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MBC lines of treatment- options
Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/21. HR + HER2- on Ibrance and letrozole No metabolic activity after 3 months on treatment still going strong. I was told there us now 8 lines of treatment but I can only think of 3. What's next after Ibrance? Appreciate any
Hi! My name is Kim 43 lumpectony 5/2020 MBC bone only from neck to both knees 3/21. HR + HER2- on Ibrance and letrozole No metabolic activity after 3 months on treatment still going strong. I was told there us now 8 lines of treatment but I can only think of 3. What's next after Ibrance? Appreciate any
KimberlyB40
in
SHARE Metastatic Breast Cancer
1 year ago
ear piercing on ibrance
Hi there, Crazy question (maybe). Has anyone had their ears pierced while on ibrance? I will be asking my onc but thought maybe a few of you have, and can share any issues (if they came up!) I am in a personal adornment mood given all the cutting, zapping and drugs these day 🤗. Thanks!
Hi there, Crazy question (maybe). Has anyone had their ears pierced while on ibrance? I will be asking my onc but thought maybe a few of you have, and can share any issues (if they came up!) I am in a personal adornment mood given all the cutting, zapping and drugs these day 🤗. Thanks!
CalGal56
in
SHARE Metastatic Breast Cancer
1 year ago
Cough on Ibrance
Hi everyone- I just wanted to reach out and see if anyone has developed an active cough while taking Ibrance. If so- what is this usually attributed to with the Ibrance?
Hi everyone- I just wanted to reach out and see if anyone has developed an active cough while taking Ibrance. If so- what is this usually attributed to with the Ibrance?
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
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Sudden increase in resting Heart Rate?
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
kitenski
in
AF Association
1 year ago
We are incredibly excited to see you in-person at this year’s Arrhythmia Alliance Patients Day!
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
TantaAnna update post sixth ablation
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Tantaanna
in
AF Association
1 year ago
MBC and NED status
Most recent scan showed no evidenced of disease. when i was first diagnosed my oncologist told me that MBC is not curable...am I getting bogged down with semantics here? Why can't we stop the meds once we reach NED? I of course will discuss this with my doctor I am just genuinely curious how this works
Most recent scan showed no evidenced of disease. when i was first diagnosed my oncologist told me that MBC is not curable...am I getting bogged down with semantics here? Why can't we stop the meds once we reach NED? I of course will discuss this with my doctor I am just genuinely curious how this works
SpongebobMom
in
SHARE Metastatic Breast Cancer
1 year ago
ibrance and letrozole , mbc now with liver enhancement
can any one help I live in north east of UK . I’ve been taking ibrance 125mg and letrozole for 2 years and my latest scan has shown liver cancers have grown and osteoblast of sternum I also have mbc in breast , lymph and spine L1, all stable Has any one had similar and what was your next line
can any one help I live in north east of UK . I’ve been taking ibrance 125mg and letrozole for 2 years and my latest scan has shown liver cancers have grown and osteoblast of sternum I also have mbc in breast , lymph and spine L1, all stable Has any one had similar and what was your next line
Jenhood
in
My Breast Cancer Community
1 year ago
long timers on Ibrance
hello everyone I just wanted to see if there are any long timers out there who have done well on Ibrance and/or lupron letrozole/ how their experience has been.
hello everyone I just wanted to see if there are any long timers out there who have done well on Ibrance and/or lupron letrozole/ how their experience has been.
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
TMS mind body syndrome
I have been on this journey of chronic pelvic pain for 3 years now . I had 2 surgeries trying to fix my PN based on findings of imaging . The surgeries did nothing to help at all. I work in the medical field myself so I thought that there absolutely HAD to be something structurally wrong with me. The
I have been on this journey of chronic pelvic pain for 3 years now . I had 2 surgeries trying to fix my PN based on findings of imaging . The surgeries did nothing to help at all. I work in the medical field myself so I thought that there absolutely HAD to be something structurally wrong with me. The
SLR1
in
Pelvic Pain Support Network
1 year ago
Can Anyone Help?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
SilverliningsForNow
in
AF Association
1 year ago
Enhertu next treatment??
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip bone. got almost a year and a half from ibrance. After that I was on Exemestane and Everolimus for 2 months and all my liver mets grew. My
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
anal pain spasms 10 years helllllllp
Hi everyone I hope someone out there can help me because it's now been 10 Years that I have suffered with this unbearable pain and nothing seems to help. The doctors have sent me for more operations and procedures that I can even explain. Everything from two different pudendal nerve blocks to radio ablation
Hi everyone I hope someone out there can help me because it's now been 10 Years that I have suffered with this unbearable pain and nothing seems to help. The doctors have sent me for more operations and procedures that I can even explain. Everything from two different pudendal nerve blocks to radio ablation
pianoguy
in
Pelvic Pain Support Network
1 year ago
Break from ibrance
Evening all I have thankfully been Ned since November 2021. My oncologist has today suggested that we consider me taking a break from ibrance in the near future . Has anyone who has been stable Ned had such a break and if so for how long and did you then resume ibrance when progression occurred. Many
Evening all I have thankfully been Ned since November 2021. My oncologist has today suggested that we consider me taking a break from ibrance in the near future . Has anyone who has been stable Ned had such a break and if so for how long and did you then resume ibrance when progression occurred. Many
Archiedog
in
SHARE Metastatic Breast Cancer
1 year ago
Beautiful Thrivers
How is the beginning of summer?Have you been driving and your mind starts thinking I will not see this Beautiful scenery one day And you tear up. It goes away I never had these thoughts before the meds My CT scan is steady and she took me off ibrance for two weeks Red cells low More Greens Veggies
How is the beginning of summer?Have you been driving and your mind starts thinking I will not see this Beautiful scenery one day And you tear up. It goes away I never had these thoughts before the meds My CT scan is steady and she took me off ibrance for two weeks Red cells low More Greens Veggies
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
Bisoprolol and arrhy
hi I am on 2.5mg daily of Bisoprolol. My question is does Bisoprolol reduce episodes of arrhythmia or does it just reduce heart rate? I have paroxysmal AF and GP has recommended increasing the dose to 5mg daily but I am reluctant as I am a runner and my resting heart rate is 45-55 BPM, sometimes lower
hi I am on 2.5mg daily of Bisoprolol. My question is does Bisoprolol reduce episodes of arrhythmia or does it just reduce heart rate? I have paroxysmal AF and GP has recommended increasing the dose to 5mg daily but I am reluctant as I am a runner and my resting heart rate is 45-55 BPM, sometimes lower
Wednesdaystar22
in
AF Association
1 year ago
covid
hi. Has anyone got Covid gone off ibrance and feel worse. I am so tired it’s nuts. My blood work today was good although my tumor markers went up 3 points but I’m really nervous. Thanks so much. Marianne
hi. Has anyone got Covid gone off ibrance and feel worse. I am so tired it’s nuts. My blood work today was good although my tumor markers went up 3 points but I’m really nervous. Thanks so much. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
1 year ago
Just diagnosed with Atrial fibrillation
Hi I was diagnosed with A-fib a couple of weeks ago via an ECG trace on my Kardia mobile. I am now on Apixaban 5mgs twice daily and Atenelol and have been advised that an ablation is the best way forward. I only have had 3 episodes to my knowledge and so it paroxysmal but makes me feel pretty unwell
Hi I was diagnosed with A-fib a couple of weeks ago via an ECG trace on my Kardia mobile. I am now on Apixaban 5mgs twice daily and Atenelol and have been advised that an ablation is the best way forward. I only have had 3 episodes to my knowledge and so it paroxysmal but makes me feel pretty unwell
JennyP2017
in
Arrhythmia Alliance
1 year ago
BC metastasizes to dermis
Hi everyone, I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I have shared, I have been diagnosed with BC 3 times. First was triple negative at 44 with a lumpectomy, chemo and radiation. I was cancer free for
Hi everyone, I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I have shared, I have been diagnosed with BC 3 times. First was triple negative at 44 with a lumpectomy, chemo and radiation. I was cancer free for
CalGal56
in
SHARE Metastatic Breast Cancer
1 year ago
Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor in HR+, HER2- MBC
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Apologies for the length, but I thought you might find this interesting! from: https://dailynews.ascopubs.org/do/sonia-challenges-need-first-line-use-cdk4-6-inhibitor-hr-positive-her2-negative?utm_source=newsletter&utm_medium=email&utm_campaign=The+OncoAlert+Newsletter+DAY+4+ASCO+2023&cmid=14f595bb-abce
Bestbird
in
SHARE Metastatic Breast Cancer
1 year ago
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