and thank you for all the info here
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Hi everyone, I received a firm-ish diagnosis of PMR this morning, after a 1-week trial on prednisone that greatly reduced my symptoms. I’d say I’m about 60 to 70% better compared to a week ago, if one can really assign numbers to such things. I still have a slight burning in my arms but not painful
Bunchberry
in
PMRGCAuk
1 month ago
Vitamin D loading dose issue
Hi all, I was prescribed 50,000 iu Vitamin D3 (SunVit brand) to take weekly for 6 weeks. I took my first dose on Tuesday last week, since then I’ve been experiencing quite severe tension headaches, dizzy spells, tummy issues and anxiety. The headaches were unbearable and from the moment I woke up
Hi all, I was prescribed 50,000 iu Vitamin D3 (SunVit brand) to take weekly for 6 weeks. I took my first dose on Tuesday last week, since then I’ve been experiencing quite severe tension headaches, dizzy spells, tummy issues and anxiety. The headaches were unbearable and from the moment I woke up
Dissydee
in
Thyroid UK
4 months ago
What are the better treatments for metastasis of the bone and pelvic lymph nodes?
Just found out the past few weeks from a biopsy and a PET/CT scan that the cancer was not contained in the prostate but metastasized to the pelvic lymph nodes and the bones. Was a surprise to me and to the urologist as well. He is recommending no surgery but a multimodal therapy with androgen deprivation
Just found out the past few weeks from a biopsy and a PET/CT scan that the cancer was not contained in the prostate but metastasized to the pelvic lymph nodes and the bones. Was a surprise to me and to the urologist as well. He is recommending no surgery but a multimodal therapy with androgen deprivation
PARKER3237
in
Advanced Prostate Cancer
1 month ago
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