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At a crossroads
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Greetings All, I have recently been scanned and increased Mets in bones and a new small spot in my liver have been found, eliminating me from my Phase Ib clinical trial that had worked from November 2021. My earlier first line of treatment, Ibrance Fulvestrant failed after about 8 months. I am now
Garlicgrower
in
SHARE Metastatic Breast Cancer
1 year ago
Ibrance 75mg
I have a one month supply of Ibrance 75 mg expires 12/2023. I have not been on this medication for almost 2 years. I hate to see it go to waste. If anybody wants it please message me.
I have a one month supply of Ibrance 75 mg expires 12/2023. I have not been on this medication for almost 2 years. I hate to see it go to waste. If anybody wants it please message me.
Aimee95
in
SHARE Metastatic Breast Cancer
1 year ago
Lymphocytes under Ibrance
Hi to all, On my last blood tests, I've had really low lymphocytes counts. For two years between 1,6 and 2,5 and then: Jan 2023 : 0,75 May 2023 : 0,6 July 2023 : 0,61 Doesn't seem to come back in the normal range. Has anyone experienced this ? Thanks a lot Love Lu
Hi to all, On my last blood tests, I've had really low lymphocytes counts. For two years between 1,6 and 2,5 and then: Jan 2023 : 0,75 May 2023 : 0,6 July 2023 : 0,61 Doesn't seem to come back in the normal range. Has anyone experienced this ? Thanks a lot Love Lu
Lulu4545
in
SHARE Metastatic Breast Cancer
1 year ago
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PET scan results :(
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
hi everyone- my dads pet scan results were just posted on the portal. Wasn’t exactly what we wanted to see / hear. He is BRCA2 positive and has been on Ibrance lupron letrozole and xjeva since June of 2022. no organ involvement on his PET scan and stable bone lesions but it does say: “developing right
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
CT Scan with New Liver spots😪, next treatment? (Ibrance & Letrozole 18 mths 1st line)
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Smokeyd
in
SHARE Metastatic Breast Cancer
1 year ago
Unknown Territory!😔
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
About 18months on Ibrance/Letrozole then progression to Liver. Been on Verzenio now for a short period thus far and Oncologist wants to do 9 Rounds/Weeks of IV Chemo. Has anyone had a similar experience? After the 9weeks possibly back on Verzenio or on Xeolda. Diagnosed De Novo so this will be first
AutumnLove
in
SHARE Metastatic Breast Cancer
1 year ago
BP Home Machines
Hi, I know that home blood pressure machines are inaccurate when measuring whilst in arrhythmia, but does that just refer to the heart rate and not the actual BP? Thanks
Hi, I know that home blood pressure machines are inaccurate when measuring whilst in arrhythmia, but does that just refer to the heart rate and not the actual BP? Thanks
Hanibal
in
AF Association
1 year ago
starting fulvestrant after over two years of Ibrance working well.
Hi there! My Mom is starting on a trial and fulvestrant after over two years on Ibrance and NED. She now has solitary liver met. No symptoms.
Hi there! My Mom is starting on a trial and fulvestrant after over two years on Ibrance and NED. She now has solitary liver met. No symptoms.
Pups2Cute
in
SHARE Metastatic Breast Cancer
1 year ago
Mitral prolapse with regurgitation
In August I was diagnosed with mitral prolapse and moderate regurgitation and also right
bundle
branch
block
. As expected, this was a bit of a shock and I have been researching and worrying about it ever since.
In August I was diagnosed with mitral prolapse and moderate regurgitation and also right
bundle
branch
block
. As expected, this was a bit of a shock and I have been researching and worrying about it ever since.
_Paul
in
Heart Valve Voice
2 years ago
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
In need of some wise words
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
hello everyone, as I’m sure most of you know my father has MBC diagnosed in June of 2022. Currently on Ibrance xjeva letrozole and monthly lupron. His 2 scans in September of 2022 and January of 2023 showed NED and his next scan is July 5. Please keep him in your prayers. My mother developed a
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
Peribronchial nodules- is ít attributed to Ibrance?
Good day my fellow warriors! I have been NED for almost 10 months taking Ibrance and Letrozole. Yesterday my latest Ctscan results came back still no definite evidence of metastatic disease but a findings in my lungs says there’s an ill- defined ground glass changes and peribronchial nodules that
Good day my fellow warriors! I have been NED for almost 10 months taking Ibrance and Letrozole. Yesterday my latest Ctscan results came back still no definite evidence of metastatic disease but a findings in my lungs says there’s an ill- defined ground glass changes and peribronchial nodules that
Taurus28
in
SHARE Metastatic Breast Cancer
1 year ago
I need help with my attitude
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Details around flecainide organising atrial fibrillation into an atrial tachy
Does anyone have any details around how/when this occurs and is it just a case of living with it? The nurses suggested I could try increasing flec from 50mg twice a day to 100mg, but if the flec causes the issues, I'm wondering if it would make things worse? I was put onto bisoprolol because of this
Does anyone have any details around how/when this occurs and is it just a case of living with it? The nurses suggested I could try increasing flec from 50mg twice a day to 100mg, but if the flec causes the issues, I'm wondering if it would make things worse? I was put onto bisoprolol because of this
kitenski
in
AF Association
1 year ago
Shingrix vaccine
I am on Ibrance and letrozole, my primary has suggested I get the shingles (shingrix) vaccine. I will be speaking to my oncologist later this week. In the mean time I wondered if any of you ladies have had the vaccine, and did you have side effects. Years ago my husband had shingles vaccine & ended up
I am on Ibrance and letrozole, my primary has suggested I get the shingles (shingrix) vaccine. I will be speaking to my oncologist later this week. In the mean time I wondered if any of you ladies have had the vaccine, and did you have side effects. Years ago my husband had shingles vaccine & ended up
FloridaNYgirl
in
SHARE Metastatic Breast Cancer
1 year ago
Afinitor/Everolimus and Tamoxifen is next :(
Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was pretty short-lived (December to June with pretty much progression showing for 1/2 that time) and now officially over. I'm ok with ending the trial because the travel out of State, and insurance issues were becoming
Hi everyone - it's time for me to change treatment again. Well my time on the Hope trial was pretty short-lived (December to June with pretty much progression showing for 1/2 that time) and now officially over. I'm ok with ending the trial because the travel out of State, and insurance issues were becoming
13plus
in
SHARE Metastatic Breast Cancer
1 year ago
anyone heard of long p wave
had my pacemaker in on Friday. Still in hospital with New med trial is bisoprolol, flecainide, amlodipine, xarelto. They say the flecainide is causing long p wave- I was taken off of flecainide in 2019 , but I thought it was for long qt wave. On this regiment of meds, no more spiking of heart
had my pacemaker in on Friday. Still in hospital with New med trial is bisoprolol, flecainide, amlodipine, xarelto. They say the flecainide is causing long p wave- I was taken off of flecainide in 2019 , but I thought it was for long qt wave. On this regiment of meds, no more spiking of heart
Tantaanna
in
AF Association
1 year ago
Long QT Interval
Because I have a left
bundle
branch
block
and heart failure and therefore on various drugs, long QT interval is something significant for me. A doctor needed to use an antibiotic for an infection that I had. He mentioned some antibiotics increase the QT interval which for me is not a positive.
Because I have a left
bundle
branch
block
and heart failure and therefore on various drugs, long QT interval is something significant for me. A doctor needed to use an antibiotic for an infection that I had. He mentioned some antibiotics increase the QT interval which for me is not a positive.
EngMac
in
AF Association
2 years ago
We are incredibly excited to see you in-person at this year’s AF Association Patients Day!
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
Hidden
Partner
in
AF Association
1 year ago
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