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My unicorn journey continues...
So, ive been discussed at MDT again... as i reacted to benralizumab then was switched to mepolizumab again reacted within 5 mins... respiratory team have now said i cant have any interleukin (IL)-5–eosinophil pathway treatment, including mepolizumab and reslizumab that target IL-5 itself, and benralizumab
So, ive been discussed at MDT again... as i reacted to benralizumab then was switched to mepolizumab again reacted within 5 mins... respiratory team have now said i cant have any interleukin (IL)-5–eosinophil pathway treatment, including mepolizumab and reslizumab that target IL-5 itself, and benralizumab
mylungshateme
in
Asthma Community Forum
2 years ago
Asthma and throat clearing
Can someone please tell me if asthma causes constant throat clearing.? I was diagnosed with asthma because of this alongside GERD. I have been given a preventer, brown inhaler but really not convinced it is helping although I have been told by nurse this can take some time to become effective.
Can someone please tell me if asthma causes constant throat clearing.? I was diagnosed with asthma because of this alongside GERD. I have been given a preventer, brown inhaler but really not convinced it is helping although I have been told by nurse this can take some time to become effective.
gillsky8
in
Asthma Community Forum
2 years ago
Niraparib ( Zejula) with an ileostomy
hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Rucaparib but lost so much fluid through the stoma that there was very little padding through the kidneys and it caused kidney problems. I may now take Niraparib . Just wondering if anyone has experience with an ileostomy and
hi everyone , is anyone with an ileostomy taking Niraparib ( Zejula) ? I took Rucaparib but lost so much fluid through the stoma that there was very little padding through the kidneys and it caused kidney problems. I may now take Niraparib . Just wondering if anyone has experience with an ileostomy and
Lookingahead
in
My Ovacome
2 years ago
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ANNOUCEMENT!!! Ask an asthma expert anything: Announcing Our 'Ask Me Anything' with Dr Andy Whittamore
On October 5th, all members of the Asthma Community Forum will be able to chat with Dr.Andy Whittamore our in-house Doctor here at Asthma and Lung UK. Ask him ANY questions you have about asthma! This special online event is called an AMA, or "Ask Me Anything." At 7:00PM BST on Wednesday, October 5th
On October 5th, all members of the Asthma Community Forum will be able to chat with Dr.Andy Whittamore our in-house Doctor here at Asthma and Lung UK. Ask him ANY questions you have about asthma! This special online event is called an AMA, or "Ask Me Anything." At 7:00PM BST on Wednesday, October 5th
ALUK_Nurses
Asthma Nurse
in
Asthma Community Forum
2 years ago
asthma
just a quick question anyone else gasp for air all day like air hunger feel as they can't breath all the time evan after taking medication for asthma???
just a quick question anyone else gasp for air all day like air hunger feel as they can't breath all the time evan after taking medication for asthma???
Hidden
in
Lung Conditions Community Forum
2 years ago
Asthma attack or panic attacks.
Hello everyone, yesterday I had quite a bad asthma attack due to a chest infection, it was the first really bad one I've ever had so I'm petrified. I'm terrified of having another one and this is setting off panic attacks. I'm struggling to tell the difference between the two because I'm wheezing
Hello everyone, yesterday I had quite a bad asthma attack due to a chest infection, it was the first really bad one I've ever had so I'm petrified. I'm terrified of having another one and this is setting off panic attacks. I'm struggling to tell the difference between the two because I'm wheezing
LadyCurcetti
in
Asthma Community Forum
2 years ago
Asthma and EGPA
I was diagnosed with eosiniphilic asthma five years ago. Prior to this I had struggled for two years - GP's opinions ranged from COPD to heart failure. I had been suffering from sinus problems as well as breathing issues - in fact I had nasal polyps removed. Fast forward to 2022. I am on my third
I was diagnosed with eosiniphilic asthma five years ago. Prior to this I had struggled for two years - GP's opinions ranged from COPD to heart failure. I had been suffering from sinus problems as well as breathing issues - in fact I had nasal polyps removed. Fast forward to 2022. I am on my third
Madbiker1
in
Asthma Community Forum
2 years ago
Traveling to France and Germany
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
kdr112
in
Asthma Community Forum
2 years ago
Ostomy Bag Gone Amuck
My Hollister ostomy bag pancakes on stoma and prevents bag from operating properly. Hence it blows up and comes apart in the most inopportune times. My hernia prevents me from putting the bag on properly. I need help from someone else. Does anyone have these problems?
My Hollister ostomy bag pancakes on stoma and prevents bag from operating properly. Hence it blows up and comes apart in the most inopportune times. My hernia prevents me from putting the bag on properly. I need help from someone else. Does anyone have these problems?
Redicy10
in
Colon Cancer Connected
2 years ago
allergic to benralizumab today started on mepolizumab feeling rough
hey so after 2 stat doses of first biologics I had to go back to mdt to be discussed as was reacting within minutes each time and requiring close monitoring for 4hrs both times. So today started mepo within 5 mins same but not quite so severe I feel rubbish. They've now added benralizumab to my list
hey so after 2 stat doses of first biologics I had to go back to mdt to be discussed as was reacting within minutes each time and requiring close monitoring for 4hrs both times. So today started mepo within 5 mins same but not quite so severe I feel rubbish. They've now added benralizumab to my list
mylungshateme
in
Asthma Community Forum
2 years ago
Surgery
I have just woken up properly from surgery, I’ve been out since 4pm (I think) on and off. I’m not currently on any painkillers (that I know of) and I feel fine. My surgery was a bit more complex, because of being diabetic they had be come in the day before. Not going to lie, fasting was AWFUL. I am
I have just woken up properly from surgery, I’ve been out since 4pm (I think) on and off. I’m not currently on any painkillers (that I know of) and I feel fine. My surgery was a bit more complex, because of being diabetic they had be come in the day before. Not going to lie, fasting was AWFUL. I am
Aardvarks
in
Endometriosis UK
2 years ago
Anxious about radiotherapy
Hello everyone. I’ve just come back from seeing my oncologist and am feeling flat and anxious. I was thinking that I might need a couple of sessions of radiotherapy after finishing my chemo but have just been told that I’ll have 25 sessions over 5 weeks with 2 further chemo (cisplatin) in weeks 1 and
Hello everyone. I’ve just come back from seeing my oncologist and am feeling flat and anxious. I was thinking that I might need a couple of sessions of radiotherapy after finishing my chemo but have just been told that I’ll have 25 sessions over 5 weeks with 2 further chemo (cisplatin) in weeks 1 and
OrdinarySoul
in
My Ovacome
2 years ago
asthma
hi all, so I've been and seen royal brompton hospital in london last week and they have said my asthma in not controlledbut worse thing is I've tried all the steriod inhalers for asthma treatment??? Any advice
hi all, so I've been and seen royal brompton hospital in london last week and they have said my asthma in not controlledbut worse thing is I've tried all the steriod inhalers for asthma treatment??? Any advice
Hidden
in
Lung Conditions Community Forum
2 years ago
hot weather and asthma
hi all, so in the UK the weather is so warm at the moment. Feels like its playing havoc with my asthma, like there is just no air. any tips on coping with this? thanks
hi all, so in the UK the weather is so warm at the moment. Feels like its playing havoc with my asthma, like there is just no air. any tips on coping with this? thanks
Ash123445
in
Asthma Community Forum
2 years ago
COPD or Asthma?
I know this question has been covered with respect to individual cases, however, I would like to know, in more general terms, how COPD is distinguished from asthma through symptoms alone. I am still waiting for tests that may lead to a formal diagnosis, and I have been experiencing an increase in breathlessness
I know this question has been covered with respect to individual cases, however, I would like to know, in more general terms, how COPD is distinguished from asthma through symptoms alone. I am still waiting for tests that may lead to a formal diagnosis, and I have been experiencing an increase in breathlessness
d0ttysslave
in
Lung Conditions Community Forum
2 years ago
What's on at Ovacome next week (commencing 14 November 2022)?
Good afternoon everyone This is a post to let you all know about what's taking place through Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like
Good afternoon everyone This is a post to let you all know about what's taking place through Ovacome's Staying Connected programme next week - and to remind you all that you would be really welcome to join us. All these events are run online via Zoom. If anyone is unfamiliar with Zoom and would like
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
high dose ventolin
Hi all!I was just wondering if anyone has come across this previously. I finally went to my asthma nurse and she thinks that my asthma is even less controlled than I suspected I know this is bad and I need to take it when needed but when I'm in need of my ventolin, if I don't get it, the need
Hi all!I was just wondering if anyone has come across this previously. I finally went to my asthma nurse and she thinks that my asthma is even less controlled than I suspected I know this is bad and I need to take it when needed but when I'm in need of my ventolin, if I don't get it, the need
bluecar15
in
Asthma Community Forum
2 years ago
FeNo Tests & living with asthma.
Hi All, First port here! I have had a bad year with my asthma, I have never really had problems before. I got a chest infection at the beginning of the year, that keeps coming back and it has completely changed my life in terms of my asthma. All my medication has changed and I have been told that
Hi All, First port here! I have had a bad year with my asthma, I have never really had problems before. I got a chest infection at the beginning of the year, that keeps coming back and it has completely changed my life in terms of my asthma. All my medication has changed and I have been told that
EducationAvion
in
Asthma Community Forum
2 years ago
Anxious - Endo and bowel surgery
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Highlandgoat
in
Endometriosis UK
2 years ago
Asthma not great today
Hi quick question. I have had asthma all my adult life. Asthma is a bit all over the placethe last few day. My question is. does anybody else get headaches and a bit dizzy when asthma is unstable. Its not anything I have
Hi quick question. I have had asthma all my adult life. Asthma is a bit all over the placethe last few day. My question is. does anybody else get headaches and a bit dizzy when asthma is unstable. Its not anything I have
teddyd
in
Asthma Community Forum
2 years ago
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