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Cmv ongoing challenge
So I have been on the iv forscanet infusions total of almost 8weeks now starting with every 12 hours for the first 4 weeks and i got a undetected result for first time ever ,then they dropped my forscanet dose to every 48 hours which even i thought was too fast a drop, should have been every 24 then
So I have been on the iv forscanet infusions total of almost 8weeks now starting with every 12 hours for the first 4 weeks and i got a undetected result for first time ever ,then they dropped my forscanet dose to every 48 hours which even i thought was too fast a drop, should have been every 24 then
Parkerbarker
in
Kidney Transplant
7 months ago
Osteoporosis - treatment or not ??
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
Hello all - I have learnt so much reading the daily posts, knowledgeable responses and exchange of experiences - if only the medical professionals were as expert? I was diagnosed with PMR December '22 and have reduced to 10mg Pred (from 20mg) this month. I am mid a lifestyle changing move to the Isle
mullochs
in
PMRGCAuk
7 months ago
IV Zoledronic acid.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
unfortunately time to move to Zoledronic acic fractures happening. Tried calcium and Vit D weight bearing exercises. Has anybody got any advice before I travel down the road of no return!!! thank you in advance.
Lion321
in
Advanced Prostate Cancer
7 months ago
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things blocking calcium
I was talking to a nurse at the royal osteoporosis society and I asked about phytates and oxalates blocking calcium absorption, and she said that they don't block all the calcium, anyone say different.
I was talking to a nurse at the royal osteoporosis society and I asked about phytates and oxalates blocking calcium absorption, and she said that they don't block all the calcium, anyone say different.
Radars
in
Bone Health and Osteoporosis UK
7 months ago
Darolutamide and Desunomab Questions
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
vintage42
in
Advanced Prostate Cancer
7 months ago
high blood calcium
Hi Guys, Is anyone on Mimpara for high calcium in blood. I’m transplanted and had a parathyroidectomy but still high calcium . The mimpara makes me very nauseous but it’s the only thing they’ve offered me. Has anyone had extremely itchy skin with high calcium. Any input welcome Tina
Hi Guys, Is anyone on Mimpara for high calcium in blood. I’m transplanted and had a parathyroidectomy but still high calcium . The mimpara makes me very nauseous but it’s the only thing they’ve offered me. Has anyone had extremely itchy skin with high calcium. Any input welcome Tina
Winner76
in
Kidney Transplant
7 months ago
Blood results in. Can anyone help please?
serum iron level 30.3 umol (10-30) HIGH serum transferrin 2.6 (2.0 - 3.6) transferrin saturation index 47.5 (<55) serum sodium 140 mmol (133 - 146) serum potassium 5.1 mmol (3.5 - 5.3) serum chloride 103 mmol (95 - 108) serum urea level 4.3 mmol (2.5 - 7.8) serum creatinine 72 umol (45 - 84
serum iron level 30.3 umol (10-30) HIGH serum transferrin 2.6 (2.0 - 3.6) transferrin saturation index 47.5 (<55) serum sodium 140 mmol (133 - 146) serum potassium 5.1 mmol (3.5 - 5.3) serum chloride 103 mmol (95 - 108) serum urea level 4.3 mmol (2.5 - 7.8) serum creatinine 72 umol (45 - 84
dalzell
in
Thyroid UK
7 months ago
Blood tests results. Can anyone help me understand please?
serum iron level 30.3 umol serum transferrin 2.6 transferrin saturdation index 47.5 serum sodium 140 mmol serum potassium 5.1 mmol serum chloride 103 mmol serum urea level 4.3 mmol serum creatinine 72 umol HbA1c 32.0 mmol serum albumin 44 g/l serum alkaline phosphatase 55 u/l serum inorganic
serum iron level 30.3 umol serum transferrin 2.6 transferrin saturdation index 47.5 serum sodium 140 mmol serum potassium 5.1 mmol serum chloride 103 mmol serum urea level 4.3 mmol serum creatinine 72 umol HbA1c 32.0 mmol serum albumin 44 g/l serum alkaline phosphatase 55 u/l serum inorganic
dalzell
in
Thyroid UK
7 months ago
Is all the extra medication needed?
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Hello everyone. I was diagnosed with PMR just over 2 years ago and have posted on this invaluable site a few times. After high doses of Pred at the beginning with a possible threat of GCA,, which did not occur, I have yo-yoed a bit with stresses in life. However I am currently on 7 and a half mg and
Stargiver
in
PMRGCAuk
7 months ago
Akathisia similar to RLS
https://www.ncbi.nlm.nih.gov/books/NBK519543/#:~:text=Akathisia%20may%20appear%20soon%20after,and%20sedatives%20used%20in%20anesthesia. A number of people have posted on the forum recently and the symptoms didn't sound like RLS. Akathisia is VERY similar to RLS and is usually caused by the same medications
https://www.ncbi.nlm.nih.gov/books/NBK519543/#:~:text=Akathisia%20may%20appear%20soon%20after,and%20sedatives%20used%20in%20anesthesia. A number of people have posted on the forum recently and the symptoms didn't sound like RLS. Akathisia is VERY similar to RLS and is usually caused by the same medications
Joolsg
in
Restless Legs Syndrome
7 months ago
absorbing calcium and nutrients
it's hard work trying to absorb calcium and nutrients because there is that many foods that block each other from being absorbed like phytates and oxalates and other things when eaten together, there is even phytates in alpro milk that I take for calcium, I think I need a calcium supplement.
it's hard work trying to absorb calcium and nutrients because there is that many foods that block each other from being absorbed like phytates and oxalates and other things when eaten together, there is even phytates in alpro milk that I take for calcium, I think I need a calcium supplement.
Radars
in
Bone Health and Osteoporosis UK
7 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
7 months ago
Graham
[i] I had a diagnosis of Aortic Stenosis, classed as severe in early September 2023.[/i] [i]I am classed as 'Urgent' on a waiting list for aortic valve replacement but I am told I am on the bottom of the list and no date is forthcoming. My surgeon wants me to have a CT Calcium Score test ASAP but nothing
[i] I had a diagnosis of Aortic Stenosis, classed as severe in early September 2023.[/i] [i]I am classed as 'Urgent' on a waiting list for aortic valve replacement but I am told I am on the bottom of the list and no date is forthcoming. My surgeon wants me to have a CT Calcium Score test ASAP but nothing
Minousdad
in
Heart Valve Voice
7 months ago
Help needed
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Hi I’ve recently been diagnosed with Osteoporosis. Started on Alendronic Acid 70mg and Calcium tablets. In a lot of pain and not coping very well with medication. I need some help and advice from people with this condition. My new dr is not great. Regular gp has retired and temporary doctor at the moment
Tedsgran
in
Bone Health and Osteoporosis UK
7 months ago
Enzalutimide and Amolidipine
Hi back again and you have heard it before but this time something new has been found which l wanted to share Wrote after Xmas re husband being on 160mg as 2nd add on to Adt due to CRPC . 12 Weeks in and Blood Pressure went off the wall, we were given a prescription of 5mg Amolidipine which did nothing
Hi back again and you have heard it before but this time something new has been found which l wanted to share Wrote after Xmas re husband being on 160mg as 2nd add on to Adt due to CRPC . 12 Weeks in and Blood Pressure went off the wall, we were given a prescription of 5mg Amolidipine which did nothing
Knittingque
in
Advanced Prostate Cancer
7 months ago
Dexa scan normal but wedge fractures anyway!!
A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. The result show wedge fractures which the doctor described as “significant”. Also showed my lungs were compromised which was why I get breathless easily. Like Tangocharlie I am concerned because the Dexa scan I had before
A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. The result show wedge fractures which the doctor described as “significant”. Also showed my lungs were compromised which was why I get breathless easily. Like Tangocharlie I am concerned because the Dexa scan I had before
Omanain
in
PMRGCAuk
2 months ago
reducing atorvastatin
thanks you for all your replies, really useful hearing other people's experience. I can't get a Drs appt for three weeks, so think I will take the statin every other day until then. Missing sleep is affecting other areas of my overall health. My cholesterol is only 3.5, but I do have serious plaque and
thanks you for all your replies, really useful hearing other people's experience. I can't get a Drs appt for three weeks, so think I will take the statin every other day until then. Missing sleep is affecting other areas of my overall health. My cholesterol is only 3.5, but I do have serious plaque and
boldold
in
British Heart Foundation
7 months ago
enzalutamide and amlodipine
"enzalutamide will decrease the effect of amlodipine by affecting hepatic/intestinal CYP3A4 metabolism "....i was prescribed amlodipine and noticed it was not effective in lowering blood pressure so this must be the reason. Would a different calcium channel blocker work?
"enzalutamide will decrease the effect of amlodipine by affecting hepatic/intestinal CYP3A4 metabolism "....i was prescribed amlodipine and noticed it was not effective in lowering blood pressure so this must be the reason. Would a different calcium channel blocker work?
myamic
in
Advanced Prostate Cancer
7 months ago
I asked ChatGPT about Fosamax. How does the medication Fosamax fake your DEXA score?
This was the reply. Fosamax (alendronate) is a bisphosphonate medication used to treat and prevent osteoporosis. It works by inhibiting bone resorption, which is the process where bone is broken down and its minerals are released into the bloodstream. Here’s how Fosamax can influence Dexa (Dual-energy
This was the reply. Fosamax (alendronate) is a bisphosphonate medication used to treat and prevent osteoporosis. It works by inhibiting bone resorption, which is the process where bone is broken down and its minerals are released into the bloodstream. Here’s how Fosamax can influence Dexa (Dual-energy
Capan24
in
Bone Health and Osteoporosis UK
2 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
7 months ago
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