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Surgery and aspirin: what protocol with APS?
Hello everyone,I'll be intervened on April 22 of strabismus, to correct a previous surgery of orbit decompression due to Thyroid Eye Disease. For this new surgery the doctor will use 16 mg. of Dexamethasone IV to prevent eye inflamnation. I have a diagnosis of Double APS since 2007, with no thrombosis
Hello everyone,I'll be intervened on April 22 of strabismus, to correct a previous surgery of orbit decompression due to Thyroid Eye Disease. For this new surgery the doctor will use 16 mg. of Dexamethasone IV to prevent eye inflamnation. I have a diagnosis of Double APS since 2007, with no thrombosis
luisal
in
Hughes Syndrome APS Forum
1 year ago
Preservative free dexamethasone discountined?
The consultant has requested my gp to provide me a repeat prescription for preservative free dexamethasone but my gp surgery is constantly denying my repeat prescription because they say it’s no longer available. I’m running low and it’s Easter so what should I do. Last time the hospital rewrote to the
The consultant has requested my gp to provide me a repeat prescription for preservative free dexamethasone but my gp surgery is constantly denying my repeat prescription because they say it’s no longer available. I’m running low and it’s Easter so what should I do. Last time the hospital rewrote to the
GirlWithTheBow
in
Glaucoma UK
1 year ago
PSA Climbing while on Zoladex and Abiraterone with Prednisone
I have an appointment with Oncologist today. Going to ask if i can switch the prednisone for dexamethasone. Not sure if they will approve it. I was scheduled to start Xgeva. As I have been diagnosed with osteoporosis due to having ADT since 2017. What other treatment should I look forward to having
I have an appointment with Oncologist today. Going to ask if i can switch the prednisone for dexamethasone. Not sure if they will approve it. I was scheduled to start Xgeva. As I have been diagnosed with osteoporosis due to having ADT since 2017. What other treatment should I look forward to having
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
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Fighting a virus
My wife and I recently had a possibly surprising experience with a virus that broke through our previously robust biosecurity measures. When I went down with it, I had a slightly raised temperature (briefly + 2°C, but mostly only about 1°C above 'normal') and felt a bit ill for a few days - but was
My wife and I recently had a possibly surprising experience with a virus that broke through our previously robust biosecurity measures. When I went down with it, I had a slightly raised temperature (briefly + 2°C, but mostly only about 1°C above 'normal') and felt a bit ill for a few days - but was
PRL1957
in
PMRGCAuk
1 year ago
Prednisone switch to Dexamethasone to extend Zytiga
If I switch to Dexamethasone do I need to wean myself off of Prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
If I switch to Dexamethasone do I need to wean myself off of Prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
Scout4answers
in
Fight Prostate Cancer
1 year ago
Prednisone switch to Dexamethasone with Zytiga
If I switch to Dexamethasone do I need to wean myself off of prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
If I switch to Dexamethasone do I need to wean myself off of prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
Scout4answers
in
Advanced Prostate Cancer
1 year ago
Question about Dexamethasone with O&V
Hi everyone, I was diagnosed in Jan 23 and started Obinutuzumab 3 weeks ago - will additionally be starting Venetoclax later this week. My WBC was 32 before starting O and nearly immediately reduced to 2.5 - 5. But neutrophils have been an ongoing concern. I was profoundly neutropenic (ie 0.0) at
Hi everyone, I was diagnosed in Jan 23 and started Obinutuzumab 3 weeks ago - will additionally be starting Venetoclax later this week. My WBC was 32 before starting O and nearly immediately reduced to 2.5 - 5. But neutrophils have been an ongoing concern. I was profoundly neutropenic (ie 0.0) at
Greenbunnies
in
CLL Support
1 year ago
Slow rising PSA. Wait and watch?
Hello everyone My father has been on ADT since two years (Zytiga and Lupron). His PSA fell from 500 at diagnosis to 0.41 last September. Since then it has slowly been creeping up. In 5 months it has risen to 0.74. I have got his PSA tested every month so this is not a random jump but a slow increase
Hello everyone My father has been on ADT since two years (Zytiga and Lupron). His PSA fell from 500 at diagnosis to 0.41 last September. Since then it has slowly been creeping up. In 5 months it has risen to 0.74. I have got his PSA tested every month so this is not a random jump but a slow increase
Rodeoz15
in
Advanced Prostate Cancer
2 years ago
Reaching the end of treatment, suggestions beyond Docetaxel and Carboplatin.
1st Docetaxel in ‘21 held psa down to 8, but further treatments have been with no success. I read once that the steroid to use with chemo could be Dexamethasone 1 mg rather than prednisone 5 mg. Is there a clinical reason why? What next?
1st Docetaxel in ‘21 held psa down to 8, but further treatments have been with no success. I read once that the steroid to use with chemo could be Dexamethasone 1 mg rather than prednisone 5 mg. Is there a clinical reason why? What next?
docbulldog
in
Advanced Prostate Cancer
2 years ago
Dexamethasone
After 10 cycles of Docetaxel I'm having a break from treatment for a few weeks before deciding on the next treatment. My PSA is still rising In the meantime I've been prescribed Dexamethasone. 500 micrograms. I've read some previous posts on this. Is the view on balance this can be helpful in keeping
After 10 cycles of Docetaxel I'm having a break from treatment for a few weeks before deciding on the next treatment. My PSA is still rising In the meantime I've been prescribed Dexamethasone. 500 micrograms. I've read some previous posts on this. Is the view on balance this can be helpful in keeping
Finlay66
in
Advanced Prostate Cancer
2 years ago
Thyroid or Pituitary Problem?
Sorry in advance for the long essay! Desperatly hoping for some advice. I am a 30-year-old female suffering fatigue, brain fog & migraine with visual disturbances since July 2020, therefore I stopped the COCP after a 10-year use (which was prescribed for the management of menorrhagia). Since stopping
Sorry in advance for the long essay! Desperatly hoping for some advice. I am a 30-year-old female suffering fatigue, brain fog & migraine with visual disturbances since July 2020, therefore I stopped the COCP after a 10-year use (which was prescribed for the management of menorrhagia). Since stopping
Amy_O
in
Thyroid UK
2 years ago
Two years and counting
I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was excellent. I had some questions. Can I go snow skiing in March? Yes. When do I have to worry about bones breaking. Dr Sartor said his recent
I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was excellent. I had some questions. Can I go snow skiing in March? Yes. When do I have to worry about bones breaking. Dr Sartor said his recent
Skippy3
in
Advanced Prostate Cancer
2 years ago
Mandibular (trigeminal) nerve interference... relief?
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
noahware
in
Advanced Prostate Cancer
2 years ago
Started Triplet Therapy this week, new doc, new (better) treatment plan!
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Gl448
in
Advanced Prostate Cancer
2 years ago
Docetaxel guideline for Prostate cancer
Dear friends, My father’s Onco had given just 5 days prednisolone 5 mg twice a day after the day of chemo and dexamethasone 8 mg intravenous the day of chemo. Unfortunately, I have lost my dear, sweet heart father 3 months after the last chemo (8 sessions). My father PSA was only 157. It is so devastating
Dear friends, My father’s Onco had given just 5 days prednisolone 5 mg twice a day after the day of chemo and dexamethasone 8 mg intravenous the day of chemo. Unfortunately, I have lost my dear, sweet heart father 3 months after the last chemo (8 sessions). My father PSA was only 157. It is so devastating
Samani
in
Advanced Prostate Cancer
2 years ago
n plate don't work after covid
I've been on n plate for 3 years and it was working until 2 months ago when I got sick from corona virus very lightly but a week later the platelets dropped to 10 and they don't go up only with dexamethasone for a while and again 10 and below, does anyone have a similar experience? thank you
I've been on n plate for 3 years and it was working until 2 months ago when I got sick from corona virus very lightly but a week later the platelets dropped to 10 and they don't go up only with dexamethasone for a while and again 10 and below, does anyone have a similar experience? thank you
lianaki
in
ITP Support Association
2 years ago
Looking for more wholistic answers to dealing with ITP
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
bonandmick
in
ITP Support Association
2 years ago
Can this be considered castrate resistance?
Hi all My father was diagnosed with PCa last year in April with an initial PSA of 500. Through ADT his PSA dropped to 0.4 in 16 months. In the last 3 months his PSA has increased as follows: September: 0.42 October: 0.45 November: 0.53 Is this considered three consecutive increases which people talk
Hi all My father was diagnosed with PCa last year in April with an initial PSA of 500. Through ADT his PSA dropped to 0.4 in 16 months. In the last 3 months his PSA has increased as follows: September: 0.42 October: 0.45 November: 0.53 Is this considered three consecutive increases which people talk
Rodeoz15
in
Advanced Prostate Cancer
2 years ago
ThIrd infusion of JANX007
Hello all, I had my 3rd infusion today of the new immunotherapy drug called JANX007. They had been giving me IV steriods and benadryl. My MO came in today and said we are going to change things up, NO STERIODS. He said the odds of having a reaction to the cancer drug was less than 10%. So he sent
Hello all, I had my 3rd infusion today of the new immunotherapy drug called JANX007. They had been giving me IV steriods and benadryl. My MO came in today and said we are going to change things up, NO STERIODS. He said the odds of having a reaction to the cancer drug was less than 10%. So he sent
ehoneycutt29
in
Advanced Prostate Cancer
2 years ago
with drawl side effects or new side effects
My dads psa was rising so they switched prednisone to dexamethasone in may- the psa continues to rise- he dad get a cat scan a month ago chest, abdominal, pelvic and there was minimal change but do to not being as effective and because of my dad having swollen ankles and feet they took him off from
My dads psa was rising so they switched prednisone to dexamethasone in may- the psa continues to rise- he dad get a cat scan a month ago chest, abdominal, pelvic and there was minimal change but do to not being as effective and because of my dad having swollen ankles and feet they took him off from
Chris52981
in
Advanced Prostate Cancer
2 years ago
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