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where to donate unused meds
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new meds that I want to donate. Unfortunately nobody that I have asked (breast cancer society / oncologist/ community organizer friend ) knows of
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
Not sleeping
I was diagnosed with Fibromyalgia in my early 30's. I had been on Amitriptyline since then. I was diagnosed with Sciatica after suffering with it through covid for two years not sure what it was during that time. I was put on Pregabalin which helped with the pain but my sleep is disrupted , I was
I was diagnosed with Fibromyalgia in my early 30's. I had been on Amitriptyline since then. I was diagnosed with Sciatica after suffering with it through covid for two years not sure what it was during that time. I was put on Pregabalin which helped with the pain but my sleep is disrupted , I was
Hidden
in
Fibromyalgia Action UK
7 months ago
Something I forgot to mention
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
I wrote about Toprol (Metoprol) a few minutes ago. I forgot to mention that I also take Flecainide, 100 mg. twice a day.
Pommerania78
in
AF Association
7 months ago
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leg and foot numbness and skin turns bright red in shower/heat
recently on Orserdu. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely off. Did great on Ibrance/Fulvesyrant. But not sure if we are too focused on cancer and missing a possible underlying cause. Anyone?
recently on Orserdu. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely off. Did great on Ibrance/Fulvesyrant. But not sure if we are too focused on cancer and missing a possible underlying cause. Anyone?
Elle713
in
SHARE Metastatic Breast Cancer
3 months ago
Bone Mets on Skull
I have new bone met on skull showed in recent brain scan. They are discussing targeted radiation but waiting on my PT scan to see if I have any progression elsewhere. Anyone had bone Mets on skull? Radiation? Any symptoms? Newly on Orserdu after Ibrance/Faslodex.
I have new bone met on skull showed in recent brain scan. They are discussing targeted radiation but waiting on my PT scan to see if I have any progression elsewhere. Anyone had bone Mets on skull? Radiation? Any symptoms? Newly on Orserdu after Ibrance/Faslodex.
Elle713
in
SHARE Metastatic Breast Cancer
3 months ago
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
3 months ago
Have Ibrance mouth sores?
I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the morning. Hope this helps someone. Much love ladies. ❤️
I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the morning. Hope this helps someone. Much love ladies. ❤️
NeverOutOfTheFight
in
SHARE Metastatic Breast Cancer
3 months ago
Ibrance and letrozole
Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are your side effects
Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are your side effects
2345678
in
SHARE Metastatic Breast Cancer
3 months ago
Palbociclib for MF reducing fibrosis and more
I found this subject inspired by a dead post in the Sjogren's forum. "The drug, palbociclib, may be able to prevent the scarring of bone marrow that existing treatments (Rux etc) for myelofibrosis cannot." https://medicalxpress.com/news/2021-08-discovery-potential-treatment-deadly-blood.html and active
I found this subject inspired by a dead post in the Sjogren's forum. "The drug, palbociclib, may be able to prevent the scarring of bone marrow that existing treatments (Rux etc) for myelofibrosis cannot." https://medicalxpress.com/news/2021-08-discovery-potential-treatment-deadly-blood.html and active
EPguy
in
MPN Voice
3 months ago
Clinical trial update
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trissh
in
SHARE Metastatic Breast Cancer
3 months ago
Ibrance dose reduction
I started out on Ibrance at 125. After a few months my neutrophils weren't terrible, but borderline. I convinced my oncologist to lower to 100. Now I am wondering if I have a chance to go to 75. My only reasoning being my personal comfort, mostly hoping for less fatigue. My fatigue is tolerable, but
I started out on Ibrance at 125. After a few months my neutrophils weren't terrible, but borderline. I convinced my oncologist to lower to 100. Now I am wondering if I have a chance to go to 75. My only reasoning being my personal comfort, mostly hoping for less fatigue. My fatigue is tolerable, but
Suite1000
in
SHARE Metastatic Breast Cancer
3 months ago
Ibrance - cycle number
dear all from a sunny England finally. I haven’t posted on here for a while, but wanted to see how long are patients being on Ibrance ? What cycle / years are you up to ? I am keen to understand how generally this is being handled ? thank you all in advance.
dear all from a sunny England finally. I haven’t posted on here for a while, but wanted to see how long are patients being on Ibrance ? What cycle / years are you up to ? I am keen to understand how generally this is being handled ? thank you all in advance.
TE53_67
in
SHARE Metastatic Breast Cancer
3 months ago
Pulmonary metastasectomy anyone?
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
HI , I am (almost) 60 years old and have ER+ her- metastatic breast cancer. My cancer returned after first being diagnosed 12 years . I have several tumours in my right lung. I have been stable on ibrance and letrozole for 2 years (hoping and praying for this good quality of life to continue). I
Kahe
in
SHARE Metastatic Breast Cancer
3 months ago
Ahhhh well, I guess it could be worse!
A while back, I was seen by a lady at the pain clinic, who said that I have ‘Scoliosis convex to the right with minor anterior vertebral body height loss at T12, L3 and L4. Disc space narrowing at the lumbosacral level with hypertrophy of the lower lumbar facet joints’. The pain is really intense,
A while back, I was seen by a lady at the pain clinic, who said that I have ‘Scoliosis convex to the right with minor anterior vertebral body height loss at T12, L3 and L4. Disc space narrowing at the lumbosacral level with hypertrophy of the lower lumbar facet joints’. The pain is really intense,
DollyDutchGirl_1946
in
Pain Concern
7 months ago
Advice
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
yevgeniakoretskaya
in
SHARE Metastatic Breast Cancer
3 months ago
Cannabidiol and anti coagulants
I replied to Jean Jeannie’s post about Food Additives. She suggested I posted separately about this. I recently received some OTO Sleep drops as a gift. They are designed to be taken under the tongue just before bed, and contain 10% CBD with a ‘complementary blend of botanicals’ . This forum has
I replied to Jean Jeannie’s post about Food Additives. She suggested I posted separately about this. I recently received some OTO Sleep drops as a gift. They are designed to be taken under the tongue just before bed, and contain 10% CBD with a ‘complementary blend of botanicals’ . This forum has
ibuputih
in
AF Association
7 months ago
Has anyone had Piqray denied?
Good Morning all! Looking for thoughts/experiences……… After almost 8 years on Ibrance my scans show an increase in bony Mets. My doc wants to change me to Piqray and I have been tested and carry the mutation that this med is suppose to respond to. However….after multiple appeals and an external review
Good Morning all! Looking for thoughts/experiences……… After almost 8 years on Ibrance my scans show an increase in bony Mets. My doc wants to change me to Piqray and I have been tested and carry the mutation that this med is suppose to respond to. However….after multiple appeals and an external review
Fight2016
in
SHARE Metastatic Breast Cancer
4 months ago
Catching a cold when you have fibro - turns out it’s COVID fml
Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who gets man flu. My partner went to work right through his cold even though he felt quite rough. I just got up to make a drink and dragging my body
Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who gets man flu. My partner went to work right through his cold even though he felt quite rough. I just got up to make a drink and dragging my body
Brigga
in
Fibromyalgia Action UK
7 months ago
Third Attempt.and Fail
Well, Made a trip four hours away to another EP to attempt another ablation for Atrial Tachycardia. Yet again, now a second time, this ridiculously elusive rhythm evaded them and they could not do the ablation . Not sure what options that I have left to me now. Probably will have to take Metoprolol,
Well, Made a trip four hours away to another EP to attempt another ablation for Atrial Tachycardia. Yet again, now a second time, this ridiculously elusive rhythm evaded them and they could not do the ablation . Not sure what options that I have left to me now. Probably will have to take Metoprolol,
MeganMN
in
AF Association
7 months ago
Anyone else have Tendon Issues?
For 7.8 years, I have been taking Letrozole and Ibrance. Recently, an MRI showed that my right gluteus minimus tendon fully tore and retracted for no apparent reason. Because statins can be a factor, I immediately quit taking atorvastatin. I also found a study that claimed aromatase inhibitors can also
For 7.8 years, I have been taking Letrozole and Ibrance. Recently, an MRI showed that my right gluteus minimus tendon fully tore and retracted for no apparent reason. Because statins can be a factor, I immediately quit taking atorvastatin. I also found a study that claimed aromatase inhibitors can also
Light74
in
SHARE Metastatic Breast Cancer
4 months ago
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