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6 month PETSCAN results are in!
Hi! So I'm 41 with "advanced stage 4 widespread metastatic disease " multiple bone involvement only being treated with Ibrance Letrozole zoladex and Zometa. I just have my 2nd 6 month Petscan which said "sclerotic osseous metastasis BUT no metabolically active lesion are seen. All hypermetabolic lesions
Hi! So I'm 41 with "advanced stage 4 widespread metastatic disease " multiple bone involvement only being treated with Ibrance Letrozole zoladex and Zometa. I just have my 2nd 6 month Petscan which said "sclerotic osseous metastasis BUT no metabolically active lesion are seen. All hypermetabolic lesions
KimberlyB40
in
SHARE Metastatic Breast Cancer
3 years ago
Radiotherapy burns
Hi , hope you can help. After my mastectomy in June, I was further offered 15 sessions of radiotherapy. My sessions went well and I finished them on 20/8 ,now back on 75 mg ibrance. However this past week I have experienced discomfort from radiotherapy burns especially along the line of my scar, it is
Hi , hope you can help. After my mastectomy in June, I was further offered 15 sessions of radiotherapy. My sessions went well and I finished them on 20/8 ,now back on 75 mg ibrance. However this past week I have experienced discomfort from radiotherapy burns especially along the line of my scar, it is
Archiedog
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance and Infection protocol?
Hi Lovely People, I searched for “Ibrance and infection” on the board and found a few threads, but none that discuss this problem in depth. I’ve been on a lower dose of Ibrance, 100 mg, for 6 months now, 125 mg before that. Side effects were too extreme—pain, exhaustion, etc—so my oncologist lowered
Hi Lovely People, I searched for “Ibrance and infection” on the board and found a few threads, but none that discuss this problem in depth. I’ve been on a lower dose of Ibrance, 100 mg, for 6 months now, 125 mg before that. Side effects were too extreme—pain, exhaustion, etc—so my oncologist lowered
JeniMcC
in
SHARE Metastatic Breast Cancer
3 years ago
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Any people's experiences taking Faslodex and /or Ibrance
I had a mastecomy just over a week ago and yesterday the doctor mentioned about going on the above mentioned drugs. I had Stage 3 breast cancer in 2017 with lumpectony,chemo and radiation and just had a Stage 1 reoccurence in same breast which is why they did the mastectomy. Know there are several serious
I had a mastecomy just over a week ago and yesterday the doctor mentioned about going on the above mentioned drugs. I had Stage 3 breast cancer in 2017 with lumpectony,chemo and radiation and just had a Stage 1 reoccurence in same breast which is why they did the mastectomy. Know there are several serious
macor
in
SHARE Breast Cancer Support
3 years ago
PVC’s or ectopic beats
Hi, I was diagnosed with paroxysmal afib at 43 in 2017 and had catheter ablation in March this year. Afib returned for a couple of hours twice but was in the 3 month blanking period so was ok. Stopped the flecainide and verapamil 2 months after procedure as advised by surgeon and need to say it feels
Hi, I was diagnosed with paroxysmal afib at 43 in 2017 and had catheter ablation in March this year. Afib returned for a couple of hours twice but was in the 3 month blanking period so was ok. Stopped the flecainide and verapamil 2 months after procedure as advised by surgeon and need to say it feels
rayc99
in
AF Association
3 years ago
May be helpful
Hello Friends I do not want to give advice.. bern on ibrance since May 2018 started low75mg now on 125mg what I’m running past you.. never once stopped ibrance cause all that time white count ok.. reason ok I take supplement marrow plus white count always stable take two capsules in morning with turkeytail
Hello Friends I do not want to give advice.. bern on ibrance since May 2018 started low75mg now on 125mg what I’m running past you.. never once stopped ibrance cause all that time white count ok.. reason ok I take supplement marrow plus white count always stable take two capsules in morning with turkeytail
GG33
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance
Hi all! Does anyone deal with neuropathy while on ibrance and faslodex
Hi all! Does anyone deal with neuropathy while on ibrance and faslodex
Phillipians4and6
in
SHARE Metastatic Breast Cancer
3 years ago
Different AF Types
I have noticed that I get two types of AF periods. One is where my heart goes into an irregular beat but stays within the normal pulse rate. The other is where it jumps to around 160bpm and is irregular. Is there a difference in the two and how long can you leave the high heart rate before thinking
I have noticed that I get two types of AF periods. One is where my heart goes into an irregular beat but stays within the normal pulse rate. The other is where it jumps to around 160bpm and is irregular. Is there a difference in the two and how long can you leave the high heart rate before thinking
Firstbusman
in
AF Association
3 years ago
AV block and Supraventricular tachycardia runs...
Hi everyone, Am fairly new here (diagnosis mid April) and my first post ... but have been reading you all lots and it has really helped me understand things and be less anxious, and you all sound so nice :). I have a question I would be so grateful if any of you could shed some light on what it means
Hi everyone, Am fairly new here (diagnosis mid April) and my first post ... but have been reading you all lots and it has really helped me understand things and be less anxious, and you all sound so nice :). I have a question I would be so grateful if any of you could shed some light on what it means
Pitterpat
in
AF Association
3 years ago
Kardia different reading to normal. Being Normal Sinus. Today’s reading: Sinus Rhythm with PVentricular Contractions. HR also higher today?
Kardia reading different to normal. Usually Normal Sinus. Today it reads: Sinus Rhythm with Premature Ventricular Contractions. My heart rate, although 80-90 heart beats per minute is within normal range it is still higher than the 60-70 it has been since I started on Bisoprosol. I also feel hot and
Kardia reading different to normal. Usually Normal Sinus. Today it reads: Sinus Rhythm with Premature Ventricular Contractions. My heart rate, although 80-90 heart beats per minute is within normal range it is still higher than the 60-70 it has been since I started on Bisoprosol. I also feel hot and
Hidden
in
AF Association
3 years ago
Ibrance schedule
Hello ladies Mums ibrance has been reduced to 75mg due to regular low bloods. She is on 3 weeks then off for 2 to see if this helps but still after 2 weeks off her bloods aren't right so another week until she can start again! Anyone got any similar stories? Mum has mets in lung and one lymph node. All
Hello ladies Mums ibrance has been reduced to 75mg due to regular low bloods. She is on 3 weeks then off for 2 to see if this helps but still after 2 weeks off her bloods aren't right so another week until she can start again! Anyone got any similar stories? Mum has mets in lung and one lymph node. All
Millie666
in
SHARE Metastatic Breast Cancer
3 years ago
SBRT to broken rib
Hi all, So, because the latest break to my rib was in a brand new place where there weren't lesions before, my Onc said that it could be a new lesion, which means that the Ibrance and Letrozole isn't working anymore. This along with the loss of Barb and Nancy have caused me to rethink my plans to continue
Hi all, So, because the latest break to my rib was in a brand new place where there weren't lesions before, my Onc said that it could be a new lesion, which means that the Ibrance and Letrozole isn't working anymore. This along with the loss of Barb and Nancy have caused me to rethink my plans to continue
alana303
in
SHARE Metastatic Breast Cancer
3 years ago
Unused 100mg Ibrance?
I'm writing on behalf of my grandmother who passed yesterday from her breast cancer. However I have an untouched box of Ibrance 100mg in the original shipping box that none of her doctors can do anything useful with. I know how hard it is to get, and how expensive, so I wanted to reach out here to hopefully
I'm writing on behalf of my grandmother who passed yesterday from her breast cancer. However I have an untouched box of Ibrance 100mg in the original shipping box that none of her doctors can do anything useful with. I know how hard it is to get, and how expensive, so I wanted to reach out here to hopefully
Csummers
in
SHARE Metastatic Breast Cancer
3 years ago
AFib or other arrhythmia??
Hi peeps, as some of you know, I was diagnosed with Afib last year. Prior to this, I had had another type of arrhythmia for many years and had been under a cardiology dept for nearly as long. My problem now is differentiating between Afib and the other arrhythmia. When I was first taken to hospital
Hi peeps, as some of you know, I was diagnosed with Afib last year. Prior to this, I had had another type of arrhythmia for many years and had been under a cardiology dept for nearly as long. My problem now is differentiating between Afib and the other arrhythmia. When I was first taken to hospital
Spangle14
in
AF Association
3 years ago
Faslodex and Ibrance
So happy to hear your positive ness. You brightened my day. I’ve been on faslodex and Ibrance for just 3 months. I feel great. You’ve made it hrough a year! Great news Is Ibrance less expensive in NZ?
So happy to hear your positive ness. You brightened my day. I’ve been on faslodex and Ibrance for just 3 months. I feel great. You’ve made it hrough a year! Great news Is Ibrance less expensive in NZ?
Shafight
in
SHARE Metastatic Breast Cancer
3 years ago
New here but have a question
Hi all....I was diagnosed with lobular breast cancer in 2006, and with ILC bone Mets in 2020. Been doing well on ibrance, letrozole and xgeva and my 3 month scans are in 1 week. Yesterday on 2 occasions my left leg had an acute pain episode, like it was being stabbed ( not that I know what that is like
Hi all....I was diagnosed with lobular breast cancer in 2006, and with ILC bone Mets in 2020. Been doing well on ibrance, letrozole and xgeva and my 3 month scans are in 1 week. Yesterday on 2 occasions my left leg had an acute pain episode, like it was being stabbed ( not that I know what that is like
valentinecalico
in
SHARE Metastatic Breast Cancer
3 years ago
Peripheral neuropathy while on Ibrance
Hello ladies, I was wondering if any of you developed a peripheral neuropathy while on Ibrance/Letrozole? If so, how long after you started the treatment and what helped? I’ve receding therapy for a year and suddenly developed pain, tingling and numbness in right foot. I’m aware that it’s one of the
Hello ladies, I was wondering if any of you developed a peripheral neuropathy while on Ibrance/Letrozole? If so, how long after you started the treatment and what helped? I’ve receding therapy for a year and suddenly developed pain, tingling and numbness in right foot. I’m aware that it’s one of the
Tolife_18
in
SHARE Metastatic Breast Cancer
3 years ago
Good News!
I haven’t been on much but I wanted to share good news! I’v been on Ibrance and Faslodex since diagnosis in April, mets to liver. Last week was first CT scan. The tumors in breast are gone and most in my liver are also gone except the two larger ones but they have shrunk significantly. They also did
I haven’t been on much but I wanted to share good news! I’v been on Ibrance and Faslodex since diagnosis in April, mets to liver. Last week was first CT scan. The tumors in breast are gone and most in my liver are also gone except the two larger ones but they have shrunk significantly. They also did
Gibby21
in
SHARE Metastatic Breast Cancer
3 years ago
Atrial Fibrillation or not?
My query is do I have Atrial Fibrillation or should it be named something else. I have a normal sinus rhythm but I am tachycardic and the heart rate spikes at times. I have frequent ectopic beats but have been advised they are of no concern. Just been prescribed 1.25mg of Bisoprolol.
My query is do I have Atrial Fibrillation or should it be named something else. I have a normal sinus rhythm but I am tachycardic and the heart rate spikes at times. I have frequent ectopic beats but have been advised they are of no concern. Just been prescribed 1.25mg of Bisoprolol.
Hidden
in
AF Association
3 years ago
Skipped beats in a row
I can go about my day to day fine with no symptoms, and out of nowhere and during my sleep I can have about 5 skipped beats in a row before I jump back into NSR - does anyone else have experience of this? It’s very jolting waiting to go back to NSR, I’m about to start bisopropol to see if this will help
I can go about my day to day fine with no symptoms, and out of nowhere and during my sleep I can have about 5 skipped beats in a row before I jump back into NSR - does anyone else have experience of this? It’s very jolting waiting to go back to NSR, I’m about to start bisopropol to see if this will help
Kellylou1712
in
Arrhythmia Alliance
3 years ago
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