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am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
LNLPANDORAS
in
Pelvic Pain Support Network
1 year ago
Mets in the liver and Enhertu doesn't work - searching for other treatment
My very good friend has breast cancer since 2007 / relaps in 2018. Since Okt 2021 she has mets in bones and lymph nodes. She took Fulvestrant, Ibrance and checkpointIn May 2022 there appears mets in liver and she started the programm of Jane Mclelland. In August 2022 the mets in liver increased rapidly
My very good friend has breast cancer since 2007 / relaps in 2018. Since Okt 2021 she has mets in bones and lymph nodes. She took Fulvestrant, Ibrance and checkpointIn May 2022 there appears mets in liver and she started the programm of Jane Mclelland. In August 2022 the mets in liver increased rapidly
deHans
in
SHARE Metastatic Breast Cancer
10 months ago
Early-bird discount ending 2 weeks today!! Have you registered for Arrhythmia Alliance Annual Patients Day 2023 ?
Our Patient Services Team are looking forward to welcoming you! A dedicated event for patients\families and caregivers focusing on SVT, heart failure, implanted devices such as Pacemaker, ICDs etc and learn more about the signs of a SCA and heart attack. There will be many presentations from
Our Patient Services Team are looking forward to welcoming you! A dedicated event for patients\families and caregivers focusing on SVT, heart failure, implanted devices such as Pacemaker, ICDs etc and learn more about the signs of a SCA and heart attack. There will be many presentations from
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
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Ibrance fatigue vs Verzenio fatigue
Hello all, I recently switched from Ibrance to Verzenio. Still less than a month ago. With Ibrance my fatigue was more like slogging through deep mud everyday and forcing myself to do things. My Verzenio fatigue feels more like a weakness fatigue and my stamina is virtually nonexistent. Has anyone noticed
Hello all, I recently switched from Ibrance to Verzenio. Still less than a month ago. With Ibrance my fatigue was more like slogging through deep mud everyday and forcing myself to do things. My Verzenio fatigue feels more like a weakness fatigue and my stamina is virtually nonexistent. Has anyone noticed
Nocillo
in
SHARE Metastatic Breast Cancer
11 months ago
Hello
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
I was first diagnosed with stage 3 breast cancer in 2001 I had a mastectomy with reconstructive surgery followed by chemo and radiation. Following that I was put on Tamoxifen Arimidex and Taxol. After being off for 5 years last year in 2022 I was diagnosed in the other breast with cancer. I had surgery
chancemiracle12
in
SHARE Metastatic Breast Cancer
11 months ago
5/2 alternative schedule for ibrance study
Copied from under "Abstract" paragraph: Palbociclib, 5-days-on/2-days-off weekly, met its primary endpoint with reduced G3 + ANC, without compromising efficacy. sTK1 is prognostic and shows promise in monitoring the palbociclib response. ClinicalTrials.gov#: NCT3007979. Here's the whole article. If
Copied from under "Abstract" paragraph: Palbociclib, 5-days-on/2-days-off weekly, met its primary endpoint with reduced G3 + ANC, without compromising efficacy. sTK1 is prognostic and shows promise in monitoring the palbociclib response. ClinicalTrials.gov#: NCT3007979. Here's the whole article. If
Godbeforme
in
SHARE Metastatic Breast Cancer
11 months ago
Norpace?
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
MeganMN
in
AF Association
1 year ago
Norpace
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
I have had Atrial Tachycardia/ SVT with one ablation in 2021, then a break from the SVT, then return of SVT since last December. I had a failed ablation in March and have had a bunch of failed medication trials due to side effects. Have been on Metroprolol, Propranolol, Diltiazem, Flecainide, and the
MeganMN
in
Arrhythmia Alliance
1 year ago
Lynparza/ Olaparib
Hi everyone- after my dad met with his oncologist regarding the mild progression he had- he will be switching to Lynparza/ Olaparib for the BRCA2 gene. He was on Ibrance, Letrozole, and Lupron for 15/16 months started in June of 2022, but she feels it is time for a switch. Anyone that has words of
Hi everyone- after my dad met with his oncologist regarding the mild progression he had- he will be switching to Lynparza/ Olaparib for the BRCA2 gene. He was on Ibrance, Letrozole, and Lupron for 15/16 months started in June of 2022, but she feels it is time for a switch. Anyone that has words of
Jenniferp2122
in
SHARE Metastatic Breast Cancer
11 months ago
best treatment after Xeloda?
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
Breege_M
in
SHARE Metastatic Breast Cancer
11 months ago
Apixaban (Eliquis) and Omega 3 supplements
Hey All!! Question...Are others who take Apixaban (Eliquis) also taking Omega 3 supplements (that include DHA)? I've read that it could be problematic...increase length of time for bleeding, etc. Any feedback would be much appreciated. Thanks!
Hey All!! Question...Are others who take Apixaban (Eliquis) also taking Omega 3 supplements (that include DHA)? I've read that it could be problematic...increase length of time for bleeding, etc. Any feedback would be much appreciated. Thanks!
ktf2022
in
AF Association
1 year ago
Scan Results on Bone mets
Hello MBC ladies! Some of you have expressed interest in how my bone scan and CAT scan came out this past week. Despite the worsening pain in my Sacrum and Illium, especially in the SI joint, my scans indicated no real changes...stable disease. However, the description indicated that there was 'intense
Hello MBC ladies! Some of you have expressed interest in how my bone scan and CAT scan came out this past week. Despite the worsening pain in my Sacrum and Illium, especially in the SI joint, my scans indicated no real changes...stable disease. However, the description indicated that there was 'intense
Dragonfly2
in
SHARE Metastatic Breast Cancer
11 months ago
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
I’ve been curious about this and wondering if anyone can explain. I want to better understand the role of the hormone therapy eg Faslodex when taken with targeted therapy such as Ibrance. Does it just reduce the amount of estrogen available to the cell and “lightens the load” on the targeted therapy?
HelenWi
in
SHARE Metastatic Breast Cancer
11 months ago
Update on PET scan
Hi everyone, I posted yesterday about my dad having a PET scan today. His last pet scan in July showed some progression to the right chest wall after being NED for a full year. They wanted to keep him on his current meds- Ibrance and Letrozole- and re-scan today, in september. Results have already
Hi everyone, I posted yesterday about my dad having a PET scan today. His last pet scan in July showed some progression to the right chest wall after being NED for a full year. They wanted to keep him on his current meds- Ibrance and Letrozole- and re-scan today, in september. Results have already
Jenniferp2122
in
SHARE Metastatic Breast Cancer
11 months ago
No longer in NED.
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
Casual
in
SHARE Metastatic Breast Cancer
11 months ago
supplements with ibrance?
What are the best supplements to take while taking ibrance? Turmeric? Green tea? Any specific vitamins?
What are the best supplements to take while taking ibrance? Turmeric? Green tea? Any specific vitamins?
Greatday2
in
SHARE Metastatic Breast Cancer
11 months ago
Starting Kisquali and Injections
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Progression after being on Ibrance for two years…CT scans didn’t show any cancer progression. I had one small area that the Urologist found to be inflammation so…I had a PET and found many new areas of metastasized areas. Why are CT scans so unreliable? Kind of scares me now. I would like to hear from
Paratroop1
in
SHARE Metastatic Breast Cancer
11 months ago
thoughts 🙏
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
hi everyone, my dad has had MBC since June of 2022. He has been on Ibrance, letrozole, lupron, and xjeva. His Mets were to bone and then he was NED for a year from June 2022 to June 2023. In July he took a PET scan and it showed a slight uptake of activity to his chest wall. Plan was to keep him on
Jenniferp2122
in
SHARE Metastatic Breast Cancer
11 months ago
Ibrance and Letrozole
Has anyone had long term success with Ibrance and Letrozole for liver mets? I only have mets to my liver.
Has anyone had long term success with Ibrance and Letrozole for liver mets? I only have mets to my liver.
Frenchgirl68
in
SHARE Metastatic Breast Cancer
11 months ago
Ibrance and your hair
It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, but now my hair is an absolute disaster . Any advice from anyone? Also I get easily short of breath and suffer dreadful fatigue. I feel I shouldn't complain cos I have no changes on my cat scans.
It's taken nearly 5 years, that's how long I've been on Ibrance and letrazole, but now my hair is an absolute disaster . Any advice from anyone? Also I get easily short of breath and suffer dreadful fatigue. I feel I shouldn't complain cos I have no changes on my cat scans.
Alnmouth
in
SHARE Metastatic Breast Cancer
11 months ago
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